Contemplating Life – Episode 21 “Life Online Before the Internet”

This week I discuss how I honed my craft as a writer by writing in online discussion forums on the CompuServe Information Service in the early 1980s long before the Internet was popular. This led me to write an award-winning article for a local magazine.

Links of interest:

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube Version

Shooting Script

Hi, this is Chris Young. Welcome to episode 21 of Contemplating Life.

Although it’s embarrassing to admit it, my storytelling techniques were influenced by Bill Cosby. I don’t want to be associated with him because I now know what a horrible human being he is. I no longer brag that we share the same birthday July 12. Still, I admire his ability as a storyteller. When he tells the famous story of his friend Fat Albert, he tells a lengthy tale simply to illustrate how fat Fat Albert was. Then he lets out a sigh and says, “Okay, I told you that story so I can tell you this one.” And then he tells the Fat Albert story that he wanted to tell to begin with.

I find myself using that technique a lot. I can’t tell you one story until I tell you the one before that. And I can’t tell that one until the one before that. So, there is a lot of “I told you that story so I can tell you this one” in this episode. And you’ve already seen that in previous episodes and will continue to see it in future ones. It’s how I remember things. It’s the way I think. And therefore it’s the way I write.

In 1986, I wrote an autobiographical magazine feature about my experiences in that school. The article titled “The Reunion” was a reflection prompted by an all-school reunion of Indianapolis Public Schools #97 James E. Roberts School for the Handicapped. The reunion, the event not the story, was to commemorate the closing of that school.

The article was published in the September 1987 issue of Indianapolis Monthly Magazine. It was awarded “Best Magazine Feature” by the Indiana Chapter of the Society of Professional Journalists – Sigma Delta Chi.

My plan for next week is to read the article for you.

That’s the story I want to tell. But before I do so, I have to tell the story behind the story. And the story behind that one. And the story behind that one. And before I could tell you any of those stories I had to tell you about how I tell stories like Bill Cosby did. It’s all connected.

Okay… Where do I begin to tell the story? “The whole universe was in a hot, dense state then 14 billion years ago expansion started… Wait…”

No, no, no, no… Okay, maybe that is too far back.

Let’s try to get a little bit closer to the story we want to tell.

Set your way back machine to Thursday, May 26, 1983 – three years and eight days before the reunion. It was the final day of practice for the Indianapolis 500. Although there haven’t been carburetors in IndyCars for many years, that day still is referred to as “Carburetion Day” or “Carb Day” for short.

I’ve been a lifelong fan of the Indy 500. I almost started telling you a long story about how I’m a race fan but let’s cut that one out and save it for a future episode. Let’s just say it all started on Carb Day 1983. The practice session only lasts about two hours in the late morning rather than all day for most practice days. Mom attended with me and on our way home I asked her if we could stop by the RadioShack Computer Store on Crawfordsville Road. I wanted to see if they had the new RadioShack Model 100 Computer.

This revolutionary device was arguably the first true laptop computer. It measured 300x 215x50mm or about 11.75×8.5x2in and weighed just over 3 pounds. The gray monochrome LCD screen could display only 8 lines of 40 characters each. That seems ridiculously small by today’s standards and was also small compared to the 64×16 characters of the Model I. However the only “portable” computers in those days were the size of a suitcase and weighed nearly 30 pounds.

I fell in love with the machine the minute I saw it and we ended up taking one home that day. Normally I don’t remember the exact day that I purchased a computer. The sales receipt is long gone. But I remembered I bought it on the way home from Carb Day. A Google search told me the Model 100 was introduced in April 1983. Wikipedia told me the date of Carb Day for the 1983 race. I could’ve just said, “I bought it in the spring of 83” but where is the fun in that?

My dad had to disassemble my expensive new toy to wire in some extra buttons to operate the control and shift keys. In those days, I would type by poking at the keys with a stick in my right hand. I would hold pushbuttons in my left hand to operate the modifier keys. We managed to successfully wire in the micro switches on a cable about 18 inches long.

The Model 100 also had a built-in 300-baud modem. Note: “baud” is the number of bits per second. The fastest that dial-up Internet used was 56,000 baud. Today’s Internet speed is measured in gigabits or billions of bits per second.

When I built my first personal computer in 1978, I had a modem that I used for connecting to the IUPUI mainframe DEC-System 10 but by 1983 I have left my job working for the Indiana University Department of Medical Genetics and I didn’t have much use for a modem.

The Model 100 became an instant hit with journalists. The following year while I was at the Speedway, I was hanging out with reporters in the press room. Many of them were writing their stories using the device and then uploading them directly to their newspaper or wire service.

The Model 100 included a famous CompuServe “Snap-Pack”. It was a sign-up kit for the CompuServe Information Service. It consisted of a small envelope that you could rip off the perforated end and snap it open. Inside you would find an account number and a password to sign up for the online service.

CompuServe was hosted on a network of DEC-System 10 mainframes like the one we had at IUPUI. Your account number was called a PPN which stood for “Project – Programmer Number”. It was two numbers separated by a comma. I still remember mine. It was 70136,62. It was not only your account number but it was your email address as well.

Although technically the Internet was “born” in January 1983, very few people used it. Commercial Internet providers didn’t appear until around 1989. CompuServe was the first consumer online information service. There were also private computer bulletin board systems known as BBS. CompuServe was followed by services such as Prodigy and AOL but all of this predated the public use of the Internet.

I don’t know for certain when I finally opened up that snap-pack and signed into CompuServe for the first time but I’m guessing it was in the fall of 1983.

CompuServe was completely text-based. It offered email and real-time chat rooms known as CB rooms named after citizen’s band radio. You could use a nickname that was referred to as a “handle” also patterned after CB radio lingo. CompuServe also offered discussion forums called “SIGs” or “special interest groups”. You could read news articles, get weather reports, get sports scores, get stock quotes, and book airline tickets. It featured many of the things that we do with the Internet today as long as it didn’t involve images, video, or audio. By the way, in 1987 CompuServe invented the “Graphics Interchange Format” or GIF files that we use today. They updated the specification in 1989 to allow for animation. But this was still 1983. No online graphics.

There were local telephone numbers in major cities that you could use to connect to the service. However, the service was quite expensive. You were billed about $6 per hour or rather 10 cents per minute. Running at 300 baud that could add up very quickly.

I gravitated towards a SIG known as NIP-SIG which stood for National Information Providers Special Interest Group. It was the gathering place for newspaper people who kept the news pages updated. However, over time they evolved into a place where people discussed a variety of issues of the day. It eventually was renamed the “Issues Forum”. I ended up there because they had a section called “Handicapped Issues”. Not only did I participate in that subsection on a variety of disability-related issues, but I also discussed politics, religion, and other topics in the other subsections.

Each SIG was managed by a System Operator or sysop for short. The sysop of the Issues Forum was an amazing woman named Georgia Griffith. She was blind I believe for most of her life if not from birth. She accessed CompuServe using a braille terminal that would display one line of text as a series of raised bumps in braille format. She had been a music teacher for much of her adult life but had retired from that and now worked for the Library of Congress transcribing music into braille. She had a special device that she would drag across a musical score and it would create a raised shape of the music staff and notes that she could feel with her finger. I was amazed by the technology.

It was only after I knew her for several months that I learned she was also deaf. She lost her hearing late in life. I took the news pretty hard. I think it was probably the only time in my life that I felt sorry for someone regarding their disability. I couldn’t begin to imagine what it was like to be blind, build your life around music, and then later lose your hearing. I took it as a tragic loss for a dear friend. I had to remind myself that she had gone deaf long before I first met her. She was the same person I always knew yet I had no idea who she really was. Her second disability was completely hidden from me and of course, I wouldn’t have known she was blind either had she not told me.

I had already learned that communicating with people online was a great equalizer. It may sound trite or cliché but it allows you to connect mind to mind without any physical characteristics coming into play. My first realization of this phenomenon was when I was talking one-on-one with a woman whose online name was Daria Danai. At one point she simply asked, “Looks?” wondering what I looked like. I kind of freaked out because it was the first time in my life in a social situation when someone didn’t know I had a disability. I don’t recall what happened but I think I just disconnected. I wrote about it later in the Handicapped Issues forum.

In some ways, it was liberating to be completely free of my disability. On the other hand, I discovered that hiding my disability was hiding my true self. I’ve had plenty of opportunities in the decades since then either on CompuServe or on the Internet where I had the opportunity to keep my disability a secret and it just didn’t feel right.

Somewhere along the way, I drew the attention of Pamela Bowen. She was the city editor of the Huntington, WV Harold-Dispatch newspaper. Her husband Charlie also worked for the newspaper and they both worked as information providers for CompuServe. Charlie wrote a book called “How to Get the Most Out of CompuServe.”

She told me both publicly and privately that she thought I was a talented writer. We began exchanging lengthy emails with each other over the next several years in which we told each other our life stories. My emails to her became a kind of personal journal in which I shared my innermost thoughts.

We became extremely close friends. It was amazing the bond that developed between us. Unfortunately for me, yet fortunately for her, she is very happy in her marriage. If not for the strength of her relationship with her husband, I’m confident that we would have been even closer.

My letters to Pamela provided me with the kind of therapeutic value of a personal journal with the added bonus that I knew someone out there was reading what I was writing and appreciating it. At the time, the word blog had not yet been invented. Yet essentially that’s what I was writing. It was a personal blog about my life with an audience of one.

On several occasions, my mother said that she was going to collect all of the emails that I had written to Pamela and publish them as my biography. My response was, “Over my dead body.”

Her reply was, “Matter of fact… Yes exactly. When you die that’s what I’m going to do.” In those days we had no idea I could possibly outlive her.

Because CompuServe became prohibitively expensive for me, I had to find a workaround. A sysop had the authority to grant a “free flag” to members who contributed to the discussion groups. Eventually, I became the discussion leader of the “Handicapped Issues” section. That would give me free access as long as I was logged into the Issues Forum. If I logged in and quickly moved to that group, I would only be charged a few cents each time I entered and exited. However, writing emails was costly. Even if I found a way to compose them offline and upload them, at extremely low baud rates that was still costly.

Pamela was so committed to our continuing correspondence that she shared with me an account number and password to a somewhat secret file transfer area that was used by the content providers. I would log into her account, and upload a file with the name such as “pb071285” which meant it was a letter to PB on July 12, 1985. When she had read the message, she would delete it from the directory and leave me a reply with a “cy071385” the following day.

I eventually migrated from the Issues Forum to another popular feature on CompuServe – Human Sexuality Support Groups which held the online address HSX-100. It was operated by noted authors and sex educators Howard and Martha Lewis. I believe they had written a sex education book for high school use. On CompuServe, they had a series of pages of information about human sexuality as well as a lively discussion forum. Eventually, I was recruited by them to start a Handicapped Sexuality section on their forum.

My group wasn’t much of a success. I believe we attracted less than 10 participants and once we had each shared as much about our romantic successes and failures as we cared to share, it kind of went quiet and we eventually dissolved the group.

Howard appreciated my skill as a writer and suggested I start a section of personal reflections about my life with a disability. He came up with the name “CY’s Eye on Life”. If you listened to the first episode of this podcast I explained that I nearly called this podcast by that name but it’s a very confusing phrase to listen to. In case you don’t understand what I’m saying it is my initials CY an apostrophe S, eye (as in eyeball) on life. CY’s Eye on Life.

So, I told you those stories so I could tell you this one.

In early 1986, I received a small hand-addressed envelope containing an invitation that read, “You are invited to an Open House at James E. Roberts Public School #97 from 2 p.m. to 5 p.m. on May 18, 1986, commemorating 50 years of educating handicapped students in Indianapolis. And on the occasion of the closing of James E. Roberts School.”

I attended that open house and it brought back many emotional memories of my 13 years attending that school. After the event, I began writing a series of messages in the HSX Forum in my “CY’s Eye on Life” subsection. This series got rave reviews not only from professional writers like my friend Pamela but from many other people. I printed out copies of the messages and shared them with friends and family who did not have access to CompuServe. It also brought rave reviews.

Many, many people strongly encouraged me to submit it somewhere for publication but I had no interest in doing so. Writing those stories was a catharsis for me. I wanted to get those feelings out of my system and put them behind me. I didn’t want to have anything more to do with it once it was written.

One day, I was watching the noon news and there was an interview with a woman named Deborah Paul. She was the editor of Indianapolis Monthly Magazine. She said something I will never forget. She said, “I never feel like an experience is complete until I’ve written about it.” That precisely described my feeling about my writing. I need to write about things to put my experiences in perspective. I concluded that if this was the way she felt about writing, perhaps she would be open to publishing my work. If they liked it, great. If they didn’t, it would get all of my friends and family off my back because I could say I tried.

I took the series of messages that I had written and compiled them together into a single narrative. I submitted it to the magazine. In the topping letter, I mentioned what I had heard Ms. Paul say in that interview about why she wrote and how I felt the same way.

I don’t know if I told her that it was based on something I had written on CompuServe. These days, that would’ve been a dealbreaker. If you put something on the Internet, especially for free to the public, no one will buy publishing rights. If it was behind a paywall such as for Patreon subscribers, you might get away with it or they might consider it a reprint. But in those days, nobody cared about online publishing.

A few weeks later I received a handwritten note from Ms. Paul.

She said that she was going to write me a quick thank you/rejection letter when she started reading what I had written and couldn’t put it down. She wasn’t sure what to do with it because it was not the kind of thing they usually publish. She said she showed it to some of her associate editors and they didn’t know what to do with it either. She asked that I give them a couple of weeks and they would get back to me.

I did hear back in about two weeks in the form of a phone call. She said that they wanted to publish my story but there were three problems.

1. They never publish anything written in first person.

2. It doesn’t fit the format of the magazine.

3. It is too long.

She then said, “I got to thinking wait a minute… Just because we’ve never published a first-person feature before doesn’t mean we can’t start now. And I’m the editor of this magazine and I decide what is or is not our format. That leaves number three… It’s still too long.”

She gave me the option of giving me the story back again and allowing me to try to sell it somewhere else intact or to have them publish a shorter version. She said, “Chris, you’ve put your soul on paper. But we only want half of your soul”. We both laughed. When I told a friend about it, they said it reminded them of the line from the movie Amadeus when they told Mozart his music had too many notes.

She said, “I respect the fact that this is a very personal story to you so I want to give you the opportunity to submit a shorter version yourself. Or if you prefer I can just edit it. After all, that’s my job as editor. I edit.” I was happy to resubmit a shorter version.

As you might imagine, cutting your soul in two is no easy task. Writers never want their work cut but I was so happy that they would publish it I didn’t care. I resubmitted a shorter version of the story. The final version that appeared in the magazine had about five or six paragraphs cut from my resubmission and a couple of paragraphs that I had cut were put back in. I was very happy with the end result.

I don’t recall when I submitted the article or when it was accepted. It must’ve been late 1985 or early 1986 because she warned me they would be holding it until their September issue since it was school related. It would be a kind of back-to-school feature. Somewhere along the way, we made arrangements to go back to Roberts School to take some photos to accompany the piece. We also shot a photo in my home office and I supplied her with an eighth-grade class photo.

As the author, I received a couple of complimentary copies of the magazine. I wasn’t a subscriber. We also found out who was the distributor and my mom went directly t app 5o them and purchased about 10 copies so that we wouldn’t deplete the newsstand copies. I still have a couple of copies but I gave most of them away.

The response was phenomenal. I will talk more about what happened after the article appeared but I think it’s time to wrap things up for today. I haven’t decided yet if it will be read in 1 or 2 installments. In the episode following that, I will talk about what happened afterward.

I already mentioned that it received a top award in its category. More on that later.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

Many thanks to my Patreon supporters. Your support means more to me than words can express

Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life – Episode 20 “Life and Chess”

This week we continue our series of episodes on my experiences growing up in a special education school.

Links of Interest

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube version

Shooting Script

Hello, this is Chris Young. Welcome to episode 20 of Contemplating Life.

This week we continue our series of episodes on my experiences growing up in a special education school.

As we contemplate life, sometimes it seems like a game of chess. In order to succeed, you have to plan ahead. Along the way, there are gains and losses. Loss is a normal part of life. We have to experience it. It’s unavoidable. The interesting thing about chess is that you can lose every piece on the board except for the king. The king is never removed from the board. When you attack the king, he is in check. If there is no escape from that check, you call checkmate and the game ends. Sometimes a player will ceremoniously tip over the king especially if the player resigns. But you never experience the loss of the king.

Similarly in life, we experience the death of others but when we die, the game is over. As a person of faith I hope for an afterlife in which I can look back at my life but it isn’t guaranteed. Even if there is an afterlife, the game of life will be over.

This is a story of loss. Of lost love. Of lost friends. Of lost opportunities. But the game goes on.

When we last left our intrepid hero, me, I had finally gotten the attention of my first love Rose Shewman. We met the next day in the back of the physical therapy department and agreed we were officially a couple. We were going steady.

Unfortunately, we were almost as clueless at age 13 about what it meant to be boyfriend and girlfriend as I was with Cheryl at age 5. We were going steady but we were going steadily nowhere We talked on the phone when we got home many times but I didn’t have a phone in my room so there wasn’t much privacy. We would spend every free moment together at school and would occasionally hold hands going down the hallway side-by-side. We would sneak away for long chats in the therapy room. A door at the back of the therapy department led to a balcony porch. One day we snuck out there with the intention of kissing. Although we were completely alone, she was scared someone would come looking for us, find us on the porch, and catch us at a bad moment. She chickened out and we headed back to class. I said to myself, “We probably blew it. Now we might never get a chance to kiss.”

Unfortunately, that was a prophetic statement. After about three weeks she dumped me. In a last-ditch effort over the phone, I tried to get her to change her mind. I was just about to tell her I loved her but my mom walked by and I couldn’t do it in front of her.

The Beatles’ song “Yesterday” became my theme song.

Again, the only thing that comforted me was the fact that there were no other guys in the picture. I kept hoping that someday things would turn around and she would take me back. We didn’t have yearbooks in junior high but we had a class photo with a cardboard frame and cover. We all signed each other’s photo covers with farewell messages. Several of the ambulatory students such as Ted Hayes and Greg Whitney were going on to real high schools. On Rose’s class photo, I wrote, “See you next year to try again.”

In response, she signed my photo, “Don’t try again. You’ll never succeed.”

My dad tried to comfort me with the old adage, “Girls are like streetcars, if you miss one, another one comes along in a few minutes.”

“They don’t make streetcars anymore. People ride buses.”

“Okay, smart ass. Then buses.”

“And how many buses are wheelchair accessible?”

He didn’t have an answer for that.

Throughout junior high and high school, I also suffered other devastating losses.

In sixth grade, they changed the policy that everyone had to take an afternoon nap. Instead, they purchased a bunch of board games and we had a sort of indoor recess for handicapped kids. We played chess, checkers, Stratego, and some other games I don’t remember the name of. I had been playing chess since third grade. I wasn’t any good because I didn’t have anyone good to play against. There were a couple of people in junior high that played but I beat them fairly regularly and they didn’t particularly like losing all the time. I probably wasn’t a very gracious winner.

There was an eighth grader named Terry Johnson who was at the time the smartest kid I had ever met. Probably the only kid approximately my age who was a real academic rival. I taught him how to play chess and three weeks later he was beating me consistently. When he graduated from junior high and I moved up to seventh grade, that gave me back my self-proclaimed title as chess champion of the junior high.

When I got to high school, we didn’t play chess anymore but we were still good friends. He got straight A’s throughout the entire 4 years of high school and earned an academic letter sweater which he wore with great pride. Sadly, high school graduation was the end for him. He never went on to college or attempted to find employment. He died of pneumonia about six months after graduation – just two weeks before Christmas. I took it really hard. I concluded, why should I bust my ass to get straight A’s when you can goof off, hang out with the bad boys, have fun, and still get B’s and C’s?

Back in episode 11, I spoke about how his loss affected my relationship with God.

Terry had the most common kind of muscular dystrophy called Duchenne muscular dystrophy as did many of my other friends from school. They started out walking when they were young but lost that ability around age 6-7. I knew that I had something different. I had never walked so theoretically one would think whatever I had was worse than the most common type of MD. That’s why the doctors told my parents when I was first non-diagnosed that I wouldn’t live very long.

In my mind, Terry had died very young but what I didn’t know was that the average life expectancy at that time for someone with Duchenne was probably 25. None of my friends with Duchenne MD ever saw age 30. I think Gene Storms died at about 16 or 17 but we were not very close. Calvin Brandon and Wayman Glass survived until their late 20s. All had Deschene MD.

Mom used to do lots of volunteer work for the Marion County Muscular Dystrophy Foundation. She would always hear when one of the MD kids (or rather young adults) would die. If I knew them, she would come to me and tell me about it. I tried unsuccessfully to become numb to it. I never went to any of their funerals. I didn’t like funerals anyway and it was too much to go to one of them.

One day when I was perhaps age 32, Mom came to me and said, “Kelly Garrison died.” He was about five or six years younger than me. He had Duchenne MD. I didn’t know him well but I knew of him.

I said, “Well… I’m next.”

She immediately went into an angry tirade laced with, “How can you say that? You don’t know that? You’ve never been one to give up!”

When she wound down, I calmly added, “I’m still next.”

“How can you say that?”

“Because there aren’t any left. Of all the people who had some sort of muscular dystrophy that I knew from school, they are all dead. Kelly was the last one. I could live another 40 years but I’ll still be next because there just aren’t anymore.”

We both tried not to cry. That was about 35 years ago.

Fate robbed me of another chess partner.

When I was in eighth grade, we got a new girl in seventh grade named Heidi. She was in a wheelchair but I didn’t know what was wrong with her. She was extremely shy and quiet. I figured she would eventually warm up the way Rose had. The teachers found out she played chess and so they suggested I try to get her to open up a little bit by challenging her to a game. She played pretty well but she didn’t take care of her queen. I would get some sort of a fork move on her, capture her queen, and after that, she didn’t have a chance. A couple of times I took it a bit easy on her. When she would make a mistake, I would ask, “Are you sure you want to do that?” I would let her take back the move. But only if she made an obvious blunder. If she would get caught in a trap that I set then I would take the win.

One day, Mr. Kohl called me aside. “How have the chess games been going with Heidi?”

“Okay, she’s pretty good except she doesn’t protect her queen.”

“I have a favor to ask you. I need you to let her win now and then.”

I laughed in his face. “You can’t be serious. I will coach her as best I can but I’m not taking a dive. Especially against a girl. I’ve got a reputation to maintain.”

“You will do it.” It wasn’t a threat. He spoke from confidence.

“What makes you think that?”

“Because I’m not telling you to do it as your teacher. I’m asking you as a personal favor to me.”

Well fuck. He had me. Since he put it that way… I was going to do it but the best I could give him at that moment was to say I would think about it.

I didn’t get a chance to play with her for a couple of days. I made up my mind I would go easier on her. She was going to have to win but I was going to just play a mild defense. I might even “accidentally” sacrifice a piece. Then she didn’t show up to school for two weeks. One day, Mr. Kohl called me aside, “Did you ever get a chance to play against Heidi again after we talked?”

“No. She hasn’t been here in days. I was going to go easy on her but I never got the chance.”

He then explained. Heidi had cancer all along. She was terminal. She knew it and all of the teachers knew it but none of us kids. She only came to school to have something to do to live out her days. He told me she had died. I never got a chance to give her a game.

You always think you will have time to do nice things or to apologize. But you can’t be sure.

Dan Moran was in high school with me at Roberts. He had chronic kidney disease. One day we got into a stupid argument over something. I don’t recall what it was. On the way home on the school bus that day I decided to apologize the next day. He didn’t show up the next day. Or the day after that. A week later he was dead at age 16.

People say, “Don’t hold a grudge.”

I rewrote that adage after Dan died. I now say, “Don’t hold a grudge any longer than you can hold your breath. That breath might be your last.”

One more tearjerker for you just to get them all out of the way. This story is going to take a lot of backstory but it’s a backstory I was going to tell you eventually anyway so now is as good of a time as any.

As I will tell in more detail in future episodes, for my sophomore through senior years of high school I went half a day to Roberts School and the other half of the day at my local neighborhood high school Northwest High School. The wheelchair bus from Roberts would pick me up in the morning and drive me to Roberts where I would take a couple of classes that were only offered upstairs at Northwest which was inaccessible. Then after lunch, Mom would pick me up and drive me to Northwest for afternoon classes. As the bus came back through the neighborhood to drop off my friend Mark who lived just around the corner from me, it would stop by Northwest, pick me up, and bring me half a mile home.

The high school at Roberts was a joke. There were only about 20-25 students for the entire high school program. We had only two teachers. Mr. Sam Price taught English, biology, and social studies. Mrs.Harriet Bartlett taught math, bookkeeping, and French. Those teachers tried to teach an entire high school curriculum for all four years of high school. To get all of that in, they divided the day into 12 periods of 30 minutes each. Each class would consist of 2-5 students who sat around a table at the front of the room while the teacher taught. The rest of us sat around the perimeter of the room at desks facing the wall. If you took five courses plus lunch that meant you had 6 of the 30-minute class periods with nothing to do except study and try to stay out of trouble.

Scheduling all that, especially arranging it so that all of my classes were in the morning was quite a challenge. Lunch at Roberts was served in three shifts. Kindergarten through about third grade went first. Grades 4-5 plus the special ed multiply handicapped class (kids with both physical and intellectual disabilities) went second shift. Junior high went third. High school was spread out among all three periods to make the schedule work.

During my sophomore year, Rose and I were the only high school kids who ate in the first lunch period with the little kids. We had a table all to ourselves. We would eat lunch quickly and then convince the second-grade teacher who was the lunch monitor that we had permission to leave early, go back upstairs, and study.

We sort of did have permission but we were expected to go to Mrs. Bartlett’s room because Mr. Price was at lunch himself. We would sneak off to the empty classroom. We weren’t doing anything wrong. Mostly we just sat and did homework or would talk but it was nice to have a quiet place to hang out without having another class going on in the same room. Sometimes we would get to laughing too loud. Bartlett would hear us, come over next door, and angrily order us back to her classroom where we belonged.

When we were there alone together, we finally began developing that friendship that she said she always wanted from me. I learned more about her life story. She was the youngest of nine children in a large Catholic family. Her father had been a firefighter but had died from alcoholism. Her disability was caused by a rare genetic neurological disease called Frederick’s Ataxia – F.A. for short. Two of her older brothers had it. The older one was dead. The other one lived with her and her mom.

She had been able to walk up until about sixth grade. By seventh grade, she had to use a wheelchair. She had been attending Saint Teresa of the Little Flower Catholic School which was just down the street from her house. Upstairs at the school was inaccessible. She would try climbing out of her wheelchair and either climb the stairs holding onto the railing with help from someone or she would get out of the chair and she tried to crawl up the steps while someone carried her chair up. It just didn’t work out. That’s when she transferred to Roberts School halfway through seventh grade and I fell in love with her.

When she came to Roberts, she has only been in a wheelchair for a few months. She was still dealing with the trauma of recognizing what was ahead of her. That’s why she was so withdrawn when she first came to Roberts. Even though she had brothers with the same thing, moving to Roberts made it suddenly real to her. None of the rest of us realized what she was going through back then. All of us had spent many more years or perhaps our entire lives getting adjusted to life with a disability.

Having a boyfriend was the last thing on her mind back then. She confessed her letter to me in seventh grade had been a lie. She never had a boyfriend from her neighborhood. She also somewhat apologized for her snarky conclusion of the letter which concluded, “So what if I am cute?” She said, “I was really nasty to you back then wasn’t I?”

“Yeah, you were. My heart’s still broken. But you’re still cute.”

“Yes, I am. And we’re still going to be just friends.”

That friendship grew even deeper one day when we were sitting alone in Mr. Price’s room after lunch. We were actually studying for a change and not joking around. I was doing geometry and Rose was working on a biology assignment. At Roberts, there was no lab for biology. It was purely a textbook-only course. I was taking biology at Northwest. The difference between the two courses was like night and day. That we had biology lab every other day at Northwest. We dissected an earthworm, a frog, and a fetal pig. That’s one of the reasons I got out of Roberts half a day to go to Northwest – so I could take real science classes.

Anyway, our desks were across the room from each other facing one another. I happened to look up and Rose was just sitting there quietly with tears running down her face.

“What’s wrong?” I asked.

“It’s this stupid biology assignment Price gave us. We have to write a report about our own disability. Price brought in this damned medical reference book.” There was a large book about 4 inches thick that looked like an unabridged dictionary. She gave it an angry shove across the desk. She composed herself a bit and said, “They’ve got less than a full column about F.A. They hardly have anything to say about me. The stuff they say, I’ve seen it in my brothers and I’m living through it. But the thing that got me…” She started crying again… “…was the last sentence. It just says real coldly matter-of-fact, ‘Usually fatal by age 30’” She slammed the book shut and continued to cry.

I knew her oldest brother was dead and the other one was in worse shape than she was. It just didn’t sink in for her until that moment what that meant for her. Or for me either. Terry Johnson, Gene Storms, and Dan Moran were still a year or two from dying. I had never gotten close to Heidi.

We both sat there and just cried for about five minutes. I wanted to go over and hug her but even though I had some use of my arms in those days, I couldn’t reach up. The best I would’ve been able to do is pull up alongside her and invite her to hug me but that wouldn’t have helped. I wasn’t the one who needed comforting. So we just set there across the room from each other and cried. She could see I was crying too. I think that was the best we could do under the circumstances.

After a while, she said, “30 years isn’t enough.”

“No’s, it isn’t.”

She left for the restroom. I wiped my eyes and went over to Mrs. Bartlett’s room.

You will hear much more about Rose in future episodes but let me spoil some of it for you so we don’t end this episode on a total downer. After graduating high school, I occasionally heard from Rose but I didn’t see her again until a school reunion in 1986 when we were each just short of our 30th birthdays. She was happily married to the nephew of one of our classmates. A couple of years later, my cousin Nancy ran into her when they shared a ride on a city wheelchair bus. Rose was taking her newborn baby for a checkup at the doctor.

According to records I found on ancestry websites, Rose Ellen Figley (née Shewman) born September 5, 1955, died October 29, 1993, at the age of 38 years, 1 month, 24 days.

Thirty wasn’t enough. But given the circumstances maybe 38 was.

For my next couple of episodes, I’m going to do something a little different. I’ve mentioned in passing a couple of times that I wrote an award-winning article that was published in the September 1987 issue of Indianapolis Monthly Magazine. The autobiographical piece “The Reunion” is a memoir of many of my experiences at Roberts School that was inspired by an all-school reunion of Roberts alumni that was held in May 1986 on the occasion of the closing of Roberts School. Although I intend to keep the majority of this podcast to be newly written original material, I thought it might be nice to read the story for you. So, next week I will begin by telling you the story of how I wrote the article and I will read about half of it. The following week I will finish the story and talk about what happened afterward.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

Many thanks to my Patreon supporters. Your support means more to me than words can express

Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life – Episode 19 “Politics and Ponytails”

This week we continue our series of episodes on my experiences growing up in a special education school. We talk about my experiences moving from 5th to 6th grades and my first genuine interest in girls.

Links of interest:

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube Version

Shooting Script

Hello, this is Chris Young. Welcome to episode 19 of Contemplating Life.

This week we continue our series of episodes on my experiences growing up in a special education school. We talk about my experiences moving from 5th to 6th grades and my first genuine interest in girls.

We’ve talked in previous episodes about my so-called girlfriends in kindergarten and later in fourth grade but at that young age, I really had no idea what it meant to have a girlfriend or to be a boyfriend. However, at the early age of 10, it began to get real. Well… As real as it can get for a 10-year-old. A girl named Lily had a genuine crush on me.

She was in Robert’s school because she had a heart condition. As I explained in previous episodes, many of the kids didn’t really need to be in a special ed school. Anything that was serious enough to get you out of gym class or to restrict your activities on the playground would get you shipped off to the handicapped ghetto.

She would shower attention on me carrying books, helping me with my coat, and before I had my power wheelchair she would push me to and from lunch. I suspect she was a bit disappointed that I got the power chair because in some ways it put her out of a job. Still, she could see how happy I was to have it.

How bad did bad Lily crush on me? She would take a piece of paper and practice writing her name as “Lily Young”. She showed me a math paper that she “accidentally” wrote “Lily Young” at the top of it. She said she came very close to turning it in before she caught the mistake.

I wasn’t exactly smitten with her but I really did like her. She was reasonably cute and at age 11 was starting to develop a figure although she was a little bit plump. Most of all, I enjoyed the attention she gave me and did what I could to encourage it.

We never held hands or talked about kissing let alone trying to do it. I don’t recall talking to her on the phone although a couple of years later she called me just to see how I was doing so we must have exchanged phone numbers.

I’m pretty sure that by the end of the school year, she already knew she would attend regular school the following year. I would miss having her around and all the attention that she gave me but I wasn’t exactly heartbroken.

Lots of kids who didn’t belong in Roberts left after fifth grade. Grades 6-8 were considered junior high which today would probably be called “middle school”. Although Roberts’ junior high program wasn’t half bad, it had nowhere near the opportunities that a regular school would have.

The transition from 5th to 6th grade also meant moving upstairs. By then, I had mastered navigating the big ramp and enjoyed going up and down every day. It was no longer the terrifying experience that it had been that first time down.

In junior high, we had a homeroom where we had English which included spelling, grammar, and literature. The sixth-grade homeroom teacher Mr. Ron Kohl taught social studies for all three grades. The seventh-grade teacher Mrs. Irene McBurnie taught science and music. The eighth-grade teacher Miss Meta Fogas taught math. We shared a shop teacher and home economics teacher with the high school. There was an art teacher who was in the building one or two days a week and would rotate with other schools.

We would spend most of the day in our homeroom but would rotate to other rooms for science, music, or math. It probably would’ve been easier to just have the teachers switch rooms and leave all of us in the room we started in but something about the idea of switching from classroom to classroom made it feel more like a regular school. Also, we did have a small amount of lab equipment in the seventh-grade science room and of course, we had to switch rooms for shop and home ec.

In shop class, we did some woodworking projects like making lamps or wall decorations, and we spent some time learning mechanical drawing which was fun. If we had had CAD software in those days I might have taken up drafting or architecture as a career. I couldn’t handle any drawing bigger than an ordinary sheet of paper so a full-size blueprint would’ve been out of my capability. The girls did cooking and sewing.

My sixth-grade homeroom teacher Mr. Kohl was a jolly fellow who stood about 5 feet tall and was totally bald. He was a lot of fun but if you got in trouble too often he could be really tough. One time when the class had been getting especially rowdy he imposed on us what he called “The Week” in which he was no more Mr. Nice Guy. We got the message. We could have fun in his class but there were limits and he could take away all of the fun at a minute’s notice.

Like Miss Holmes and Mr. Wright in the third and fourth grades, he recognized how bright I was and I quickly became his favorite. Of course, he also realized how lazy I was and was quick to give me those speeches about not living up to my potential, etc., etc. He was the teacher I spoke of earlier who tried to trick me into joining the spelling bee by appealing to my competitive nature and ego about my intellect. It didn’t work.

I had acquired a passion for politics from my mother and that passion was further fueled by his social studies class. This was 1966-69 so it was an exciting time with the height of the Vietnam War and all of the social unrest regarding that as well as the civil rights movement.

He said that someone once asked him if segregationist Alabama Governor George Wallace ever died would he go to spit on his grave? He replied, “I promised myself when I was in the Army I would never stand in line again.” He had been stationed in Germany but only after the end of World War II. He still had lots of stories about his time in Europe in the service.

I remember how surprised he was when President Johnson announced, “I shall not seek and I will not accept the nomination of my party for another term as your President.” Mr. Kohl had assured us that Johnson would be president again and we teased him pretty hard the day after LBJ announced he was out.

Although Mr. Kohl refused to identify as Democrat or Republican, it was obvious he was a liberal, especially on social justice issues. He was Catholic and probably quite pro-life. He and his wife were unable to have children so they adopted a daughter. She was about the same age as my adopted sister Carol so he and my mom shared a bond. I reconnected with him years later on Facebook but I don’t recall when he died. I doubt that he lived to see the Trump presidency but I’m certain that if he had, even if he had become more conservative, he would have been appalled by politics today and the assault on democracy.

There was something very important missing from my sixth-grade experience.

Girls.

It wasn’t just Lily who left Roberts School after fifth grade. All of the girls either moved out of town or started going to regular school. It just so happened there were no handicapped girls our age anywhere in the city of Indianapolis that particular year.

We did get some excitement for about six weeks. A girl, whose name escapes me all these years later, came to our school. She was a very attractive blonde with a great personality. She described herself as a tomboy and her evidence was that she had fallen out of a tree and broken her leg. She was only going to be in the wheelchair at Roberts for about six weeks until her leg healed. That was enough time for my friend Ted Hayes to go nuts over her but I don’t think he ever got anywhere. I and the rest of the guys were content to just tease her about whatever we could. At age 11, we still weren’t quite girl crazy yet.

Years later I was in the cafeteria at IUPUI and an absolutely stunning blonde athletic-looking nursing student walked up to me asking, “Do you remember me?” It was the tomboy from sixth grade. Unfortunately, I was sitting there talking to a girl named Ellie who you will hear much about in future episodes. If I hadn’t been with Ellie, I would have gotten the nurse’s phone number just to see what might happen. That wasn’t the only time fate sent me a potential girlfriend while I was in the middle of pursuing someone else. Sometimes I would pray, “Come on God… You give me these long droughts with no women in my life and then you send me two at once. Can’t we get better timing?”

My all-male class continued throughout sixth grade and a couple of months into seventh grade. Then we heard we were getting a new girl at last. She was a very sweet African-American girl named Donna. I think she had a heart condition or asthma or something that didn’t put her in a wheelchair. All of the black guys chased her but never got anywhere.

I think it was in February or March of seventh grade one day we were in the eighth-grade room at math class when word got around that we were getting a new girl. As I rolled into homeroom after math class and headed for my desk.

The students in wheelchairs sat at custom-built tables designed for two wheelchairs side-by-side. They had plenty of clearance underneath for wheelchair footrests and there was a shelf below the table where you could stash your books. The height was perfect for someone sitting in a wheelchair. We had an odd number of wheelchair students and considering I was continuing my role as teacher’s pet, I was awarded the privilege of an entire desk to myself.

The new girl was sitting there in her wheelchair at my desk.

My initial reaction was, “Oh crap no, I’m gonna have to share my desk with some girl!”

Then I saw the girl. Now it was, “Oh holy shit! I gotta make sure I sit next to this girl!”

Sitting there in front of me was the most beautiful thing I’d ever seen in a wheelchair. She had sandy blonde shoulder-length hair, blue eyes, high cheekbones like some Scandinavian fashion model, and a broad smile. She was wearing a pink sweater over a white blouse, a gray pleated wool skirt, white bobby socks, and penny loafers. I was totally smitten.

In addition to the normal wheelchair desks, we had ordinary school desks but the chairs were not attached. You could sit at one of them in a wheelchair although they would be a little bit low. At one point it looked like Mrs. McBurnie was going to seat her at a single desk. I spoke up immediately and insisted I didn’t mind sharing my wheelchair desk with her. Fortunately, I got my way and she was assigned to the other half of my desk.

The teacher had been talking to the girl’s mother. The teacher then introduced her to everyone as Rose Ellen Shewman. At first, I wasn’t sure if Rose Ellen was one word or two. Her mother called her Rose Ellen and when the teacher began referring to her as Rose Ellen you could see her cringe. It didn’t take long to understand she wanted to drop her middle name and be called just Rose.

She was initially quite shy which is to be expected coming to a new school and not knowing anyone. However, she wasn’t shy about answering questions in class. She was smart. I noticed she was constantly flipping to the back of the book and looking at the glossary to find answers to questions. That was something I was too lazy to do. Prideing myself in being a know-it-all, I always had the attitude that if you have to look something up, it was an admission of failure. I gave her points for being clever enough to be able to look something up before the other idiots in the class could prove their ignorance by giving a wrong answer.

It didn’t take long for all of the other guys to know that I was first in line to get her attention. I didn’t have any competition.

The question was, “What next?” How do I get her attention? How do I show my intentions? I was a clueless 12-year-old. Some suggested that a good first step was to buy her a friendship ring. That would be a challenge. I couldn’t exactly save up money from a paper route, hop on my bicycle, and ride to the store.

One day, there was about $10-$15 just lying around on top of the TV. I concluded that they had paid the paperboy with a $20 bill and this was the change. My problem was, it was sitting back too far for me to reach. I asked my sister Carol who would’ve been about 4 years old at the time to hand it to me. Then I had to figure out an excuse to get to the store. There was a discount department store called Ayr-Way on Lafayette Road that was the 1960s equivalent of K-Mart or Walmart. I knew they had a jewelry counter full of cheap costume jewelry.

Before I could hatch a plan, I got caught. My parents confronted me and asked if I took the money. I confessed. When they asked why, I said I wanted to buy a model car kit to build. I said I was going to ask them to take me to Ayr-Way to buy it. They told me if I needed money in the future, they would give it to me. They took me to the store but I didn’t have the money with me anymore. I picked out a car kit and they paid for it.

Eventually, I had a couple of bucks from my grandma and I traded that along with the promise of all my desserts at lunch for a week to my buddy Teddy. He had a cheap friendship ring that was a metal band with hearts all around it.

I wrote a mushy love letter to Rose, put it in an envelope with the ring, and handed it to her on the way out the door at the end of school on a Friday. Monday at the end of the day, she handed me a note on the way out the door. She said she didn’t want to go steady with me. She wasn’t interested. She already had a boyfriend who lived in her neighborhood. She concluded with the sentence, “So what if I am cute?”

Naturally, I was pretty crushed.

My only consolation was that once I told all the guys she already had a boyfriend, none of them tried to step in where I had failed. I always had hope that this situation would change and I would try again. Throughout the rest of seventh grade and into eighth grade I had to just bide my time.

Eventually, Rose just became another one of the gang. We all enjoyed teasing one another. I once wrote that if our desks still had inkwells like in the olden days, we would’ve been trying to dip her ponytail into it. Rose liked to show off that she could pop a wheelie in her wheelchair and balance on her rear wheels. It took a while before she realized that we enjoyed her balancing skills so much because we could see up her skirt. After that, she never did it again.

My next chance came on Valentine’s Day in eighth grade.

We always had a party on Valentine’s Day. You would buy a package of mixed Valentines and send one to everyone in your class, including guys sending to guys and girls to girls. You had to choose carefully so that the same-sex cards were more friendly than romantic. I carefully sorted through the package that my mom got for me and picked out the mushiest one for Rose.

In eighth grade, I wasn’t sharing a desk with Rose anymore. I shared one with my best buddy Miguel “Mike” Rodriguez. Rose sat at a single desk directly in front of us. At the Valentine’s party, I leaned over to Mike and whispered, “I’ve got to keep an eye on Rose. I sent her a particularly mushy one. I’ve got to see how she reacts.”

He gave me a thumbs-up and whispered back, “Good luck bro.”

Rose opened my card, read it, turned around and looked at me, and said, “Do you mean it?”

I nearly choked on my Brach’s candy conversation heart. “Huh?”

“Do you really mean it? What it says on the card?”

The obvious response would have been, “Of course, I meant it. I picked it out special just for you.”

That’s not what I said.

Instead, I said, “Uhh… I forget what it says.”

She rolled her eyes in disbelief and then held up the card so I could reread it. Satisfied that it reflected my intent as best an out-of-the-box Valentine’s card could do so. I finally said with belated confidence, “Yeah. I meant it.”

She smiled but I think mostly it was her laughing at what an idiot I was. Meanwhile, Mike is laughing so hard he’s got his head down on the table pounding his fist. I was worried he was going to fall out of his wheelchair he was laughing so hard. I probably turned the same shade of red as the icing on the heart-shaped cookies we were eating.

In our next episode, we will continue the saga of my romance with Rose and other somewhat darker stories of my school days at Roberts School.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

Many thanks to my Patreon supporters. Your support means more to me than words can express

Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life – Episode 17 “Scientific Pursuits”

This week we continue our series of episodes on my experiences growing up in a special education school. We talk about my experiences in fourth and fifth grade and how I begin to develop a passion for math and science.

Links of interest:

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube version

Hello, this is Chris Young. Welcome to episode 17 of Contemplating Life.

This week we continue our series of episodes on my experiences growing up in a special education school. We talk about my experiences in fourth and fifth grade and how I begin to develop a passion for math and science.

When I was in third grade, Miss Holmes was assisted by a student teacher Mr. Wright. I don’t recall his first name if I ever knew it. After doing his student teaching, he was hired at Roberts School to teach fourth grade so he was already familiar with me and all of the other students.

He was a really fun guy. For social studies class, he made up some sort of play or pageant that was supposed to illustrate Native South American culture. I don’t recall if he said it was Aztec or Incan culture. I mentioned that in Miss Holmes’ class I was sort of the teacher’s favorite and that continued under Mr. Wright so I got to play the part of the tribal king. The queen was played by a girl named Rosemary. Those of you who know me, have heard me talk about a girlfriend named Rose but this was a different one.

I vaguely recall referring to Rose as my “girlfriend” but I think it was sort of along the same lines as Cheryl from kindergarten. Being in school, your family required you to have a girlfriend so I picked her. I don’t even recall if she would refer to me as her boyfriend. It may have just been someone I picked to keep my grandmother off my back asking me about girlfriends. It wasn’t that I had any particular attraction to her except that she was probably the second smartest person in the class and thus also a teacher’s favorite. She moved away after fourth grade and I never saw her again and didn’t particularly miss her. At least I don’t have any embarrassing stories to tell about insulting her disability.

Fourth grade was the first class in which we had science class. That is where I began to really get my passion for science beyond my interest in the space program which was at its height in the 1960s. We did experiments where we passed light through a prism and showed how when you stick a pencil and a glass of water, the refraction makes it look like the pencil is broken. I think we also played around with batteries, light bulbs, motors, and switches as well as electromagnets.

It was either in fourth grade or perhaps fifth grade that I began reading science fiction. The first book I read was “Tom Swift and His Rocket Ship” closely followed by “Danny Dunn and the Antigravity Paint”. I will talk more about my passion for science fiction and these books in particular in a later episode.

Beyond the science experiments and crazy plays that we acted out in Mr. Wright’s class, I also recall he was a huge fan of James Bond. This was the 1964-65 school year which saw the release of “From Russia with Love” and “Goldfinger” starring Sean Connery. I don’t know if it was Mr. Wright’s influence or I just got caught up in Bond fever but I recall I built a model car that was a James Bond Aston Martin complete with a spring-loaded ejection seat and rockets that would shoot out the back when you press a button. I remember having some deep philosophical discussions with him (to the extent a nine-year-old could) because I had difficulty with the idea that the double-O in 007 meant “license to kill.” I didn’t think even with a government license it was okay to kill somebody.

My only other memory of Mr. Wright was that he had gone to school in Terre Haute Indiana and he had us convinced that the words “Terre Haute” were Indian for “terrible smell.” It was only when I took French in high school that I learned it meant “high ground” in French.

One more very memorable thing happened in fourth grade. There was a girl named Rita Johnson in my class. She had braces on her legs and walked using “Canadian Crutches”. These are sort of like a cane that has part of it come up into a U-shaped cuff that goes around your forearm. The crutch doesn’t come all the way up to your armpit like traditional crutches.

She was walking by my desk one day and slipped and fell. The cuff around her forearm dug into her arm and cut a V-shaped slice into it about three-quarters of an inch. A flap of skin opened up from this V-cut and you could see what I thought was muscle inside her arm. I don’t know for certain that’s what I was seeing but it was definitely a deep cut through all the skin. It wasn’t just a scrape.

Like lots of kids with crutches and braces, falling down was not that unusual. She was about to attempt to get up when she looked down at her arm and saw the wound. She started screaming hysterically. They flopped the flap of skin closed, took her to the nurse’s office, wrapped it up in a bandage, and sent her back to class. I think the thing really needed stitches but she never got any. Years later when I was in my early 20s, I ran into her at a disability event and she still had a V-shaped scar on her arm. I didn’t get the opportunity to talk to her to tell her I remembered the day she got it.

Afterward, I bragged to everyone about what I saw. “It was so cool! You could actually see inside her arm!” All of the girls thought it was gross and all the guys thought it was so cool, and they were jealous that I got to see it and they didn’t.

The incident further provoked my sense of scientific curiosity. Who knows? Had I not been disabled, it might have led me to a career in medicine.

My scientific curiosity was piqued by other observations around that age. We used to go to the Lafayette Road Drive-in Movie at the corner of Lafayette Road and Georgetown Road. We had a 1959 Plymouth which had a large sloping rear window. After watching the first part of a double feature, my parents would put me in the back of the car on a large shelf above the rear seat with the window over me. I would lay there and look up at the stars and wonder about them. I knew that stars were suns and that there was no air in outer space. I recall asking my dad, “How is it possible for the stars and the sun to burn in outer space when there is no air?“ He didn’t know. I had to figure that out. It led me to an early interest in astronomy.

I always was a logical thinker. One time when we were on vacation at Lake Schaefer we were accompanied by a priest friend Father Paul Piatt. He was the second of three Father Pauls who influenced my life. He was attempting to engage me in a conversation about how God made everything and influenced everything. Somewhere in the conversation, he asked me, “Where does the wind come from?” Presumably, he wanted me to say that God made the wind blow. My answer was, “It’s caused by the trees.”

Looking back on my answer, I still think it was a brilliant deduction. I noticed that whenever the wind blew, the trees were moving back and forth. I naturally assumed that it was the motion of the trees acting like giant fans that caused the wind. I later learned this was an excellent example of the warning, “Correlation does not imply causation.” I had noticed the correlation between tree movement and wind blowing. I simply had the cause and effect backward. Still, I thought it was an ingenious observation for a young scientist.

My scientific pursuits were furthered in fifth grade under the guidance of a wonderful teacher Mrs. Beatrice Rogers. She was a heavyset African-American woman with a sparkling personality and a passion for teaching. We had all sorts of activities going on at once in her class. My favorite was a large diorama we built featuring several dinosaurs we made out of modeling clay.

The fifth-grade curriculum was the first to implement the so-called “New Math”. According to Wikipedia, this was a revolutionary, yet temporary paradigm shift in the way mathematics was taught in elementary school. It was prompted in part by the Soviet Union launching the first man-made satellite Sputnik in 1957. The belief was that Russian engineers were mathematical geniuses and that in order to compete with them in the space race, we had to raise a new generation of people who were proficient in math.

Rather than concentrate on rote memorization, the idea was to teach mathematical concepts. Kids need to understand why math was the way it was and not just memorize answers. It was designed to teach logical thinking. Among the concepts it included were Boolean logic, set theory, ideas such as intersection and union, as well as numbering systems other than base 10. It may have contributed to my inability to do simple arithmetic that I talked about last week. While most students had no use for such concepts, I was unknowingly destined for a career in computer programming. So not only did new math come to me easily, it served me well in later years.

Concepts such as intersection and union also served me well in working with 3D graphics and a graphics rendering engine I helped to develop. In 1990, I co-authored a book about computer graphics and it relied on such concepts. I also use it in my work when I use CAD software for 3D printing.

I wonder if new math would have worked better had they phased it in from first grade onwards rather than trying to implement it systemwide and trying to teach it to fifth or sixth-grade students who already had four or more years of old math education.

Given that children are learning coding at an early age, my guess is that many of the old “new math” concepts are being taught today without the negative connotation that became associated with the sudden and ill-conceived implementation of the new math curriculum in the 1960s.

The major event that happened in fifth grade was that I was given the use of a motorized wheelchair. The chair had been donated to the school. A small brass engraved tag on the side said, “In loving memory of my husband Mrs. Vern Hollingsworth.” And a date presumably of when Vern Hollingsworth died. I had heard that he was an elderly wealthy man who had purchased the wheelchair but only used it for about 6 months before he passed away.

The school allowed me to use the wheelchair in school and I could take it home over the summer as long as my parents agreed to keep up the maintenance. I will have more extensive comments about wheelchair technology in future episodes but briefly, this was an ordinary Everest and Jennings wheelchair with two 6-volt lead acid automobile batteries and two electric motors that powered the rear wheels through belts and pulleys. The rear wheels had wire spokes and narrow solid rubber tires.

In the summertime, riding around on concrete sidewalks and streets caused excessive wear on the tires and they had to be replaced quite often. Scraping into narrow doorways wreaked havoc on the thin wire spokes and Dad eventually replaced them with heavy-duty spokes. The batteries had to be replaced about once a year but they were standard 6-volt car batteries which were still in common use in the mid-1960s.

The electronics were quite primitive by modern standards of power wheelchairs. The joystick was a simple plastic knob that rested inside four micro switches set at 45° angles. When you pushed the stick straight forward, it would press 2 of the switches which would engage both motors forward. If you pushed forward and right, it would engage only the left motor. Push straight sideways and one motor would go forwards and the other would go backward. I called that maneuver a “bat-turn” after the way the famous Batmobile could turn instantaneously in the 1960s TV version of Batman.

Unlike modern power chairs, there was no proportional control. Each motor was either on or off. The physical therapist who taught me how to drive it had little or no experience with the device. She told me, “If you get into trouble, just let go of the joystick and you will stop.” She unknowingly left out the word, “eventually”. When you let go, the chair would coast a tiny bit and that was on level ground. I didn’t realize that on a ramp, it would roll on its own without power.

My misadventures in the wheelchair began on day one when I ran over Mrs. Rogers’ foot. After that, she learned to stay out of my way.

My second thrilling moment in the power wheelchair came when I tried to drive it down a large ramp that connected the first and second-floor classrooms. This episode is already way too long so I’m going to save that story for a later episode. Let’s just say my scientific mind learned a lot about physics driving a wheelchair down the ramp out of control.

I didn’t have the only power wheelchair in the school. There were two others. Nancy and Leslie Gilson were about three years and five years ahead of me respectively. The Gilson sisters were quite frail petite young ladies with a soft voice that you had to strain to hear sometimes. They both had a type of muscular dystrophy although not the common Duchenne’s muscular dystrophy because only boys get that type.

The family had purchased 4 power wheelchairs – two to use at school and another pair for use at home. They didn’t ride the school bus like the rest of us. Their chauffeur would lift them out of their home wheelchairs and put them in the limousine and drive them to school. Then he would lift them into the other power wheelchairs which were kept at the school. We always said it was a “chauffeur” and a “limousine” but none of us really knew that as a fact. It might have been their dad or older brother or friend of the family driving what was obviously a fancy car probably a Lincoln or a Cadillac but not necessarily a limousine.

Power wheelchairs in those days cost about $1000 which in today’s money would be about $30,000. The fact that the family could afford four of them made it obvious they were well-off.

The presumed wealth of the Gilson family was an illustration of the diversity of the student body at Roberts School. On one end of the spectrum, we had the Gilsons who could afford four power wheelchairs. On the other end of the spectrum was one of my classmates who didn’t come to school for a week because he had no shoes to wear. He needed expensive orthopedic shoes. When the social worker inquired why he wasn’t in school and discovered the reason, the PTA paid for a new pair of shoes. The only reason I knew about it was that my mom was president of the PTA and couldn’t keep a secret.

Roberts School had students who were black, white, Hispanic, and Asian. Rich and poor. Catholic, Protestant, Jewish, and atheist. Disability knows nothing of race, creed, or socioeconomic status. While we were highly segregated from the rest of the school population because of our disabilities, we were at the time the most integrated school by all other measures.

The prevailing belief that the Gilson family was well-off was confirmed when sadly Leslie passed away shortly before graduating high school. The family donated a large sum of money to buy hundreds of library books for the school. Each of them contained a foil sticker on the inside flyleaf saying “Donated in memory of Leslie Gilson.” Among the donated books were some sci-fi classics by Asimov and Clarke which I enjoyed. Her family accepted her high school diploma posthumously.

After the incident on the big ramp, even though I didn’t know either of the sisters because they were older than me, I stopped Nancy in the hall one day and asked her advice on navigating the ramp.

Everest and Jennings dominated the wheelchair market in those days and they were the only company to make power chairs. They only had one model. Even though my wheelchair was theoretically identical to those driven by the Gilson girls, for some reason they both were faster than me. We never officially “raced” but I would find an opportunity to go down the hall alongside them and lose miserably. It really made me angry I could get outrun by a couple of girls.

I never got to know Leslie at all. Nancy was only a couple of years ahead of me so we were in high school at the same time. She was quite shy yet very intelligent with a good sense of humor. She won a poetry contest for a poem that moved me greatly. I’ve got a copy of it stashed around here somewhere and I will reprint it if I ever find it.

In an award-winning magazine article I wrote in 1987 about my school experiences, I told a story about the Gilson girls that was related to me by one of the teachers at a school reunion. I got a nice note from their older brother thanking me for remembering them. He said he didn’t recall the incident I described how Nancy handled the death of her older sister yet he said he couldn’t deny it happened.

For me, it doesn’t matter if the story was true or not. It doesn’t matter if they came to school in a chauffeur-driven limousine or if it was just their dad or older brother in a fancy car. It’s an example of the famous line from the film “The Man Who Shot Liberty Valance” which says “When the legend becomes fact, print the legend.”

The Gilson girls were the stuff of legends.

In our next episode, we will continue the saga of my school days at Roberts School. I will tell one more story from fifth grade and then move upstairs to junior high.

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I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life – Episode 16 “Are We Safe?”

This week we continue our multi-part series about my early childhood and my journey through the special education system.

YouTube version

Shooting Script

Hello, this is Chris Young. Welcome to episode 16 of Contemplating Life.

This week we continue our multi-part series about my early childhood and my journey through the special education system.

After successfully navigating kindergarten, I proceeded through the primary grades. First and second grade were uneventful experiences. I don’t recall my teachers’ names. I was assigned a better wheelchair than the one that I had in kindergarten. The only other memorable events from that part of my life were not school related. Both of them were painful experiences that left me bruised and sore

One Sunday afternoon in the middle of winter, my family went ice skating at Geist Reservoir on the northeast side of Indianapolis. We were accompanied by my paternal grandparents. Apparently, ice skating was a family tradition that my dad enjoyed with them since his childhood. We had a small snow sled with a seat built into it. Dad lifted me into the sled and would go skating across the ice pulling me on the sled at high speed. I really enjoyed it until we hit a patch of rough ice just as we were making a turn. The sled tipped over and dumped me onto the ice. The result was a lot of sprained body parts and a black eye. I had interesting stories to tell the next day at school to explain the bruise. We never went skating again.

The other incident was at a summer camp that I believe was between my first and second grades. It was only a day camp, not overnight. It was held at a facility on the east side called the Crossroads Rehabilitation Center. That organization still exists at a different location and is now known as Easter Seals Crossroads.

Although the camp was designed to serve disabled kids, I didn’t feel like they were very well-equipped. For example, they didn’t have a handheld urinal in the restroom like the ones I used at home or at school. The janitor tried to lift me up by grabbing me under the arms and standing me in front of the toilet to try to pee. It’s the only time I ever attempted to pee standing up. Of course, my legs could not support even a tenth of my weight. It is a wonder I wasn’t injured. That would come later. The next day, Mom sent me there with a Tupperware cup to pee into.

Behind the building in a large playground area where most of the camp activities took place, they had a regular above-ground swimming pool set up. Some of the kids would be lifted out of their wheelchairs and could get into the pool. I was too afraid to allow strangers to do that. There was a wooden platform alongside the pool and a wooden ramp. They would roll me up the ramp in my wheelchair so that I could see over the edge of the pool and watch the other kids splash around.

The camp counselors were everyday high school kids who had no particular experience dealing with disabled children. The young lady who was pushing my wheelchair took me down the ramp forwards. She slipped on the wet ramp and I went rolling forward until my front wheels hit the grass. The chair tilted forward and I fell out and landed on my face. Fortunately, nothing was broken but I had sprained ankles, knees, elbows, and shoulders.

It took me more than a week to recover. During that time I became an even bigger mama’s boy than usual and I insisted on sleeping in her bed relegating my dad to the sofa. When I finally recovered, they tried to encourage me to go back to a second session of the camp but I flatly refused.

Several of my disabled classmates attended an overnight weeklong summer camp called Camp Riley. Although they reassured me that it was staffed by experienced, knowledgeable people and was much better run than what I have experienced at Crossroads, I never had any interest in leaving the safety of my parents’ care. I never spent anywhere overnight away from my parents or grandparents until a hospital stay in my early 20s and then a vacation with my friend Barbara when I was 31. You will hear all about those situations in future episodes.

I always felt completely safe riding the school bus to Roberts and completely safe while at school. There was however a serious safety issue at the school that no one realized until one fateful day when someone dared my classmate Charles Lynn to pull the fire alarm as a prank. That stunt uncovered a serious hazard. Here is the back story.

I mentioned in the last episode that in kindergarten we spent most of the afternoon in nap time laying on cots in the classroom. I also mentioned that the entire school had one hour of post-lunch nap time. Rather than set up the cots in the classroom, the grade school kids would go to the basement for nap time. After each of the three lunch periods, we would all ride the elevator down to the basement, and travel down a very long hallway to a large room where cots and beds were set up. You could pack four wheelchairs and perhaps two or three walkers on the elevator at once. It would take several trips to get the entire contingent down to the basement.

The route from the elevator to the nap room took us past the boiler room which was where the bus drivers would hang out when they were not driving. It was the only designated smoking area in the building. When my mother or other parents were there working on volunteer activities such as the cookie sale, they would hang out with the bus drivers in that room and smoke and drink coffee.

Along that long corridor were huge 55-gallon drums of drinking water which were marked with the civil defense logo. This was the height of the Cold War and our building was a designated fallout shelter. I seriously doubt how much protection the building would have given us. The nap room had a series of short windows high up in the back wall. Then again, we weren’t exactly capable of doing the classic 50s “duck and cover” useless maneuver in the event of a nuclear attack.

In addition to fire drills, in which the entire student population would evacuate the building and lineup on the sidewalk far from the building, we also had so-called “security drills” in which we would all ride down the elevator to the basement nap room which had the beds and cots conveniently folded up and put away. I would’ve liked to have seen them frantically doing this in the event of an actual emergency.

What was supposed to be the safest room in the building was actually a death trap. This was uncovered thanks to my classmate Charles Lynn, a walker with cerebral palsy. One day as we were returning from our nap, someone noticed there was a fire alarm button next to the elevator. None of the kids in wheelchairs could reach a high enough but because Charlie could walk, he could reach it. Someone double-dog dared him to pull the fire alarm in the basement as we were waiting on the elevator.

While we knew it would create a stir, we had no idea it would create a mild panic among the teachers. Naturally, in a fire, the elevator is off-limits. No one ever asked, “How are we going to get 20-30 handicapped kids out of the basement in the event of a fire?” Furthermore, if there ever was a fire, one of the most likely places would be an explosion in the boiler room. As I mentioned, we passed that room en route from the elevator to the nap room. Even if the elevator was operational during a fire, the way would be blocked by a fire in the boiler room.

By the way, there was a long winding ramp connecting the first and second floors and there were smaller ramps connecting various levels of the first floor but there was no ramp access to the basement. You will hear more about the big ramp between floors in a future episode.

After some frantic staff meetings at the end of the day, nap time was moved to the auditorium which was on the ground floor. Although we never had a fire while I was there and I don’t think there was ever one in 50 years the building was used as a school, that stunt by Charles Lynn could have potentially saved a lot of lives by calling to attention a very dangerous situation.

By the way, if you are a race fan who visited the Indianapolis Motor Speedway, you might have seen Charles. He frequently stations himself behind the grandstands of the main stretch near the entrance to the Gasoline Alley garage area where he sells newspapers. He also sells inside Gasoline Alley and is a popular figure with the drivers and mechanics. Legendary driver A.J. Foyt nicknamed him “Wolfman” because somehow they found out he could do a really cool Wolfman howl. Of course, by now he would be in his late 60s like me and I don’t know if he is still around or not.

After the fire alarm incident, we then had our security drills the way most schools held them which was to grab our coats, go out into the hallway facing the wall, and put a coat over our head. As the Cold War began to relax, security drills were renamed tornado drills. Realistically, tornadoes were a much more probable threat, and getting into the hallway away from windows was a more practical defense against tornadoes than it would have been against a nuclear conflagration.

Sadly, these days students not only face fire drills and tornado drills, but they also have to endure active shooter drills. God only knows how Roberts School would have handled those. Probably just lock the door and pray as most kids do. Let’s face it, hiding under your desk is probably no more effective against an active shooter than it would be against a nuclear bomb.

Before disabled children were integrated into regular education settings, one of the arguments against having us in a regular school was that it presented a safety hazard. They feared it would be difficult to evacuate disabled kids and/or evacuating them would slow down the evacuation of able children.

Famed disability advocate Judy Heumann who recently passed away at age 75 was a teacher who taught from a wheelchair because she had contracted polio as a child. She was denied employment because they said she could not help evacuate children in case of an emergency and/or would hinder their evacuation. She eventually won a court case that allowed her to teach. She later worked as an advocate who was instrumental in getting the Americans with Disabilities Act passed. See the articles linked in the description for more about her.

My third grade teacher, Miss Clara Rose Holmes had no such difficulty being employed. She walked with a limp and have limited use of one arm as a result of polio. As a child, she attended Roberts School and upon graduating college, she came back to teach. She was much beloved and fondly remembered by everyone who attended the school.

I was sort of the teacher’s pet in her classroom. She noted how bright I was and was happy to accelerate me through many lessons. I was doing multiplication and division while some kids were still struggling with subtraction.

She concluded that some of the work in her classroom was somewhat “busy work”. While most kids had to go through pages and pages of math problems every day, once she realized I was gifted, she exempt me from some of those math drills. For grammar lessons, most students had to begin the day by writing out all of their spelling words before doing any of the other assignments. I was similarly exempt from these drills.

She had concluded that such grunt work would tire me out. My disability left me no more fatigued than any of the other kids in the class. But when the teacher says, “You’re so smart that I’m not going to waste your time on all these mindless drills.” I certainly wasn’t trying to dissuade her from the idea that it was too hard for me physically.

The end result is that I can solve a logic problem with no difficulty. High school algebra, geometry, trigonometry as well as calculus posed no problems for me yet simple arithmetic is a challenge. In high school, when I took bookkeeping, I could take a column of numbers and add them up three times and get three different answers.

Grammar, sentence structure, and writing all come naturally to me yet I can’t spell worth a damn. One of my junior high teachers tried to trick me into becoming a better speller because he knew I was competitive and egotistical about my intellect. He tried to persuade me to enter a spelling bee. I laughed in his face. “You really expect me who can’t spell my way out of a paper bag to go up against people who have a natural talent for such things? You’re trying to trick me by making it a competition. No way.” Fortunately, I got into computers. Spreadsheets and spellcheckers compensate for my lack of skills.

Two other memorable events occurred when I was in third grade. As part of routine screening, they discovered I couldn’t see. I had no idea I was nearsighted. I just thought that was as well as human beings could see. I was amazed by photography, especially Polaroid instant photography. I could look at a photograph up close with my nearsighted vision and see more detail than I could see of the real objects. I thought it was magical that a photograph could see in more detail than I could.

I got glasses when I was eight years old and discovered a world I didn’t know existed. I didn’t know that grass consisted of individual blades. I never got out of my wheelchair and played on the ground where I could see the grass up close. To me, it just looked like a spread of fuzzy green carpet.

The fact that I was a gifted student, learned to play chess at age 8, and wore glasses completed my image as the ultimate nerd probably before the word nerd was ever coined.

The other memorable event from my third year of school was November 22, 1963. That fateful day my mom was at school in my classroom that day hosting a party as the PTA room mother. It was a thank-you party for our successful annual cookie sale. A teacher from a different classroom ran into our room and told the adults, “Turn on the radio. There is terrible news about the president.”

They all listened intently but I couldn’t tell what was going on. My mom explained to me that President Kennedy had been shot in Dallas. I misunderstood what she meant by “shot”. I thought he had received an inoculation. I asked, “Why did he go to Dallas? Don’t they have doctors in Washington DC that could give him his shots?” She explained he was shot with a gun.

Before the afternoon was over, we learned he had died. Rather than ride the school bus home, Mom took me home herself and tried not to cry in front of me. My family was lifelong Democrats and Roman Catholics. My grandmother had a photograph of Kennedy on the fireplace mantle next to a photograph of the Pope.

My only comment on the way home was, “I guess we throw away that comedy album ‘The First Family’ when we get home. It won’t be cool anymore to make fun of a dead president.” I was referring to a comedy album we owned called “The First Family” by comedian Vaughn Meader. He did wonderful impersonations of Kennedy and the Kennedy. I don’t think we threw it away but we never listened to it again. I brought a copy on CD from Amazon decades later I listened to it one more time just for old times’ sake.

We spent the next few days after the assassination glued to the TV. The following Sunday just as we came in the door from church, I saw Jack Ruby shoot Lee Harvey Oswald live on NBC TV. I said, “Hey Mom… They just shot that guy.”

“What guy?”

“That guy that shot the president. Somebody just shot him.”

If the president of the United States and the man in police custody who had shot him were not safe, were any of us ever safe? That question persisted throughout all of my memories of the 1960s.

I remember prior to that watching the Today Show with my mom during the Cuban missile crisis and asking, “Mommy, What’s a blockade?” I didn’t know how serious the threat was.

Throughout the 60s, we had the Cold War, the Vietnam War, the assassination of the Rev. Dr. Martin Luther King Jr, and the assassination of Bobby Kennedy.

I was in Chicago two weeks before the riots at the DNC having an ordinary vacation with my parents. What if I had been there during the riots? What might I have seen at a young age?

Things haven’t changed much these days. People still live in fear. The threats are different but the fear is the same.

Even as an old white guy, the fear is still the same. Sometimes I find myself waking up in the morning thinking, “I really should turn on the news. Turn on the Today Show or MSNBC. Maybe Vladimir Putin dropped a tactical nuke on Ukraine. I wouldn’t even know about it if I didn’t turn on the TV and find out.”

Those are the things that occupy us today. Not a whole lot has changed.

In our next episode, we move on to fourth and fifth grade where I got my first motorized wheelchair, and about the diversity of the kids who attended Roberts school.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

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I will see you next week as we continue contemplating life. Until then, fly safe.

Special Episode “Assistive Technology – Gateway to Disability Rights”

For this special episode of Contemplating Life, we present a video of a live presentation I made on April 20, 2023, at the PATINS Tech Expo. There is an audio-only linked below. Eventually, I will have a transcript as well. I just wanted to get this episode up quickly.

Note: Portions of this episode deal with adult topics. Viewer discretion is advised.

Audio-Only Version

Click here for free audio version on my Patreon page

YouTube Version

Links of Interest

Contemplating Life – Episode 15 “More Normal Than They Thought”

This week we begin a multipart series recounting my school days in a special education school here in Indianapolis.

YouTube Version

Shooting Script

Hello, this is Chris Young and welcome to Episode 15 of Contemplating Life.

This week we begin a multi-part series recounting my school days in a special education school here in Indianapolis.

In the mid-1930s, Indianapolis Public Schools built James E. Roberts School #97. It was specially designed for handicapped children and was in many ways in response to the polio epidemic. It was at the corner of East 10th and Oriental Streets on the near east side near Arsenal Technical High School.

The two-story Art Deco building featured ramps, an elevator, and a physical therapy department with a small swimming pool. Students from kindergarten through high school were educated there for 50 years.

The school closed at the end of the 1985-1986 school year. It was used for a variety of purposes for a few years and was considered a candidate for demolition however given its history, there were efforts to preserve the building. It was renovated into an apartment building and is now known as the Roberts School Flats.

In episode 5, I told the story of how my mother tried to enroll me in St. Christopher Parish School. They really weren’t equipped to deal with a disabled child so I was enrolled in Roberts School in kindergarten in 1960 at the age of five.

In the summer of 1960, my parents purchased my first wheelchair. Prior to that, they would just carry me around. Most of the day I would sit in a small chair at our coffee table in the living room where I would play with toys, eat lunch, and watch TV. At dinnertime, I would sit in a high chair at the dining room table.

IPS Schools operated 10 school buses at the time and all of them were used to transport children from all over Indianapolis to Roberts School. In those days, there was no bussing of children to any other school for any reason such as to achieve racial integration. Kids walked or were transported by their parents to their neighborhood schools. There were probably seven or eight high schools and I don’t know how many junior high or middle schools. The Roberts buses were stationed at the school and were occasionally used for field trips by other schools.

The Eagledale neighborhood where I lived was in the far northwest corner of the city and initially, there was no bus route to reach me. They hired an eight-passenger taxicab to pick up several of us in my neighborhood. The cab driver, or perhaps my mother I don’t recall which, would lift me out of my wheelchair and into the taxi. When we arrived at the school, the driver would pick me up and transfer me to a wheelchair that belonged to the school.

There was a girl several years older than me named Erica who lived near here but was just outside the IPS boundaries. I believe she had cerebral palsy although she could walk with difficulty. She persuaded the school to allow her to attend but they would not cross the city limits to pick her up. A family member would drive her to my house and they would sit in the car and wait until the taxi arrived and then she would join us.

I don’t know how long I rode the taxi but it was not for the entire year of kindergarten. At some point, they got a new bus or they rerouted an existing bus to handle the west side. It was an ordinary school bus with the only accommodation being safety belts. The bus driver would lift us out of our home wheelchair and into the school wheelchair upon arrival. And reversed the process at the end of the day.

Among the people who rode that bus with me for many, many years were Chris Fryman who was my age, and Carol Brumett who was about four years older than me. Chris had osteogenesis imperfecta more commonly known as “brittle bone disease”. He used a wheelchair and he had his legs in braces mostly to protect them from breaking. Carol had contracted polio, spent some time in an iron lung, and had minimal use of her arms and legs. They both rode with me for the entire 13 years I attended. (Well Carol graduated before I did.) My good friend Mark Herron who had a form of muscular dystrophy and was a few years younger than me lived right around the corner. He also rode the bus with me for many years. I’ll talk more about him in later episodes.

One of the interesting things about the population of Roberts School was how it reflected the impact of the Salk vaccine for polio. That vaccine became available the summer I was born in 1955. If you looked at my classmates, more than half of the people older than me were there because of polio. No one my age or younger had polio. It’s like someone just flipped a switch and the disease disappeared.

Not all of the kids at Roberts School were in wheelchairs. Some, such as those with mild cerebral palsy could walk perhaps with crutches. Others had severe asthma like my friend Ted Hayes, or a heart condition such as Lily Ottinger, and a few had epilepsy. Many of them probably didn’t need to be segregated into a special education school. Any medical condition that a child had that the average school nurse didn’t want to deal with would get them sent off to our special school. Anyone not in a wheelchair was referred to as a “walker”.

I mentioned that I used a wheelchair that was provided by the school. That doesn’t mean that IPS purchased the wheelchairs. There was little or no extra funding for special education. The wheelchairs had either been donated or had been purchased by the PTA. Every year, we held a cookie sale and the proceeds went to purchase wheelchairs and other equipment. It seemed as though the attitude at IPS was, “Hey… We built you a special school. What more do you want?”

My first wheelchair at Roberts was nothing more than a child-size wooden chair nailed to a plank with four small caster wheels and a handle mounted on the back. I had to be pushed everywhere. It didn’t have large wheels that I could push with my hands. My standard child’s wheelchair that my parents had purchased did have large rear wheels and if I was on a completely smooth flat surface I could push myself a few inches with a great deal of difficulty.

The kindergarten was a large room complete with its own dedicated restroom, a piano for music class, a TV set (something none of the other classrooms in the building had), and lots of wooden blocks and other toys.

The teacher was a wonderful woman named Miss Helen Martin. I’m pretty sure she was still teaching kindergarten when I graduated.

After lunch, she and one of the custodians would set up a bunch of cots and we would spend most of the afternoon in “naptime”. Considering that many kindergarten classes are only half a day, spending the other half of the day trying to nap was not unreasonable. The problem was, everyone in the school had at least one hour of naptime after lunch. I don’t think it went all the way up to the high school level but it did go through junior high which meant 6th, 7th, and 8th grade. We will talk more about nap time in a later episode.

When you get to school, it’s typical for your family, especially grandmas, aunts, and great-aunts to ask, “Have you got a girlfriend yet.” Apparently, they’ve never heard of puberty and don’t realize that those kinds of concerns are not a priority for several years. Yet I still received frequent pressure to answer the question. It seems that my classmate Cheryl was receiving similar pressure from her family to find a boyfriend so, although we were both clueless as to what that kind of relationship involved, we agreed to be boyfriend and girlfriend.

Cheryl was born with no arms. She had tiny appendages perhaps 3 inches long each of which had two tiny fingers. Throughout our grade school years, we would frequently get visitors in the building. They were typically nursing students or special education teaching students. Upon seeing Cheryl, you would hear the word “thalidomide” whispered. The infamous drug thalidomide was prescribed to women in the early and mid-1950s as a very effective method of combating morning sickness during pregnancy. The problem was, it caused severe birth defects in many cases–most often missing limbs. They naturally assumed that was the cause of her condition.

Decades later, I saw a documentary about the drug and did some research of my own. As best I can tell, it was never used in the United States and it was completely discontinued in 1954. I was born in 1955 as was presumably Cheryl. Unless her mother was Canadian or European and was unfortunate enough to have taken the drug shortly before it was pulled from the market, her condition was NOT caused by thalidomide.

Anyway, one day we were sitting at a table coloring. I was about to complete my masterpiece of an airplane flying over houses complete with fluffy clouds and a smiling sun in the sky. Cheryl was sitting on top of the same table that I was using drawing with a crayon between her toes. For reasons I never understood, probably my fault somehow, she reached over and scribbled all over my drawing. I was furious. When I tried to retaliate, she pulled her paper away from me to where I couldn’t reach it. Now I was even more furious because she was exploiting my disability (or rather my inability) to climb up on the table and scribble on her paper. I took that extremely personally. A nasty argument ensued. I don’t know for certain who “went there” first but I will give her the benefit of the doubt and say that I took the argument to the extreme that I’m about to describe.

“I don’t want to be your boyfriend anymore!”

“Good! I don’t want to be your girlfriend anymore!”

“I don’t think anybody will ever want to be your boyfriend because you can’t hug them or hold hands with them because you got no arms.”

“So… you’re never going to get married because you’re in a wheelchair and you can’t walk down the aisle!”

At that point, Miss Martin rushed over to intervene and broke up the fight.

Looking back at the incident, I find it fascinating that it illustrated a five-year-old’s concept of a boyfriend/girlfriend relationship. For the boy, it consisted of hugging and holding hands, and the girl was already anticipating marriage.

Although James E. Roberts School was built with a physical therapy department, ramps, and elevators to accommodate our special needs, the reason that most of us were there was to protect us from the cruelty we would encounter from other students because of our disabilities. This incident, and many others I could recount, illustrates that we were more normal than they thought. We could be just as cruel to one another regarding our disabilities as if we were integrated into a regular education setting with able children.

Cheryl left Roberts School for a couple of years but I never knew why. When she returned, she was a year behind me. She attempted to use artificial arms but they never were worth the effort for her. By the time she reached junior high, like most walkers, she moved on to a regular school.

When I was in my early 20s, I saw a newspaper feature article about her. The accompanying photo showed her sitting at a desk at her office job typing on a typewriter with her feet. It was your typical feel-good piece about a disabled person making it in the world. She was well-employed and engaged to be married. Some 62 years after our argument, she was right and I wasn’t. She got married and I didn’t.

I’ve got one more story about Cheryl that reflects almost as poorly on me as the one I just told but it’s too funny not to tell.

Fast-forward about 14 years and I’m in my first-semester college physics class at IUPUI. My instructor is a wonderful educator Professor Emeritus Golden Flake. Yes, somewhere along the way Mr. and Mrs. Flake actually decided to name their little boy “Golden”. His motto was, “Physics is Fun” with “fun” spelled PHUN.

One day he was lecturing about the conservation of rotational momentum. He explained, “Did you ever wonder why you swing your arms when you walk or run?” Having done neither yet observed the same I was still curious. He continued, “It’s because when you put one foot in front of the other, and your other foot goes backward, your hips and entire lower body twist. In order to keep from waddling, you have to swing your arms in the opposite direction to absorb that rotational energy.”

I turned to my friend Mike Gregory and said, “Eureka! That explains Cheryl.“ To which he replied, “What? Who?” Later when I had time, I told him about Cheryl and her disability. I explained that when she became a teenager, what God had denied her in the way of limbs, he more than extra made up for in her ample bosom. The poor girl – although she kept her bra straps extremely tight, when she walked her boobs bounced all over the place.

I told Mike, “Now I understand why. All of that rotational momentum had to go somewhere and she couldn’t swing her arms so it went into her…” Mike interrupted to finish my sentence, “coupled harmonic oscillators.”

Mike went on to tell me about a book of humorous essays he found in the library titled, “Stress Analysis of a Strapless Evening Gown”. It was a spoof of scientific journal papers in which they applied rigorous engineering and scientific disciplines to ordinary events. The title of the book was the same as the lead essay. It explained in extreme engineering detail complete with force vector diagrams of what it takes to avoid a wardrobe malfunction in a strapless evening gown. Mike suggested if they ever did a volume 2 that I should submit a paper about my kindergarten girlfriend.

Admittedly the whole story is very misogynistic but hey… We were 19-year-old college students. What do you expect?

I found the book on Amazon while preparing this podcast. I couldn’t resist the nostalgia and I ordered a used paperback copy for $10.

In our next episode, we will continue the saga of my school days at Roberts School. Somewhere along the way, we will have my reading of an award-winning article I wrote about my experiences there.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

Many thanks to my Patreon supporters. Your support means more to me than words can express

Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life – Episode 14 “Faith and Reason” (last in the faith series)

This week we conclude the story of my journey back to the Catholic Church. I struggle with the question “Does God exist?” Next week, we begin a multi-part series on my travels through the special education system from kindergarten through high school.

Links related to this episode:

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube version

Shooting Script

Hello, this is Chris Young. Welcome to episode 14 of Contemplating Life.

This week we will wrap up the story of my journey back to the Catholic Church after a nine-year absence.

Last week I described what I did after the moving experience of attending the Easter Vigil service that had prompted me to re-examine whether or not the Catholic Church had any meaning for me. I began attending adult religious education programs and studying Scripture. I discovered that the Catholic approach to Scripture scholarship is much more logical and common sense than the evangelical or fundamentalist Protestant literalist approach.

The remaining issue was, is there really a God?

The cassette tape of a lecture given to me by Father Paul helped me understand my role in the Church using the analogy of a body that is handicapped. It was another tape he loaned me that gave me a strategy for wrestling with the existence of God.

The lecturer tried to tackle the question of proving that God exists. His conclusion was… don’t bother. It can’t be done. It wasn’t just that old adage: “For those without faith no proof is possible and for those with faith no proof is necessary.” His thesis was, proving God is a bad idea altogether. To deal with issues of faith, you have to assume there is a God and then see where that takes you.

Oh no… They got me again. They made the connection to something I already believed.

I believe in math. I believe in logical proof that comes from math. But even in the most strict Euclidean mathematical proofs you have to start somewhere. You have to start with certain things that are given. We call these axioms and postulates. Without getting into the technical differences between the two we can simply say that they are things that are so self-evident that they are assumed to be true without the need for proof. You have to start somewhere with a logical argument and then piece things together in a logical manner to develop new ideas.

Consider mathematics. We don’t ask “what is zero” or “what is one?” We assume a mathematical concept called a unit one. We can then describe zero as the absence of one. We can invent an operation we call addition in which one added to one creates something new we call two and from there, three and four and five and so on literally ad infinitum. Reverse the process of addition and label that subtraction. Do addition and subtraction repeatedly and we get multiplication and division.

In geometry, we start out with points. We connect them with things called lines and we assume axiomatic the idea that you can connect any two points with a straight line and that line can be extended indefinitely.

Logic, science, and mathematics all depend on certain fundamental axioms that we assume but cannot prove are true.

There is even a form of proof where you assume something is false and then see if that leads to a contradiction. If that contradiction exists, then your hypothesis is true.

Let’s make God an axiom. Start with it as an assumption and see where it leads us. If it leads us to an inescapable contradiction then we have to reassess those axioms.

Okay, so we got God. We got humans. Natural to assume that God being a God that he made humans. Why? Maybe he was bored. He wanted people around. He must’ve been lonely.

John the Evangelist tells us “God is love.” John the Beatle tells us, “All you need is love.” Ringo the Beatle tells us “you need somebody to love” even if you’re like me and you sing out of tune. It’s reasonable to assume God created us out of love.

Why does evil exist? Because we have free will. We have the power to choose evil over good. Why did he give us free will? The classic story of Svengali taught us that there is no love without free will. A maestro hypnotized his protégé to fall in love with him but realized it wasn’t real love and released her from his spell. We have to be able to choose against love otherwise love has no meaning.

What do you do to show someone your love? You do things to please them. You share in their goals and their ideals. You make their work your work. You derive mutual happiness from these common activities. Because, by definition, God is eternal, that happiness can be eternal as well.

Wait a minute, wait a minute, wait a minute.

We just assumed for the sake of argument that God exists and we ended up deriving the first four questions of the Baltimore Catechism! Who made you? God made me. Who is God? God is the supreme being who made all things. Why did God make me? God made me to show forth his goodness and to share with us his eternal life. What must we do to share in God’s eternal life? We must know him, love him, and serve him.

Holy shit. There is a bizarre kind of logic to Catholic Christian theology.

Okay, if you want to get really rigorous. I haven’t proven anything. But there’s enough logic and it makes enough sense that I don’t feel like a total hypocrite to say that I want to express the values and beliefs that I share with the Catholic Church in the context of that Church. And I don’t have to check my brain with the brain check girl before they let me in the door. You can be a logical, thinking, not hypocritical person and still be a person of faith.

At least I can. Your mileage may vary.

So, maybe I can exist in this Church and not give up my logical thinking nature. Faith and reason are not mutually exclusive.

But just what the fuck do I believe? If I’m going to concentrate on the things I do believe in and not get bogged down in the things I don’t believe in, it couldn’t hurt to take a survey of where I am on that scale for each bit of theology.

I made a mental list sorted by level of belief. At the top, I put things like dedication to social justice, respect for life, opposition to war especially nuclear war, and the need to serve my fellow human beings. Somewhere in the middle, there was a belief in Scripture and respect for the authority of the church to offer moral guidance. Not really solid but not out of the question now that I had a deeper understanding of where Scripture and tradition came from. Near the bottom was a solid belief in eternal life and way low were ridiculous things like the Real Presence of the Body and Blood of Christ in the Eucharist. Some of those things I labeled, “No way José.”

I never really wrote down the list or formerly labeled each item but I had a rough idea of where things were. Occasionally, I would take something on the “I’m not so sure but I’m not totally opposed to the idea” category and ask myself, “What would it hurt if I gave them that one? Take a leap of faith and say until contrary evidence comes along I’ll give them this one.”

The result of these little moves was that something else would fall into place. Something else that had been troubling me or that I didn’t understand gradually started to make more sense. The result was that everything on the list slowly bubbled its way higher. After a year or so, I found myself such that even if I wasn’t sure or even if I had extreme doubts about certain parts of theology. There were no more items on the, “No way José” list.

Nearly 40 years later do I believe in Real Presence in the Eucharist? Who am I to say? At what point does a symbol become so powerful that it becomes the thing it symbolizes? Can a symbolic thing pass the Turing test? If so, then the symbolism of the Eucharist is so powerful that there is Real Presence. Jesus says, “If you’ve seen me, you’ve seen the Father.” If Jesus and the Father are indistinguishable from one another then they pass the Turing test and they are equivalent. Jesus is fully human and fully divine.

What about eternal life? Am I certain I’m going to heaven? Not really. But in the end, does that even matter? Oh sure, it means I was wrong about all of Christianity. But does it change how I live my life? Do not Christian values still have meaning to me? I can hope for eternal life. If I die and I’m dead, my life wasn’t wasted by following Christian teaching. Who am I to say?
That’s just their opinion. They could be wrong. But they could be right.

Does that mean everything the Catholic Church has ever done is 100% right? Oh God no. The Church has done and continues to do terrible things. It’s far from perfect. And so am I and you and everyone else.

That’s just the beginning of my story of nearly 40 years of strongly dedicated service to my parish and my Church. I don’t have all the answers. Neither does the Church. Neither do scientists. We are all seekers.

I may go back and fill in more details of this early part of my journey and I’ve got decades of other stories to tell. Maybe these stories are my gospel. Maybe this is my version of the ascending view. I write down what God revealed to me through His presence in my life. I offer it up as my ascending view saying this is what you revealed to me. Did I get it right? I hope so. It’s the best I can do.

But for now, let me jump to the end a bit. In the next year, I agreed to be Godfather to my sister Carol’s first child Brittany. And when they asked all those questions about what I believe (reference the baptism scene from the movie the Godfather) I could say yes with a straight face.

As I mentioned, I attended RCIA and other adult education programs at my parish.

I also attended a Christ Renews His Parish weekend retreat and became part of the team that presented the program to the next group of parishioners. My Christian witness speech included some of the things in the past couple of episodes of this podcast, especially the story about the paralyzed woman and the analogy of the body.

Eventually, I began teaching RCIA classes and taught them for over 30 years. For a few years, I also presented a program called “Catholics Returning Home” in which we helped inactive Catholics who had left the church for whatever reason tried to find their way back. It was sort of a quickie six-week version of RCIA.

At the following Easter vigil, they need a volunteer to do the Scripture readings. I volunteered to read Romans 6. “Are you unaware that we who were baptized into Christ Jesus were baptized into his death?“

The panic attacks over my mortality gradually drifted away. Does that mean I suddenly believed in a certain afterlife and was no longer scared of death? No. Nobody really knows what happens when you die… well… except that you crap your pants. But nobody knows what happens after that. I think that the peace of mind came from being occupied with living rather than preoccupied with death. I had important work to do. And I was going to do it as long and as hard as I could.

Maybe that’s why I started this podcast. I need to spend my time contemplating life.

That’s enough religion for now. I’ll return to the topic in some future episodes. Next week, we began a multipart series recounting my school days and making my way through the special education system.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

Many thanks to my Patreon supporters. Your support means more to me than words can express.

Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life. – Episode 13 “The Ascending View” (5th in the faith series)

This week we continue my journey back to the Catholic Church. I begin studying Scripture and learn how the Catholic approach seems much more common sense to me than the fundamentalist literalist approach we hear about so much. Next week, the last of our series on faith and then we returned to disability topics.

Links related to this episode:

YouTube Version

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

Shooting Script

Hello, this is Chris Young. Welcome to episode 13 of Contemplating Life.

Last week, I promised that we would be wrapping up this series on faith but the script came out too long (as it often does) so I decided to split it into two episodes.

As always, I offer my standard disclaimer when talking about religion. I’m not trying to evangelize anyone. I just want to tell my story. If it happens to mean something significant to your own faith journey then that’s great. But if not, I hope you find it entertaining and informative.

In the last episode, I had just attended an Easter vigil ceremony where a group of adults was choosing to join the Catholic Church. Seeing these reasonable people choose to join the church, the warm welcoming atmosphere I felt that had been missing previously, and the acceptance of my doubts by my mom’s Bible study group started me on a journey back to the church.

That was in the spring of 1984. For my birthday in July, I asked for a Bible. I wanted the New American Standard edition which had the official Catholic-approved translation and footnotes. It’s the translation used in all Catholic liturgy. Mom got me a really nice one with a brown leather cover. Somewhere along the way I also got a Bible concordance. That’s a complete cross reference for Scripture. You can look up any word and it will tell you every chapter and verse where that word appears. Of course these days there are websites where you can search for any passage from a variety of translations. But in 1984 with no Internet, such a large reference book was valuable.

I figured I would start at the beginning. I only got as far as Genesis 2 before I started seeing contradictions. That wasn’t very encouraging. There are two different creation stories in Scripture. One of them is the traditional seven days of creation where God says let there be… whatever and it came into being. The other one in Genesis 2 talks about the garden where he created Adam. Then he creates all of the animals and brings them to Adam to see what he calls them. The order in which things are created is completely different between these two stories.

The footnotes say that these different creation stories came from different sources. Wait a minute… I thought Moses wrote the first five books of the Bible known as the Pentateuch. Of course, Moses dies part way through the fourth book but my understanding was that one of his followers finished it up for him.

I decided to bypass the Old Testament and spent some time with the New Testament but I still wasn’t getting much out of it. I could see that reading the Bible was going to cause me more problems than it solved.

By now, lots of parishioners had been through the CRHP renewal program and were hungry for more adult religious education. Lifelong Catholics began attending the RCIA classes to update their understanding of the faith. I started attending the classes in September along with Judy, and her husband Paul. They had enjoyed the experience so much that they wanted to go through it again and pick up some things they might not have appreciated the first time through. It also gave them the opportunity to become sponsors for non-Catholics who were going through the program. The classes were held every Thursday night from 7-9 p.m. with a break in the middle for refreshments. They were presented by our two priests. Our pastor, Father Paul, and our associate pastor Father Conrad.

Among the programs I attended was a series of lectures by a man named Jim Welter from Saint Monica Parrish. He called his lectures “The Ascending View”.

Jim explained how the Catholic approach to Scripture was much different than the literal “it means exactly what it says” approach of the fundamentalist Protestant. The Catholic Church, along with other mainstream Catholic-like Protestant denominations such as Lutheran, Methodist, and Episcopal use what is called the historical-critical method of Scripture analysis.

While we believe in the inspiration behind Scripture, we understand that it was written by human beings who are the product of their culture and times. The Bible is theology. It is not history or science. When we say that the Bible is inerrant and true, we don’t mean the details of exactly how many days it took exactly 6 days to create the entire universe and that the universe is only 6000 years old. It is the meaning behind the mythology that is true. What it says about us, God, our relationship with Him, and His plan for us is true.

Jim explained there are two ways to look at Scripture. The “descending view” is that Scripture is the result of divine dictation. The Word of God was handed down to the authors pretty much verbatim and they simply wrote down “what God intended.” This was that Book of Mormon model that we talked about a few episodes ago that seemed so ridiculous to me that it contributed to my leaving the Church. It is the same view that most fundamentalist or evangelical Christians believe even if it wasn’t found on some hidden metal plates dug up by some church leader.

In contrast, Jim describes the “ascending view”. People of faith experienced God in their lives. Some would see God in nature. Some had spiritual experiences that they could not explain otherwise. They saw events in history through a theological context.

Nearly all of Scripture began as oral traditions handed down by word-of-mouth for generations before anyone ever put quill to parchment. Realizing the importance of these stories, they were eventually collected and written to be handled on faithfully to future generations.

These writings were in effect a letter to God saying, “This is what you revealed to me and I offer it up to you in recognition of its importance. We are handing them down to future generations to preserve your Word that you have revealed to us.”

When we say that a particular person was the author of a book of the Bible, it means that they compiled the oral traditions that had been handed down for generations. The community is the actual author and the person that we call the author is simply the one who put it in writing. In modern terms, we would call them the editor or anthologist rather than the author.

In some cases, like Moses dying before the work was complete, one individual may not have been the actual author. For example, there appear to be at least two different authors of the Gospel of John. That can be seen most easily in that there are two different endings. One was probably written by John the Evangelist himself and another ending was written by one of his disciples. In ancient times, to say that a particular person was the “author” of a work meant it was written under their authority. It represented their teachings. And those teachings were a compilation of oral traditions.

By the way, there are several people named John in the New Testament that you need to distinguish between. John the Baptist was a preacher who sort of paved the way for Jesus’ public ministry and was beheaded by King Herod. John the Apostle was one of the 12 chosen apostles. He probably was not the author of the Gospel of John. That person is generally called John the Evangelist. He not only wrote the gospel but also wrote three New Testament letters and the Book of Revelation. The Gospel of John was probably written somewhere around the year 100 so it’s unlikely it was written by John the Apostle.

Jim told a joke about a minister who had decided he would start using a more modern translation of the Bible rather than the traditional King James version. That version was written by a committee who were more interested in flowery language and pretty prose than creating an accurate translation. A little old lady went up to him after services when he announced the change and said, “If the King James version was good enough for Peter and Paul, it’s good enough for me.” Naturally, we know it wasn’t published until the early 1600s. But what you might not realize is that they didn’t walk around with the four Gospels tucked under their arm either.

The official Canon that decided what holy writings should or should not be in the New Testament was not made until the year 400. And as we previously explained, John’s Gospel wasn’t written until about 100.

Let’s re-examine those contradictory versions of the creation myth in Genesis 1 and 2.

The reason for the differences between the two creation stories is they were originally oral traditions by two different communities. We can learn a lot about those communities by looking at what they wrote.

In Genesis 1, what do we have? Light and dark, stars, the sun and moon, water water everywhere. The water is collected so that dry land can appear and only then do we have the creatures of the land and the sea and plants to feed them. These people were obviously sailors. They lived by the sea. Their life was connected to the sea. They saw God in the sea and the land and the sun and the moon and the stars.

Genesis 2 is the story of a garden. Man was created from clay. The animals were brought to him and none were suitable companions so God created woman out of man. The land came first. The water came up out of the land in the form of a spring to irrigate everything. Obviously, these people were farmers. It’s all about the land. Plants. Animals. And human beings’ relationship to all of that.

It was Moses, allegedly, who wove these two different oral traditions into the marginally continuous almost self-consistent narratives of the book of Genesis. In order to really understand Scripture, you have to understand the communities that created the oral traditions that were eventually be written down.

Let’s take one more brief example of how understanding the culture and times in which scripture was written helps us to understand it properly.

A rather controversial passage is from Paul’s letter to Ephesians 5:22-33. Depending on the translation, it says either, “Wives be subject to your husbands…” or “Wives submit to your husbands…” This passage has been used to justify the dominance of men over women. It does go on to say, “Husbands, love your wives as Christ loved the Church.” On the surface, it hardly seems a fair trade.

Today, we understand it to be a partnership between equals. Marriage is not a 50-50 proposition. It is a 100-100 proposition in which both partners are totally committed to one another in the relationship. But consider the times in which Paul wrote. He was saying the same thing. He was talking about total commitment. But the culture expressed total commitment differently than we do today. In Paul’s era, wives showed their commitment by submitting to their husbands. And to say that husbands should love their wives as Christ loved the Church, how did Christ show his commitment to the Church? He died for it. Men committed to their wives and children by working themselves to death and an early grave. The details of what Paul wrote are not pertinent to the world today. The message behind what he wrote is still true. It’s about total commitment. We simply express it differently in modern times.

Jim went on to explain various techniques that modern historical-critical scripture scholars use to get to the heart of the meaning behind the words. He also discussed ways that they try to reconcile various versions of the manuscripts that have been discovered. I won’t go into all of the details but it is a very common-sense approach.

In my studies, I also learned about another major difference between the Catholic and Protestant approaches to Scripture. Nearly all Protestant denominations, not just the fundamentalists, believe in a doctrine known as sola scriptura which means, “Scripture alone.” In a nutshell, if it’s not in the Bible, you don’t have to believe it. There are historical reasons why the Protestant Reformation adopted this stance that I won’t go into right now.

I heard the story of Presbyterian theologian Scott Hahn who was asked by one of his theology students, “Where in Scripture does it say that Scripture is the sole authority?” The professor cited various passages that talk about how Scripture is inspired by God and how important it is. But nowhere in Scripture does it actually say that Scripture is the sole authority. So if sola scriptura isn’t in the Bible… Then we don’t have to believe it!

I won’t go into all of the other logical inconsistencies of the doctrine but there are several. Long story short… Professor Hahn converted to Catholicism and has made it his life work to explain why sola scriptura doesn’t hold water.

The Catholic approach is that divine revelation is handed on in two forms. Sacred Scripture and sacred tradition. The explanation of this is in a Vatican II document called the “Dogmatic Constitution on Divine Revelation.” While Catholics have often over-emphasized tradition and underemphasized Scripture, Vatican II calls for a balance. I linked the document in the description.

The Church also has published a monitoring document called the “Catechism of the Catholic Church” which is not a bunch of memorized questions for first-graders but rather a detailed explanation of the church’s teachings on a variety of topics. I’ve also linked to an online version of that book. It too is much more common sense even though I can’t say I agree 100% with everything in there.

All of this commonsense approach to Scripture and a precise explanation of church doctrine in the modern Catechism solved the major stumbling blocks for me. I could now contemplate Catholic theology from the point of view of an adult and begin to see some of the logic behind it.

There was just one more problem… Is there a God?

That is the topic we will tackle next week and then I promise we will go back to disability issues the following week. No more stretching it out.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

Many thanks to my Patreon supporters. Your support means more to me than words can express.

Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

I will see you next week as we continue contemplating life. Until then, fly safe.

Episode 12 “Deconstructing Thomas the Apostle” (4th in the faith series)

In this episode, we continue the story of my faith journey. I attended the Easter Vigil in 1984 which had a profound effect on me. It was the start of my journey back to the Catholic Church. We will wrap up this section of my faith journey next week and the following week will return to disability topics.

Links related to this episode:

YouTube version


Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

Shooting Script

Hello, this is Chris Young. Welcome to episode 12 of Contemplating Life.

This week we are going to continue the story of my faith journey. Usual disclaimer, I’m not trying to evangelize anyone. I’m just telling my story. I hope you find it interesting and if it does anything for your own faith journey then that’s okay too.

When we last left off, I had been away from the Catholic Church for about nine years. I had immersed myself in secular volunteer activities but occasionally would help out by using my computer skills to help out Saint Gabriel Church because my mother was still very active there. In recent months, she had been even more active than usual because of a new program called Christ Renews His Parish abbreviated as CRHP pronounced “chirp”.

It’s the night before Easter 1984 and our friend Judy Chapman has invited us to the Easter Vigil service where her husband Paul would be initiated into the Catholic Church. It was the final step in the Rite of Christian Initiation for Adults or RCIA. Paul and a half-dozen others had been attending weekly classes in the Catholic faith since September and were now ready for the sacraments of initiation: Baptism, First Communion, and Confirmation.

The ceremony begins outdoors around a fire known as “the new fire”. In our case, it’s an ordinary charcoal grill. Instead of charcoal, it is piled about a foot high with sticks and small branches. A parishioner who is an Eagle Scout leader prepares this mini campfire each year for the ceremony.

The priest has a large candle about 3 feet tall and perhaps 4 inches in diameter decorated with various religious symbols. This Easter candle, also known as the Paschal candle, is described in the prayers as representing the light of Christ. The congregation gathers around the fire and the ceremony begins. He offers prayers and places four wax nails into holes on a cross on the candle. Each parishioner carries a small candle that they light from the Easter candle.

Usually, the entire congregation gathers around this fire and enters the church in a procession. But I believe on this particular occasion it was raining. Most of the congregation, myself included, sat in the church which was totally dark. I was sitting in the aisle about the second row back from the front. The priest carried the candle in the door at the back of the church and as he slowly processed up the center aisle, he would repeatedly chant, “Light of Christ” to which the people would respond, “Thanks be to God”. As he entered, everyone would light their small candle off of the Easter candle. The person on the end of the row would pass the light down the pew.

I had my back to all of this as I was sitting in the front. All that I could see was that the church was gradually being illuminated brighter and brighter by these candles. It was a very effective symbol that the darkness was being swallowed by the light of God.

Then by candlelight, the priest, in this case, the associate pastor Father Conrad, chants a long prayer called the “Exsultet”. It recounts some of salvation history including how God saved the Chosen People from slavery in Egypt. How He led them by a pillar of fire to escape through the Red Sea. It talks about how Christ conquered death. Naturally, this being a celebration of the Resurrection, this was a major theme throughout the service.

For me, the most interesting part of the prayer was the idea that it was a good thing that Adam had sinned because if human beings had not sinned, we wouldn’t have needed redemption. It says, “O truly necessary sin of Adam, destroyed completely by the Death of Christ! O happy fault that earned so great, so glorious a Redeemer!” The phrase “happy fault” in Latin is “felix culpa” where felix could be translated not only as “happy” but as “lucky” or “blessed”. Happy fault. Lucky fault. A blessed fault that we had fallen from grace.

The idea that the human flaw of sin turned out to be a good thing because we were eventually redeemed seemed pretty bizarre to me. Then again, looking at my own life, I had discovered that there were positive things about having a lifelong disability. So maybe it isn’t that crazy after all. Perhaps my disability is a felix culpa. A happy, lucky, blessed fault.

After this lengthy prayer, we eventually turn on the lights and extinguish our candles. The ceremony then proceeds with the Liturgy of the Word. This is the first portion of the traditional rite of the Catholic mass. On a usual Sunday, it consists of an Old Testament reading (or sometimes reading from one of the New Testament letters), a psalm in which the congregation repeats the refrain, and then a gospel reading followed by the priest’s homily. A homily is a kind of sermon that is a reflection on the Scripture readings we have just heard. Because the Easter vigil is such a big deal, there can be as many as seven Old Testament readings, each followed by a responsorial Psalm. This is followed by a reading from the Letter to the Romans. Then the gospel which was followed by the homily.

Fortunately, St. Gabriel chooses to only do about five of the seven Old Testament readings. It begins with Genesis, “In the beginning…” and recounts the entire seven days of creation. It always includes the Exodus story of the parting of the Red Sea. There is a parallel to be made that in the same way that God rescued the Chosen People from the slavery of Egypt by passing through the waters of the Red Sea, we too are saved from the slavery of sin by passing through the waters of Baptism.

When it came time for the reading from Romans, a woman named Barbara Dean walked up to the pulpit. Barbara was one of the women who had attended the CRHP weekend retreat with my mother and Judy along with other women of the parish. Barbara was struggling with the effects of lupus and had spent the past few months in the hospital. Although people with lupus experience serious bouts with possibly long periods of remission in between, many people were very worried about her. She had been going through a very bad spell. She had been released so that she could attend the service. Her husband Leonard was among those to be baptized and initiated into the church. She read Romans 6:3-11 which reads in part…

Brothers and sisters:
Are you unaware that we who were baptized into Christ Jesus were baptized into his death? We were indeed buried with him through baptism into death, so that, just as Christ was raised from the dead by the glory of the Father, we too might live in newness of life. For if we have grown into union with him through a death like his, we shall also be united with him in the resurrection.

The reading goes on to talk more about death, resurrection, and new life in Christ.

I was totally weirded out by the experience. Here was this woman who had one foot in the grave and the other foot on a banana peel. Yet you would never know it by looking at her. She looked like a million bucks. She stood up there in front of everybody and talked about death as if it was no big deal.

What I haven’t told you is that during that point in my life, I was scared to death of death. I would frequently have panic attacks where I would think about nothing except my pending demise. Sometimes in the middle of the night, I would want to just scream. The only relief I could get was to keep my mind occupied with other thoughts so I wouldn’t be able to think about death. In previous episodes, I already told about losing a good friend to his disability. There are other stories about losing friends and an early age that I will tell later. I mentioned that my parents rushed me through the early sacraments of the church because they didn’t think I would live long enough to get through them. I was facing mortality at an age much younger than people typically worry about such things.

I couldn’t understand how she could stand up there and talk so calmly about something that would often freeze me in terror. The fact that she was there at all was amazing given her condition but then again, I imagine wild horses couldn’t have kept her from seeing her husband initiated into the church. But that still didn’t explain how she could read that reading without breaking down and crying.

There are other parts of the Easter vigil service that I grew to greatly enjoy in the many times I attended after that but I won’t bother to detail them here because they aren’t part of this particular story.

In addition to Paul Chapman and Leonard Dean, there were probably five other adults being initiated that night. One of them was a young man named Tom something who was about my age. While one might cynically suppose that Paul and Leonard were doing this at the encouragement or for the benefit of their wives, Tom was single. He had no excuse or reason to do this except that he wanted to. And after I got to know Paul, I was confident that he was there of his own choice, and presumably so was Leonard. But I had no way of knowing that at the time.

Here were reasonably intelligent, adult human beings, standing up in front of God and everybody saying, “I want to be part of this.” This was in contrast to my feelings that I’d been tricked into a life of faith when I was a little kid and didn’t know any better. All of this was a challenge to my assumptions that there was nothing here for me.

I’ve always enjoyed the pomp and circumstance, the smells and bells of Catholic liturgy. At the Easter vigil, they pull out all the stops. The ceremony was moving and inspiring. The example set by the catechumens and candidates joining the church challenged my beliefs. The music from the choir was awesome.

When the service was finally over, I began to realize the changes that had happened to the congregation since the introduction of the CRHP renewal program. It was a much warmer and friendlier place than it had been when I had last attended.

People hugged one another.

I’m not just talking about the people who were happy that their family members had joined the church. The whole place had changed.

Among the highlights was I also got to meet Judy’s stepdaughter Deborah who was in her early 20s and her daughter Anne about age 7-8 both of who would later become good friends to me.
This was a case where my natural curiosity actually drew me toward the church. There was a mystery to be solved. I had a lot to think about.

The next Sunday, I decided to tag along with mom not only to go to Mass but to attend her Sunday morning Bible study class. As we previously explained, Catholics are not known for their interest in or knowledge of Scripture the way the Protestants are. We were not raised memorizing Bible verses rather we were memorizing questions and answers from the Baltimore Catechism.
One of the reforms of Vatican II was a renewed emphasis on Scripture. Also, the CRHP program was designed to instill a deeper appreciation of Scripture.

There was a group of about a dozen people who would gather in the cafeteria Sunday morning before Mass to read the Scripture readings that would be used that day. They had a small booklet that would have discussion questions based on those readings. You would talk about what that particular passage meant to you or how you might apply it to your personal life.

The gospel reading on the first Sunday after Easter is always from the Gospel of John 20:19-31. It describes the post-resurrection encounter that the apostles had with Jesus when he appeared in their midst while they were locked in the upper room. Thomas was not with them at the time and when he was later told about the incident, he said that unless he saw Jesus with his own eyes and can probe the nail marks in his hands or the wound in his side he would not believe it. The next time Jesus appeared, Tom was on hand and having seen, professed his faith.

The Scripture says, “Jesus said to him, ‘Have you come to believe because you have seen me? Blessed are those who have not seen and have believed.’”

The supplemental material provided an explanation I had heard before. The name Thomas means “twin” with the implication being that we are Thomas’ twin when we doubt. This is the origin of the phrase “a doubting Thomas.”

At an appropriate point in the discussion, I spoke up and said that this was true. I strongly identified with Thomas. My curious, scientific mind often demanded proof, and just because Jesus said it’s better to believe without proof that didn’t cut it for me. I said to them, “There’s a lot about the church that I admire and respect and could say that I believe in. But I got to be honest with you people. A lot of this stuff (I resisted the urge to say crap) I just don’t believe. And I don’t know that I ever will believe it.”

I fully expected them to say something like, “Then what the hell are you doing here? Get your heathen ass out the door.” or something more polite like, “Well maybe then the church isn’t for you.”, or some sort of argument about how wrong I was to reject the gospel message.

That’s not what I got.

Instead, they said, “That’s okay. We all have our doubts at times. You just can’t let those doubts drag you down. Focus on the things you do believe and don’t get bogged down in your doubts.”

Wow. Just wow.

Without being critical of me or trying to “change my mind” they had made a perfectly reasonable suggestion of how to proceed. The most powerful part of the argument was that it was a strategy that I had been employing my entire life in regard to my disability. I had seen too many people who sat around and felt sorry for themselves and became consumed by their disabilities. By focusing on the things that they could not do, they ended up being a basket case. I believed that it had contributed to the death of my friend Terry Johnson.

The way I was able to cope with my lifelong disability was to focus on the things that I could do and not get bogged down by the things I couldn’t do. Perhaps I could find some relevance in Christianity and the Catholic Church by applying the same strategy. Don’t let your disbelief stand in the way of expressing things you do believe, among people who believe in the same things.
That wasn’t sufficient to say, “Yes I’m fully back. Count me all in on this Catholic thing.” I still had a lot of issues to deal with but it was the first step back.

While my mother was naturally pleased to see me exploring the church, she didn’t overdo it by jumping for joy at least that I could see. She had realized somewhere along the way that this was something I had to do on my own. With the exception of occasionally asking some tough questions like the things she asked me about the Archbishop last episode, I never felt at all pressured by her. Or let me say any pressure was pretty subtle.

Prior to all this, one time I was pretty sick in bed. She asked our pastor, Father Paul Landwerlen to stop by and pray for me. He visited me at my sickbed at home. He invited me to pray with him and I politely declined but said he could pray if he wanted to. I eventually recovered and he took some gentle opportunities to evangelize me.

He brought me a cassette tape of a lecture he heard one time. The speech had the clever title, “What on earth is God doing for heaven’s sake?” He had it all queued up to a part of the speech he thought would be particularly useful or inspiring or whatever. I listened to it out of curiosity. It didn’t do anything for me. I rewound it to the beginning. No. Nothing here to see. Move on.

I don’t remember the exact sequence of events but somewhere along the way, sometime after the Easter vigil, went back to the tape that Father Paul had given me. I turned the tape over and listened to the other half. It blew me away.

Let me pause a minute to give you an explanation of a bit of theology known as the “Mystical Body of Christ”. It comes from Saint Paul’s first letter to the Corinthians chapter 12. Many of Paul’s letters were written to settle some dispute or misunderstanding. Apparently, in Corinth, they had been arguing over who was a better Christian based on which spiritual gifts they expressed. He begins by describing various spiritual gifts. He explains that all of the gifts come from the same spirit even though our spirituality is manifested in different ways.

Then he talks about the analogy of the human body. About how all the parts must work together. The foot cannot say because it is not a hand it does not belong to the body. The ear belongs even though it’s not an eye. “If the whole body were an eye, where would the hearing be? If the whole body were hearing, where would the sense of smell be?” It reminded me of the old joke, “My dog has no nose.”

“Then how does it smell?”

“Terrible!”

[Sound FX: rimshot]

Anyway… all jokes aside. He concludes by saying in verse 27 “Now you are Christ’s body, and individually parts of it.” Together we make Christ present here on earth. We are his mystical body doing his work It ties into the other Scripture that says, “Whenever two or three of you are gathered in my name, I’m there in your midst.”

On the other side of the tape, the lecturer told a story which I will now paraphrase.

He had been to a conference and the speaker was a paralyzed woman. Some accident had resulted in a spinal cord injury leaving her quadriplegic. He said she was rolled on the stage lying prone on a gurney. She said, “In my mind’s eye, I can imagine my body doing all sorts of wonderful things. Playing sports, hugging my children, and loving my husband. It’s not a lack of willpower. My will is plenty strong. But there is a disconnect between my mind and my body. I’m trapped in a body that is unresponsive to my will. And so it is the same for the Body of Christ. God has imagined wonderful things for us. It is his will that we enjoy these marvelous things. Yet when we fail to communicate with him and to act according to his will, we handicap the Body of Christ.”

Holy shit.

That freaked me out.

That made the connection between volunteerism and religion. We are all part of a body. We all have a job to do. We were put on this earth for a reason. And when we fail to do our part, we handicap the body that we are part of.

I could extend the analogy further to other types of disability. Look at my friend Christopher Lee who had such severe spasms from cerebral palsy that he would keep his wrists strapped down to the armrest of his wheelchair. Unlike the paralyzed woman, his body had no lack of movement. Yet his body was unresponsive to his will. Often we are out there flailing about thinking we are doing something but we are no more effective than the spastic limbs of someone with cerebral palsy. Or look at my own body. All of my parts work. But because my muscles are weak, like a person with weak faith, my muscles do not work effectively to achieve my will. I too am trapped in a body that is unresponsive to my will.

I survive my disability reasonably well. But I wouldn’t wish it upon anyone. But when I don’t work together with the members of the Body, I handicap that body. And I can’t do that.
Whether God exists or not, the Church was a body that I could connect to. I could play my part and not handicap the body by my absence.

I still had to decide if God even existed. The journey back had a long way to go. Next week we will tackle that problem which will wrap up this series on my faith journey. We will come back to the topic in future episodes but after next week we will return to disability issues as I recount the story of my journey through the special education system.

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