Contemplating Life – Episode 25 – “Ironsides Goes to High School”

This week we are going to resume talking about my experiences growing up attending a special education school and how I transitioned to attending a regular high school part-time.

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YouTube version

Shooting Script

Hi, this is Chris Young. Welcome to episode 25 of Contemplating Life.

This week we are going to resume talking about my experiences growing up attending a special education school and how I transitioned to attending a regular high school part-time. Some of this story you’ve already heard in bits and pieces in previous episodes as well as in my reading of my award-winning magazine feature titled “The Reunion”. But we’re going to add some detail and context in this episode.

For many kids, the transition from junior high to high school is a difficult one. In eighth grade, you are the “upperclassman” of the junior high. In high school, as a freshman, you are at the bottom of the pecking order. In a very small school like James E. Roberts School for the Handicapped that’s not such a big issue. These are kids you have been going to school with for perhaps nine years. You already know the sophomores and juniors because they were in 7th and 8th when you were in 6th. It’s not like you were moving to a different building and mixing with a bunch of kids you’d never known.

There were somewhere between 25-30 kids in the entire high school program at Roberts. During my freshman year, I was assigned to Mrs. Harriet Bartlett’s homeroom. There was a row of wheelchair desks along the back wall facing the wall. I would sit at that desk whenever I wasn’t in class. There was always a class going on at the front of the room around a large table. When it was time for one of my classes, I would either go to that front table or to the other high school room with Mr. Sam Price.

Mrs. Bartlett taught math, French, and bookkeeping. Mr. Price taught English and social studies as well as sophomore biology which was the only science class available.

Freshman algebra was no challenge to me because it didn’t require any basic arithmetic. As I mentioned in earlier episodes, I can do complex mathematics but simple addition and subtraction is sometimes a challenge. I had no trouble mastering the logic of deriving algebraic equations and I enjoyed graphing functions. I also had no difficulty with English. We didn’t have spelling words anymore. Again you may recall I suck at spelling. I don’t exactly recall what classes I took. I think perhaps the school nurse taught a health class.

I took French but I was never any good at it. I got an “A” for the first six weeks, a “B” for the second six weeks, a “C” for the third six weeks, and straight “Ds” thereafter for two years.

I sang in the choir with Mrs. Atkins who we mentioned extensively in a previous episode. We also had a part-time art teacher who came into the building one or two days a week and I took an art class.

I remember one art project where we cut an abstract shape out of a piece of cardboard and then used it as a stencil and spray-painted Day-Glo colors around it. I couldn’t handle spray cans so the art teacher did it for me. She would twist and turn the shape in different orientations and spray different colors. It looked completely abstract to me. I thought the Day-Glo spray paint gave it a bit of a psychedelic look.

It turns out the teacher had something up her sleeve. She entered my creation, which was actually about 75% hers, in something called the 500 Festival Art Contest. It won a blue ribbon. We took a field trip to where all of the artwork was on display including my ribbon-winning entry. I don’t recall where it was. It might’ve been the Indianapolis Museum of Art. Anyway, my creation was expertly mounted and framed. This was the first I had seen it in such a condition. She had given it the title “Radiant Madonna”. It took me a while staring at it to get the point. When I was making it, I was holding it horizontally in landscape format. She turned it vertically in portrait format and if you looked at it weirdly, it vaguely resembled a mother holding a baby.

Let me make it plain, that was not my artistic intent. I’m not sure Picasso would have seen the outline of a Madonna it was so abstract. But the judges thought it was brilliant. I got the blue ribbon but I didn’t get to keep the artwork. They auctioned it off and the proceeds went to arts programs. I’m not sure what they got for it. All of this was without my permission.

The art room wasn’t much more than a supply closet with a table in the middle. The only other interesting thing that ever happened there was Alan Whitney made out with Cheryl Fayette one time when the art teacher accidentally left the door unlocked on a day we didn’t have class.

I mentioned previously that in order for two teachers to try to teach an entire high school curriculum from freshman through senior years, they had to divide the day into 12 periods of 30 minutes each. A typical high school class period runs 45 minutes and I think in some schools even an hour. Because class periods were just 30 minutes, if you took 5 classes plus lunch that meant you still had 6 periods with nothing to do.

To fill the time, I spent a lot of time reading sci-fi books and even attempted to write my own sci-fi story. I had no plot. No outline. No characters established. No idea where it was going. Somehow I thought you wrote books the same way that you read them. You just started out and the ideas would come to you in order. Some people might do that but it didn’t work for me. I wrote about two pages and then didn’t know what to do. I gave up quickly.

I really don’t remember much more about my freshman year.

When my sophomore schedule came out, all of my classes were before lunch. That meant I was going to spend three straight hours in the afternoon with absolutely nothing to do except try not to get in trouble and ignore the class going on at the front of the room. The biology class was going to be nothing but a textbook course with no lab equipment and no animal dissection.

My mom was furious at the substandard education I was getting and I wasn’t too happy about it either.

She arranged a meeting between her and the principal or vice principal at my neighborhood high school – Northwest High School just a few blocks from my house. The ground floor was wheelchair accessible but there was no elevator or ramp to the second floor. Certain departments were exclusively on the second floor – most notably all social studies and math. Biology and physics were split between both floors but chemistry was exclusively upstairs where they had special lab equipment. English was split between floors. Although the library was on the ground floor, there were 2 steps you had to go down to get to it. I would have liked to have been able to access that. It turned out, I could get everything I needed for term papers and other homework at the local public library.

While I could understand why it was impossible to move the chemistry classes downstairs because the room was specially fitted with chemistry equipment, it would not have caused any problem to move one math and one social studies class downstairs each semester. Mom couldn’t persuade them to do that and so I would not be able to attend Northwest full-time.

They were also concerned about what I would do in the lunchroom and how I would go to the bathroom. Bathroom issues probably deserve an entirely separate podcast episode. We probably could have worked out the bathroom issues as well as getting someone to help me with lunch. I was able to feed myself. I would have just needed someone to carry a tray for me. The school wasn’t convinced I could handle it.

The only compromise we could reach was for me to attend Roberts in the morning and take whatever courses were inaccessible at Northwest. In the afternoon at Northwest, I would take whatever was available on the ground floor. It wouldn’t require any changes at Roberts because all of my classes were already in the morning. I would just skip the ones I would be taking at Northwest.

The next issue was transportation. I could ride the bus as usual from my house to Roberts in the morning. The school district refused to transport me from Roberts to Northwest at midday. So my mom agreed to drive me every day in our van. After morning classes followed by lunch at Roberts, I would go to the bathroom there with the assistance of the janitor who normally helped me. Then mom would drive 7 miles from our house to Roberts, pick me up, and drive 7 miles back to Northwest. The school bus was coming through my neighborhood at the end of the day anyway because it had to bring home my friend Mark Herron who lived right around the corner for me.

So, approximately two weeks into the semester we implemented the plan.

There was a major misunderstanding about the afternoon bus trip at first. The first day I waited a very long time for the bus to pick me up at Northwest and bring me back home. Rather than go to Northwest in the middle of their round as they came through my neighborhood, they finished the entire round and then came back to Northwest and picked me up to bring me home.

We pointed out how ridiculous that was. We explained to them that the trip from Northwest to my house was not out of their way and they could do it in the middle of the route. After that initial hiccup, the bus transportation went okay.

Mom made that trip every day for three years with two exceptions. She had some back trouble one time and needed a few days off. She was also pregnant with my sister Karen during my junior year and needed a few days. The school district agreed that we could use the bus if we would pay the bus driver Mr. Lewis to drive it for the midday trip.

I took French, geometry, trigonometry, and choir in the morning at Roberts and then took Biology with a biology lab followed by English at Northwest.

There were some timing issues to work out. I would arrive at Northwest about halfway through the period before my first class. I had to be somewhere not just roaming the halls so they had me sit in the science department office. Biology class had what they called swing periods. There were two biology classes that occupied three periods of the schedule. One of the classes met fifth and sixth periods. The other class met sixth and seventh periods. That middle period alternated between lab and study hall. The study hall they used was upstairs so on the alternate days when my group didn’t have a lab, I would go back to the science department office.

They always had a volunteer student in the office throughout the day to answer the phone, take messages, and help out any of the science teachers who needed help setting up experiments or cleaning out the storage rooms. The first semester there was a guy named Jim something. We got to be friends but not really close. For my second semester, the other student in the science office was Dennis Adams and we became very good buddies. I will talk much more about him in later episodes.

I had no difficulty adapting to regular, non-special ed, classes. I did so well in biology the first semester that they transferred me to AP Biology for the second semester. That was a mistake on my part. I had tried so hard to impress everyone that I excelled too much. AP Biology was really hard and I was lucky to get a B for the semester. After that, I always was careful to dial it back a bit so I wouldn’t get AP placement again.

Back to the scheduling issues… Once we had the bus running a decent route, I still had about 20 minutes after the last period before the bus would arrive. Either Dennis, one of my other classmates, or a teacher would help me get my coat on. During nice weather, I would wait outside. When it was cold, I would sit just inside the door of the science wing and I could see the bus pull in the parking lot. By the time they got parked and got the wheelchair lift unfolded, I was out there waiting.

There were some afterschool activities such as chess club and AV club that met after school. I tried hanging out with them for 15 or 20 minutes while waiting on the bus and occasionally I would lose track of time and the bus would be waiting on me. There wasn’t anything I could do in AV club but I was just fascinated by the videotape machines and I had them show me how they worked. This was in the days before the VCR was invented. I think I only went there maybe twice. There really wasn’t time to play chess either.

One of the major reasons disabled kids were isolated at Roberts school was that they thought we would be safer there. As I already illustrated in one of the early episodes, disabled kids could be just as nasty to one another and tease one another about their disability as anybody else. At Northwest, I never had anybody even come close to making fun of me or saying anything cringe-worthy.

One time, I was going down the hall and overheard a couple of black guys talking and one of them said, “Get a load of Ironsides over there.” He was referring to the TV show “Ironside” which was the fictional story of Chief of Detectives Robert Ironside played by Raymond Burr. The back story was that he had been shot in the line of duty and became a paraplegic but continued to serve the police department in a wheelchair. He was assisted by a young black man who drove him around in a wheelchair van. The show ran for 195 episodes from 1967-1975 and was quite popular.

Anyway, when the guy called me Ironsides (with an “S”) I thought it was cool. Of course, the name Ironside was sort of a joke because the TV character’s wheelchair (and mine) had metal sides. Anyway, I stopped and turned to him and said, “You can call me that if you want.” He turned to his buddies laughing and sounding like Eddie Murphy when he said, “You hear what he say? He say we can call him Ironsides.” He then turned to me, “You cool man… You cool.” I don’t think anybody except that one guy ever called me that but I liked the nickname.

The only other sketchy thing that ever happened was while I was outside waiting for the bus one day. A clean-cut-looking white guy struck up a conversation with me. He opened a large textbook with pages cut out of the center. Inside this hidden compartment was a bunch of drugs. He asked me if I was interested. I told him, “My body is already messed up. I can’t afford to mess up my mind. It’s the only thing I got going for me.”

He replied, “That’s cool man. No pressure. Take care.” He walked away and I never saw him again. I never felt unsafe during that incident or any other time for the three years I attended.

While I appreciated that I was getting a good education and I enjoyed the academic challenges it afforded me, the real value was that I was living a genuine high school experience. I was making new friends on a regular basis. Keep in mind I had been going to school with the same bunch of kids for many years – some since kindergarten. I didn’t have many opportunities to make new friends. By the time I got to high school many of my Roberts friends had moved on to regular school.

The opportunities for girl-watching were phenomenal even though I never tried to date anyone. We had a bookstore where you could go by a notebook or a pad of paper as well as discount tickets to the school sporting events. We had pep rallies in the gymnasium. The halls were decorated with posters during homecoming. These were all experiences I had never had and never could’ve had at Roberts. Sure I made the move for academic reasons but the intangibles are what made the experience most enjoyable.

I tried to explain to my friends back at Roberts what they were missing but I don’t think they really understood. They knew they had it easy and they weren’t interested in giving that up even if they could. Eventually, as I kept telling stories about what was going on in the real high school, I think some of them grew to live through me vicariously. Of course, the guys were most interested in my descriptions of the girl-watching availability. They didn’t bother to ask if I had a girlfriend. It was a foregone conclusion that I probably didn’t. And they were right. That’s not to say that I wasn’t friendly with girls. I had a girl for a lab partner in biology and we got along okay. But I knew there weren’t any dating possibilities. We will talk more about that in the later episodes.

Overall, the experiment was a success. Apart from some initial minor glitches, my first year as a sophomore at Northwest was educational, enjoyable, and uneventful.

Next week we will talk about my junior year at Northwest and some unfortunate academic choices that were made for me.

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Many thanks to my Patreon supporters. Your support means more to me than words can express.

Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

Recently I was sharing the podcast with one of my home health aides. We listened to it while she was getting me dressed and into my wheelchair. I noticed that at the end of the podcast, I asked for comments or feedback. I think I put that in because I was expressing some somewhat controversial positions. Even when I’m not pontificating, I still welcome any comments, questions, or feedback you have about the podcast. Is there something you’d like to know more about? Always feel free to ask me anything.

I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life – Episode 24 “To All the Toys I Loved Before”

This week we take a nostalgic look back at the happier times of my childhood and all of the toys and hobbies that I enjoyed. I highly recommend you check out the YouTube version of this episode because it has lots of photos and video clips embedded. I was going to post photos here as well but there were just too many. See the video instead.

Links of interest

NOTE: I have linked many eBay and Amazon products here just for illustration purposes. I’m not endorsing any of them. They could be total junk and a waste of money.

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube version

Shooting Script

Contemplating Life – Episode 24 “To All the Toys I Loved Before”

Hi, this is Chris Young. Welcome to episode 24 of Contemplating Life.

Over the past several weeks we’ve covered some of the darker moments of my junior high and high school years struggling with the loss of friends and wrestling with my own mortality. This week I’d like to take a detour to a lighter topic. This episode will not be as dramatic or poignant as some have been but we need a break.

I want to talk about other childhood memories away from school. I want to talk about all the fun summer things I did and take a nostalgic look at my favorite childhood toys and my hobbies. No drama this week. Just fun. And there is a point to make at the end so stick with me and leave your handkerchief behind for a change.

When I was young, I didn’t seem to lack any friends. Lots of neighborhood kids would come to play with me because I always had a great collection of really cool toys. Until I was eight years old, I was an only child. Also given that my parents didn’t think I was going to live very long, I was quite spoiled.

My extended family is small – Dad had only one brother and Mom had only one sister. I only had 4 cousins, 2 on each side, and all of them are younger than me. That meant that my grandparents could afford to spoil us all as well.

I still had to count on friends to come visit me. I never went to their house to play except for an occasional Monopoly game with Mike Tillery next door. However, he would cheat me. I could only reach about halfway across the gameboard. Sometimes I would land on “Chance” and he would have to read the card for me. Way too often it said, “Go to boardwalk” and his cards way too often said, “Advanced to Go”. He would stuff the card back in the deck before I could read it. I finally had to insist that he show me the card. Decades later, Mike is now my dentist. I just saw him for a dental visit this week and we reminisced about those days. He conveniently forgot how he used to cheat me.

Mike played varsity basketball at Northwest High School while I was there. When we were in the state basketball tourney, I recorded the radio broadcast of the games he played in. When we won the Sectional Round and they cut down the basketball nets, he gave me a piece of the net. I still have it pressed in my high school yearbook. Unfortunately, we were defeated in the first round of the Regionals.

As I mentioned in previous episodes, my school gave me the use of a motorized wheelchair when I was 10 years old in the fifth grade. Unfortunately, for the first year or two they did not have a lift-equipped bus that would run through my neighborhood. There was a wheelchair bus at Roberts School but it only ran on the east side.

The bus driver would lift me out of my manual wheelchair at home in the morning onto the bus. Then upon arriving at school, he would lift me into the power chair and reverse the process at the end of the day. I was able to take the wheelchair home over the summer but throughout the school year, when I was home, I was stuck in a manual wheelchair that I couldn’t push.

Occasionally, mom would be at the school on a Friday afternoon doing some sort of volunteer work and I would persuade her to take me home in our van which had a ramp. She would then have to drive me to school Monday morning but it meant I got to use the chair over the weekend.

On a couple of occasions, I got sick on Friday and they had to call my mom to pick me up. They accused me of faking it when it happened the second time. I don’t really think I was consciously faking illness but I have to admit, it might’ve been my body just reacting to my desire to take the chair home. I think in a case of mind over body I really did get sick but it was just emotionally triggered.

When they finally got the wheelchair bus running sometime around seventh grade, having the power chair at home all the time gave me phenomenal freedom.

My friends would get on their bicycles and we would get in a small area like a one-car garage and play tag. They were fast but I was maneuverable in the tight confines of the garage.

Whether it was at my house playing with my toys or at other friends’ houses having a good time, I led a very enjoyable childhood.

My friends were quite accommodating to my needs. When a group of them built a nonpowered go-cart to push each other around in, they asked my mom for permission to lift me out of my wheelchair into the cart. They lined the seat with a bunch of pillows. I have a photo of me in the go-cart that you can see on the YouTube version of the podcast.

When I was a teenager, the guys built a clubhouse in Mike Goodlett’s backyard. It was about an 8 x 8 shack but they made sure that the roof was tall enough for me to get inside because I couldn’t duck. And the doorway was wide enough for my wheelchair.

In preparing for this episode, I did a lot of research on some of my favorite toys that I had while growing up. I was surprised to see that many of them were collectibles selling for high prices on eBay, Etsy, and Amazon. I usually put links in the description of this podcast to items that I mention. This time there are just too many. Instead, this time I direct you to the Contemplating Life website where I post the transcript of the podcast. It will include links and photos. You can also see photos of these toys in the YouTube version of the podcast.

Some of the toys I had, you couldn’t sell today because they would be considered too dangerous. Three of them had an electric hot plate that was very dangerous. One of them was the Mattel Vac-U-Form. You would heat up a small 3 x 3” sheet of plastic over a hot plate until it was soft. Then flop it over onto a mold and pump a pump handle to suck out all the air and shape the plastic around the mold. Today if I want to make something out of plastic I use a 3D printer. I guess this was a kind of 2D printer.

The same hotplate was incorporated into another toy called “Creepy Crawlers”. You had negative molds made from aluminum in the shape of spiders, snakes, and other creepy things. Then you would pour in some liquid plastic called Plasti-goop and the heat would harden it into a wiggly rubber worm or insect.

You were supposed to pour in the liquid while the mold was at room temperature and then put it on the hotplate. I discovered that if you heated the mold first, you could drip drops of plastic in strategic locations, let it cure, and then add different colors on top of that. Sometimes I would add a little wadded-up piece of paper to block off part of the mold so that I could fill the mold in selective sections. Then I would cut that part out and fill in the rest with different colors making striped worms or spiders with different colored legs.

They also had a different formula that was editable. They called that “Incredible Edibles” and you could eat the worms and bugs. The candy liquid used in that toy was called Gobble-degoop.

I also had a small power woodworking toy that could be converted from a table saw to a drill press to a lathe to a disk sander. I had lots of fun with it. It came with a supply of balsa wood and pine wood for making toys.

For my eighth birthday, I got a small reel-to-reel tape recorder that was a big hit. We would make pretend interviews on tape. I also used to take that tape recorder with me to the drive-in movies to bootleg music. I had recordings of all the music from Mary Poppins, and The Beatles films A Hard Days Night and Help. Of course, the little window speaker at the drive-in movie had terrible sound and my cheap tape recorder did a terrible job of recording it but it was free music. These days, people take their video cameras or phones into the theater to bootleg the movie. I was doing audio back in the early 60s. A criminal ahead of his time

I later replaced the reel-to-reel recorder with a cassette recorder that included a built-in AM/FM radio. It wasn’t yet the era of the big Boom Box. It only had about a 3-inch speaker. The quality wasn’t bad all things considered. In addition to buying pre-recorded cassettes, you could record music off of the FM radio with reasonably good quality. My dad had to attach a lever to the knob that changed functions between rewind, play, stop, and fast-forward. I had a heavy weight that I would sit on the record button because it was too hard for me to push it and turn the lever simultaneously. I would wait for my favorite song to come on the radio and hit record. Sometimes I would just sit there and hit record every time the DJ stopped talking. Then if it was a song I didn’t want or already had I would just stop, go back, and erase it. By the time I was in high school, I had a box of over a dozen mix tapes that made me very popular.

The Kinley family a few houses down the street had a basketball goal that my friends would play at. I would record myself as a radio announcer calling the game. Then we would play it back and have a good laugh.

I had a lot of the really popular toys of the day. I had the 12-inch tall poseable G.I. Joe complete was a pup tent. I collected little six-inch action figures called Astronaut Major Matt Mason. I had his space station which was basically a three-story dollhouse for action figures. I also had his battery-powered moon crawler and the moon suit accessories.

I had a remote-controlled battery-powered blimp called Helios-21 that you could fly around the house. It wasn’t radio-controlled. It was connected to your controller by a very thin wire. It came with an extra “space capsule” which was just a free-floating mylar balloon in the shape of a capsule.

Another favorite toy was Johnny Astro which was a battery-powered fan built into a gadget that looks like a radar dish. Your spaceship was an ordinary toy balloon that you would just blow up with ordinary air, not helium. The fan would blow the balloon off the ground and make it hover in midair. It had a joystick and throttle control. I would practice making precision landings on a target.

When I was about 12 or 13, we visited our family friends the Byrum family. Their son Jimmy was my age. He had a paper route and he used the money to buy a massive HO-scale slot car racetrack with four lanes. When I was about 6 or 7 I had toy trains and I had a very small two-lane oval slot car track but neither was as cool as the four-lane road course with bridges and crisscrosses that Jimmy had.

I had to have one.

I got a pretty good starter set as a birthday present and then used other allowance money and gifts from Grandma to expand it. My dad had a home-built ping-pong table in our garage and we set up a huge track on that table. Decades later when I go in the garage and smell the familiar smells of oil, grease, and paint I have flashbacks to our days of raising the slot cars.

While researching the podcast, I discovered that the brand of slot cars I was using was an Aurora Thunderjet series with pancake motors. One Camaro slot car I had is selling for $70. Other toys I researched are selling for hundreds of dollars and I threw them all away when I was a kid.

I really enjoyed building model cars and airplanes. My uncle John would frequently buy me really complicated large 1/12 scale model cars with working suspension, steering, and a small electric motor. that unfortunately was too weak to make the car roll. You had to pick the car up and just watch the rear wheels spin. During my research, I found the cars I built. They were futuristic-looking prototype sports cards called “The Lindberg Line SC-100 and SC-101“. An original SC-101 unassembled kit is selling for $299 on eBay.

I also built lots of standard 1/24 scale cars. My favorite was a 1969 Pontiac GTO “Judge” painted bright orange. I found a diecast 69 GTO with the Judge paint scheme for sale for about $40. I might have to buy it.

I remember I did some kitbashing on a Chevy or Lincoln model car and made my own Batmobile that looked amazingly like the one from the 1960s TV series. I used my Vac-U-Form to make the windshield using a model airplane cockpit as a mold. I used the cap off of a bottle of nose spray as the mold to Vac-U-Form the red light on top of the car. I painted it black and applied orange pinstripe tape. Someone later brought me an official Batmobile model and I didn’t like it nearly as well as my kitbashed version.

I built and painted transparent anatomy models of both male and female humans as well as a transparent V-8 engine. Those models made by Ravell are still available as collectibles. The Visible Woman anatomy model has a special optional feature they called “The Miracle Of Life”. It was a separate set of pieces you could install to make the woman appear about eight months pregnant. While all of the other pieces in the kit were stored in clear plastic bags ready to be assembled and painted, this optional set of parts was in a brown cardboard box. I asked my mom why the parts were in a separate somewhat secret box. She explained that some parents might want to remove those parts from the kit if they didn’t want to have to answer questions about where babies come from.

I thought that was ridiculous then and now. For the first eight years of my life, my mom was constantly pregnant. I knew an awful lot about pregnancy at a very early age. But more on that in a different episode.

I built and painted superhero models of Superman and Batman, Universal monsters such as Frankenstein, Wolfman, and the Mummy. I was surprised to see the exact models I built for sale online. An unassembled Frankenstein kit exactly like the one I had was for sale for $2000. That’s not to say they found someone to pay that much but I was amazed nevertheless.

Online I found a really cool model of a Mercury-Atlas rocket exactly like the one that I built at a very early age during the Mercury space program. It included a launchpad with a ramp leading up to it. There was a transporter/erector gantry and some tiny fuel trucks. It brought tears to my eyes when I saw it available for sale. It was the first display model rocket I ever built. I also found the exact Gemini capsule model I built.

I had a 3-foot tall 1/100 scale Saturn V display rocket. I went looking for one of those but all I found online were “50th Anniversary of the Moon Landing” models and I’m not certain this rereleased version was identical to the one I built in the late 60s. I also built a larger-scale model of the Apollo spacecraft that included the enclosure for the Lunar Module, the Lunar Module itself, as well as the Command and Service Modules.

All of the above were simply display models. I also very much enjoyed building and flying cardboard and balsa model rockets. I got a starter kit and launchpad from Estes Rockets and then used allowance money to buy more and more rockets. Estes sold a kit called “Cineroc”. It was a tiny custom-built super 8 mm film camera that would sit atop a D-engine model rocket. The custom film cartridge would shoot about 30 seconds of footage. I launched it twice. You had to send the film back to them to be processed. A friend of the family had an 8 mm movie viewer like they use to edit movies. They warned you to only shoot your film in the middle of the day in full sunlight. I didn’t pay attention to the warning and my first launch was about 4:30 in the afternoon. It looked sunny enough for me. The film came out very dark. My second attempt was much more successful.

My pride and joy flying model rocket was the Estes Saturn V. I just recently found some old photos of me and my friends flying that rocket in the big field behind the Coca-Cola plant on 30th St. just two blocks from my house.

When I was at Northwest high school, we had a bicycle race each May called the “Little 500” modeled after a famous similar race held at Indiana University in Bloomington Indiana. My science teacher, Mr. Stan Irwin was the faculty member in charge of the event. I volunteered to do a rocket launch during the opening of the race right after the national anthem. I had damaged my Saturn V on previous launches so I wrote to Estes and asked for custom replacement parts. I explained I needed to do a rebuild for a demonstration launch at my school. They didn’t normally sell these replacement parts. I included a check for what I thought was a reasonable price for the parts. They sent me the parts and a voucher for a couple of dollars refund I had overpaid.

With the help of friends, I repaired and rebuilt the model. A few days before the event, we went out to the football field and I did a demonstration launch for Mr. Irwin. He approved and I launched a huge model rocket in front of about 1000 people. I really wish we had had camcorders in those days. I don’t have any still photos from that event.

Estes had a Space Shuttle design contest a few years before the real shuttle was designed and flown. I entered it with a design I made and I helped my friend Mark Heron prepare his submission. He earned an honorable mention in the sixth grade and under category. I think I was in eighth or ninth grade at the time and I didn’t win anything. Mark had a form of muscular dystrophy. It wasn’t SMA and it wasn’t the common Duchenne MD. He had a name for it but I don’t recall what it was. He lived around the corner from me less than a block away. We rode the same bus for many years.

When I was about 12 or 13, there were older teens and young adults in my neighborhood who could afford to build and fly radio-controlled model airplanes. I really wanted to fly RC aircraft but they were just too expensive. A six-channel digital proportional transmitter and receiver with a decent airplane would run about $600 which was even more money in the early 1970s than it is today.

I did try flying a control line airplane with a small two-cycle 0.49” motor. You held a handle in your hand and it was connected to 2 pieces of nylon kite string. As you tilted the handle up and down, it would make the elevator of the airplane go up and down. You had to spin around in circles. I would drive my wheelchair with my right hand and fly the plane with my left hand. It was hard to spin around in my wheelchair fast enough. Sometimes the plane would go faster than I could turn. It would be flying around behind me. At one point when the airplane was behind me where I couldn’t see, I gave it a full up elevator hoping it wouldn’t crash. They tell me I did a loop before crashing but I didn’t see it because it was all behind my head.

Many years later when I was an adult and after my dad retired, he started flying RC aircraft. He built one for me to try to fly but we couldn’t get the joystick control adapted in such a way that I could do much with it. I can’t move my head around very well so I wouldn’t have been able to see the airplane unless I flew it way out in front of me. I think it was the only bit of assistive technology Dad and I ever failed to successfully solve. Even though I was never able to fly, I certainly enjoyed watching Dad build and fly his airplanes. Our favorite was a beautiful yellow Piper Cub to which he attached pontoons. He flew it several times over Cordry Lake where we used to have a cabin.

My dream of flying a radio-controlled aircraft had to wait until just a few years ago when my friend Bill Binko created some assistive technology that allowed me to fly a quadcopter drone using my wheelchair joystick and some VR goggles. Video link in the description.

At this point, I’ve probably lost most of my audience. Except for my dentist cheating me at Monopoly, there were no funny anecdotes. There were no poignant tear-jerky moments. No philosophical discussions about theology. It has just been a nostalgic look back at all the toys I loved before.

But that’s the point.

Even though I didn’t play ball, ride a bike, have a sleepover at a friend’s house, or have any friends sleep over here (I wore diapers at night) in most other respects I did the same kind of things other kids did. I played with the same toys. I hung out in the clubhouse in the backyard of a friend. I played games, played with action figures, and built model cars and planes, and rockets. I forgot to mention I flew lots of kites – many of which ended up in trees or on roofs.

I didn’t let my disability get in my way of having a very fun childhood.

One of my mom’s favorite sayings was, “The only difference between men and boys is the size of their toys. Little boys… little toys. Big boys… big toys.” She was very much right.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

Many thanks to my Patreon supporters. Your support means more to me than words can express

Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life – Episode 23 “My Brief Journalism Career”

In this week’s episode, I talk about the reaction to my article “The Reunion” and the awards that it won.

Links of interest

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube version

Shooting Script

Hi, this is Chris Young. Welcome to episode 23 of Contemplating Life.

Last week I read for you my award-winning article “The Reunion”. This week I’m going to talk about what happened afterward.

Somewhere along the way, I got in touch again with Rose and told her I had written a magazine article about the reunion that featured her prominently. After the magazine came out I talked to her by phone. She was extremely flattered by the things I said about her. I specifically remember she said, “Nobody ever described me that way.” That was a bit embarrassing for me to think I had perhaps been more flattering to her than her husband had ever been.

She said she wanted to keep in touch. She insisted we still could be good friends. I agreed to keep in contact but I knew that I wouldn’t. The reunion event had been very emotional for me. I wrote about it to get those emotions resolved and to put it all behind me. That was one of the reasons that I was reluctant to go to the trouble of trying to get it published. Now that it was published, again, I wanted to put everything behind me. I knew that if I stayed in contact with Rose it would just be another way to revisit things that I needed to leave behind.

That phone conversation we had after the magazine came out was the last I spoke with her. As I said two episodes ago, I later heard that she had a baby. And many years later, Google searches told me when she had died. I don’t think I left anything unsaid between us so although we didn’t exactly say goodbye forever, I’m at peace about it at least as much as possible.

Occasionally she appears in my dreams. In the dreams, I’m out somewhere shopping or something and run into her. Sometimes in the dreams, she has left her husband and I try to restart our relationship. But it never goes anywhere. Sometimes in the dreams, I see her in a crowd and try to get to talk to her but never get there. She slips away.

I got a note from the Gilson family. Their brother thanked me for remembering them so fondly. He said he didn’t recall the events described to me by my teacher Mr. Kohl about the events surrounding Leslie passing. As I said in the earlier episode, in some ways, it doesn’t matter if it was true or not. When the legend becomes fact… print the legend.

In the list of people who were not at the reunion, I mentioned the janitor John Sementa. I described him as “whereabouts unknown”. He called me to say, “I’m right here” and laughed a hearty laugh. He had been at the reunion and I didn’t see him.

Over the years I’ve tried Facebook searches and Google searches for other people from Roberts with whom I’ve lost touch. I found an obituary for my buddy Estel. Also found one for Carl Nash. He was the guy I mentioned that I had run into him several times over the years and he always asked, “Aren’t you dead yet?” That was his backhanded way of saying he was glad I was still alive and beat the odds. I think it is supremely ironic that I outlived him. He was married to a Roberts alum named Mary, I forget her main name now. They lived in the small town of Bargersville about 30 miles south of here. Rosie lived in the same duplex. Her husband was Carl’s nephew.

I mentioned a girl Cheryl Fayette whom I took to the senior prom. She will get an episode of her own soon.

Music and home economics teacher Betty Atkins wrote me to say how flattered she was by the article. She said something to the effect that she was surprised when any of her students remembered her at all. She had no idea the impact she had on me and was grateful to hear my story.

I heard from Mr. Kohl. We had a nice conversation and I mailed him the original unabridged version of the story. I think it was a bit shocking to him to see things that we discussed appear in print. Still, he was very gracious and grateful. Years later he was cleaning out some files and mailed me back that unabridged version of the story. It was a good thing he did because I’m not sure I have a copy of that version anymore. During this podcast, I went looking for it and other memorabilia such as a poem that Nancy Gilson had written. I still haven’t found either of them. If I ever do, I will post it on the website and make mention of it here.

A couple of issues after “The Reunion” appeared in Indianapolis Monthly Magazine they printed letters to the editor praising the article.

My friends and family of course were quite proud of me. I also heard from some people I hadn’t heard from in years. My former next-door neighbor Syd dropped by just to tell me how much he enjoyed the article. He said he felt privileged to know me.

A guy named Fred who was a good friend of my aunt and uncle was deeply affected by the story. Fred had suffered severe burns on the side of his face and head when he was young. You can still see scars on the side of his face and his ear. He always wore a toupee to cover the scars on his head. My aunt Jody told me after he read the article, they were on vacation together and while swimming he took off his toupee – something she had never seen him do before. She told me she thought that after reading my story he found the courage to show who he really was.

One of the reasons they were reluctant to publish my story was because they “never publish anything written in first person.” That’s not exactly true. Editor Deborah Paul wrote a first-person article about her life every month. That’s what made me think they would be open to what I wrote. She wrote over 400 such personal reflections every month until her retirement in 2017. Anyway, after my first-person article appeared, they continued to publish other first-person pieces although I suspect some of them may have been ghostwritten by staff members after interviewing the subject of the article.

A few months later I got a call from Ms. Paul telling me that we, emphasis on we, had won an award. An organization called the Community Service Council of Central Indiana annually presented its CASPER award. That is Community Appreciation in Public Enrichment and Relations. The CSC was an organization that did planning for social service activities in the city. They had a very prestigious Board of Directors consisting of politicians and business people who are the movers and shakers of the city.

I recall my mother and I attended one of their meetings as part of our disability advocacy work. I don’t think she ever served on the Council itself. My friend Muriel Lee, mother of Christopher Lee who I spoke about a few episodes ago in my Tech Expo presentation had received a CASPER award.

Anyway, the CSC found five articles in Indianapolis Monthly Magazine that they thought were worthy of their prestigious CASPER award. Although they gave out 2 or 3 such awards each year, they didn’t want to give 5 of them to one publication. They concluded that it was Ms. Paul’s leadership as Editor that produced these works so they gave her the award. In some ways, it was shared between me, another freelance writer, and a couple of staff members for recognition of our work but in the end, the single award ended up hanging in Ms. Paul’s office.

I was invited to the luncheon where the award was presented. Photos were taken. Applause given. It was a really nice affair and my mom and I really enjoyed it because we knew many of the people involved in social service activities.

A short time later, I got a call that I had won an award. Emphasis on “I”, not we.

“The Reunion” had been awarded first place as Best Magazine Feature by the Society of Professional Journalists – Sigma Delta Chi. This award was going to me for my article. Naturally, the magazine was proud but this one was mine and mine alone.

There was a fancy reception at the downtown Indianapolis Athletic Club. Cocktails were served. The room was packed full of journalists. I dressed up in my only suit and tie. Mom and Dad accompanied me dressed in their best.

Ms. Paul and other people from the Magazine were there. I asked one of them, “Are the people in this room the ones who voted for me?”

“Many of the members of the Journalist Society are here and it’s their award but technically no… They didn’t vote. So that there is no conflict of interest, we trade with other states. We send them our nominations and they pick the winners. We get their nominated stories and we vote on them. I think this year we traded with Iowa.”

The guest speaker for the evening was independent presidential candidate Lenora Fulani of the New Alliance Party. Her 1988 presidential campaign made her the first woman and first African-American woman to appear on the ballot in all 50 states. She earned approximately 0.2% of the national vote.

After her stump speech, they opened the floor to questions. After 3 or 4 questions were asked by journalists in the audience, I decided to ask her one. After all, in a few minutes, I would be an award-winning journalist. That year, Reverend Jesse Jackson was running for the Democratic Nomination and although no one thought he had much of a chance, the field was still wide open after the Gary Hart scandal. Jackson certainly had a better chance than this independent candidate that few people ever heard of. I don’t recall if I had Mom or Dad raise their hand on my behalf or had them raise my hand but at any rate, I got called on. I asked her, “If Rev. Jackson would receive the Democratic Party Nomination, would you consider accepting an invitation from him to be his vice presidential running mate.” I thought it was a brilliant question and it may have been by imagination but I thought I saw smiles from some of the journalists on the dais.

In typical political form, she sort of dodged the question saying that she was focusing on her campaign yet wished Reverend Jackson well.

In addition to magazine awards, I believe there were also newspaper and TV/radio awards given. In my category, there were first, second, and third-place awards of which I got first. I beat out a couple of pretty big stories. The presenter, I don’t recall who it was, gave a two or three-sentence description of the winning stories.

One of the stories I beat was a feature about Ryan White. He was an Indiana high school student who came to national attention in his struggle to continue to attend school after he contracted AIDS. He had hemophilia and had contracted the disease through blood transfusions. He was a real celebrity who attracted the attention of other celebrities such as Michael Jackson and Elton John. His story was one of the biggest stories in the state that year and attracted much national attention.

The other story was about a military plane that crashed into a Ramada Inn hotel near the Indianapolis airport. That was also a major national news story.

I never had the opportunity to read the other two award-winning feature stories. However, given the enormity and emotional impact those stories must’ve had, I’m amazed and flattered that my simple memoir of a class reunion came out on top.

I took home a very nice engraved brass plaque that has been on my wall for years. Well, actually I took it down the last time we painted a few years ago and I haven’t had a chance to put it back up again. But I very much treasure it. You can see a photo of the award in the YouTube version of this podcast. I took some photos the day of the award that I will also include but for some reason, they turned out very fuzzy. I think they needed flash and the exposure was too long.

The magazine published a sidebar piece about me and about Muscular Dystrophy. At the time, I had not yet been diagnosed as having SMA. The piece quotes local MD researcher Dr. Charles Bonsett but much of what he says, while accurate about Duchenne Muscular Dystrophy, doesn’t apply to me because that’s not what I have.

While “The Reunion” contains some outdated language such as using “handicap” instead of “disability”, the sidebar written by a magazine staff writer is full of language that today would be considered blatantly ablest.

The title of the piece is “Life Sentence” with the subtitle, “Muscular dystrophy’s slow, steady progression disables the body but not the mind.” The opening paragraph is…

“For lifelong neuromuscular disease sufferer Chris Young, muscular dystrophy is a silent predator. ‘Your muscles are its prey,’ he says, ‘You feel weak, but you learn to cope. Then one day something sudden happens that you can’t move anymore. MD is a terrible disease because you can’t fight it, you just have to adjust.’”

By today’s standards, that is wall-to-wall cringe-worthy. I don’t doubt that they quoted me accurately but I would not describe my condition that way today even though technically it is accurate. The piece is ripe with other terrible language such as “Young suffers from…” And “MD plagues approximately 1000 Hoosiers…”

I should note that the entire tone of my article is much more melancholy than I am today. Recall that the article started out as an extension of my personal journal. It was only reluctantly that I shared it with a few online friends in an obscure section of CompuServe and even more reluctantly that I allowed it to be published at all. Writing it was a catharsis that let me put much of that melancholy and negativity behind me.

A few years ago I posted that sidebar on my blog and I’ve included a link in the description here.

Speaking of archaic language… I described a meeting we had in Mrs. Atkins’ room as a “rap session”. That doesn’t mean we were spittin’ rhymes to a beat. In those days a rap session was just a gathering where people would sit around and talk. As I said in an early episode of this podcast, language evolves and depends on context and consensus. The phrase “rap session” has a vastly different meaning now than it did in the 1980s.

As I reread the piece for the first time in years, I realized they had cut (or I had cut) one of my favorite passages and definitely my mom’s favorite passage. The article said that some people saw my mother as the woman who thought Roberts School wasn’t good enough for her son. I believe I followed that up with the story where one of the teachers had admitted that my mom was right all along and that mainstreaming was a better way to implement special education. I concluded that story with a one-sentence paragraph that simply stated…

“Mom had a good time at the reunion too.”

Her reaction when she read that sentence was to laugh out loud and say, “Hell yes I did!”

That sort of one-sentence blunt understatement such as, “Mom had a good time at the reunion too” is a recurring feature of my writing style. I can’t believe I never noticed it was cut. I really need to find that unabridged version of the story. That sentence became a kind of Tamarian shorthand between my mom and me for any gross understatement.

I made reference in the story to various “super-cripple” people such as FDR, Stevie Wonder, and “that girl from ‘The Other Side of the Mountain’” That is a reference to the 1975 film of that name about Olympic hopeful skier Jill Kinmont who had a spinal cord injury just before the 1956 Olympics. It left her paralyzed from the shoulders down.

By the way, my favorite scene from the film was when she was visited by a former boyfriend and she was celebrating a great accomplishment in her recovery. She tries to pick up a potato chip out of a bowl of chips. She manages to get one trapped between her thumb and palm but spilled about half the bowl in the process. She was so happy she could do it. He looked at her like, “What the fuck? I thought you were getting better.” If I recall the story correctly, he dumped her after that. She goes on to find happiness with another man.

Anyway, that wraps up all of the historical references you might not have gotten.

The article concludes with the idea that I miss being a “pioneer” like Northwest High School’s mascot the Space Pioneer. I enumerated three things that I intended to do. First I was going to continue to do computer programming, especially in applications for disabled people. I didn’t do much of that for the next several decades but in the last decade or so I have heavily focused my efforts in assistive technology.

Second I said I was going to continue to keep my options open regarding relationships with women and not presume that parts of my life are closed. Although I never did find that one special someone with whom I could spend the rest of my life, I did have some very fulfilling relationships with women including finally losing my virginity at age 35 in an intense friends-with-benefits relationship. Not being a kiss-and-tell person, I can’t say for sure how much of that story you’ll get to hear in future episodes.

Third, I said that the reaction to my article made me believe I had talent as a writer. I implied that I was going to write my autobiography. I did write a book a few years later but it was a computer programming book about an open-source computer graphics rendering project I worked on. I’ve done extensive blogging over the years and have gotten very positive feedback about that.

However, the closest thing I’ve written to an autobiography is this podcast. Let’s be honest here. I call this podcast “Contemplating Life” and I try to keep it as generic as possible but in fact, it’s really “Contemplating My Life”. If I called it, “The Autobiography of Chris Young” even fewer people would listen or watch. And it’s not exclusively my biography. I wanted the freedom to go off on other tangents such as my Oscar movie reviews. At some point I will dig into politics or whatever other topics move me.

I could’ve turned these reflections into a book and even self-published if I had to. Being a writer is arrogant. You believe you have something worthwhile to say and that people will enjoy reading it. I just wasn’t convinced that as my entire life story, it was worth the pain and effort to write the whole thing. But I do believe I have some interesting stories to tell and that’s why I do the podcast. To tell these stories about my life and talk about other things besides my own life when I feel like doing so. So it isn’t exclusively contemplating my life even though that’s a big part of it as you’ve already seen.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. I don’t do the podcast for money but my finances are pretty tight. I’m not desperate but a little extra income sure could help.

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I will see you next week as we continue contemplating life. Until then, fly safe

Contemplating Life – Episode 22 “The Reunion”

In this week’s episode I will read my award-winning biographical feature “The Reunion” which appeared in the September 1987 issue of Indianapolis Monthly Magazine.

Links of interest

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube Version

Shooting Script

Hi, this is Chris Young. Welcome to episode 22 of Contemplating Life.

This episode is going to be quite a departure from our usual episode. As you know if you’ve been following along, in 1986 I wrote an article that was published in the September 1987 issue of Indianapolis Monthly Magazine. Last week I told the story of how I wrote it and how it got published. This week I’m going to read the article for you.

The article titled “The Reunion” is a memoir of my days in a special education school that was inspired by attending an all-school reunion.

The YouTube version will contain video that I shot the day as well as an occasional related photo. So for your listening pleasure… Here is…

The Reunion by Chris Young

It began just over one year ago with an invitation in a small hand-addressed envelope. The end result has been a serious re-evaluation of my life goals.

Although it can be an emotionally risky exercise, often a person needs to take a look back at his life in broad terms to remember where he has been, how he has changed or failed to change and how he can proceed with his life with some sense of purpose. I’ve just been through such an exercise.

Inside that little envelope was an embossed card which read, “You are invited to an Open House at James E. Roberts Public School #97 from 2 p.m. to 5 p.m. on May 18, 1986 commemorating 50 years of educating handicapped students in Indianapolis. And on the occasion of the closing of James E. Roberts School.”

The school where I spent 13 years of my life and where I had not visited in 13 years, was being closed. I looked forward to the opportunity to visit the school one last time. I needed to say a fond farewell to a building full of wonderful memories of the early years and to forgive and forget the memories of the later years.

I was born July 12, 1955, with a hereditary form of muscular dystrophy. [NOTE: At the time this article was written I did not know the exact name of my disease. I was later diagnosed with Spinal Muscular Atrophy Type 2] Ironically, that summer an event occurred which began to make the Roberts school obsolete. Jonas Salk began widespread use of his polio vaccine and the disease promptly disappeared. Indianapolis Public Schools built the school in 1935 to educate the large number of children who struggled with the effects of polio, rheumatic fever and other diseases. It became a showplace for special education.

I was enrolled at Roberts School’s kindergarten at age 5 and continued there through high school. The building is part of who I am and why I think, feel and act the way I do.

It was with great anticipation that I awaited the reunion with old friends and teachers. I especially looked forward to seeing my old girlfriend, Rose Ellen Shewman — the first true love of my life. From my crush on her in seventh grade, through the “puppy love” and heartbreak of eighth grade and the true friendship that developed in high school, Rosie always has been my fondest memory.

For the first few years after graduation, we kept in touch by phone, but I lost track of her from about 1975-1983. A few years ago I found out where she lived and gave her a call. At that time she was still single and lived alone in an apartment in Greenwood. It was good to hear her voice again, but our mutual promises to get together “soon” never were fulfilled.

If Rosie was as lonely as I, perhaps, as we had done in high school, we could find comfort together. The gathering at our alma mater might at least be the reopening of our old friendship if not the rekindling of our old romance. I called her a few days prior to the reunion.

Her new husband answered the phone.

When the day arrived for the open house at Roberts School, I gathered up my video camera mounted on my motorized wheelchair to record sights and faces of my past. I rolled into the school auditorium and fought through a crowd of alumni, staff, teachers and family rushing to and fro as we all spotted old friends across the room.

Some of the teachers are not as enthusiastic about the closing as I. One retired teacher voiced her concerns to me over the closing of Roberts. “I’m not so sure this ‘mainstreaming’ is such a good idea,” she said.

“As one who has seen both sides,” I replied, “I have faith it can and does work.” My last three years of high school were spent going half day to Northwest High School in my neighborhood and half day to Roberts.

She feels that I’m an exception. “You were always such a bright boy,” she would say. It’s true that the typical Roberts student of recent years probably has varying degrees of mental handicaps along with the physical problems. However, the students with mental handicaps benefit from having their special classes housed in a building with regular students. Communities that had no special education programs were forced by a 1969 law to establish them. Most of them have chosen mainstreaming and it works. With Roberts closed, mainstreaming will happen more and more in Indianapolis, too.

I have intimate connections to Roberts School, but they are pale in comparison to Clara Rose Holmes, my third grade teacher. The 60-year-old teacher has been at Roberts for nearly its entire history. She attended Roberts in grades five through eight because her left leg and right arm were weakened by polio. She then attended Shortridge High School and Butler University. She returned to student teach at Roberts and has taught there ever since. Nobody was surprised that she was taking this opportunity to retire. “It just wouldn’t be the same elsewhere,” she recently told a friend.

Miss Holmes was a great influence on me in both positive and negative ways. She recognized my potential as an academically gifted student and allowed me to progress rapidly with two other students. In third grade we were doing long division before the slower kids were finished learning multiplication. She encouraged me to work hard and to feed my curiosity. She instilled in me a love for reading. These gifts have been a source of strength for me over the years.

In recognizing that I had academic potential, she assumed that “busy-work” was a waste of my time and talents. I was exempt from the tedium of some math and spelling drills. I concentrated on more interesting concepts such as compound sentence structure, geometry, logic and science. The end result is that I can turn very clever phrases, understand mathematical abstractions and am a computer programmer of great skill. On the other hand I cannot accurately add a column of numbers or spell worth a damn.

One thing Miss Holmes and others at Roberts taught me is that having a handicap does not hinder one from doing one’s part in contributing to a group. Nor does a handicap exempt one from those responsibilities. We all shared responsibilities in her class. The more able-bodied students pushed wheelchairs. The smarter ones tutored. This emphasis on ability not disability has been an important part of my own dealing with my handicap. She fears that in a regular school such lessons will be lost.

I understand Miss Holmes’ concerns. But I’d rather see the same lessons she taught me presented in a regular school so that handicapped and non-handicapped students can experience together the sense of responsibility toward one another that was a tradition at Roberts.

There was an article about her in the newspaper soon after the reunion. The headline read “I.P.S. closing its haven for handicapped, but teacher won’t forget.” We won’t forget you either, Miss Holmes.

As I entered high school, it became apparent that the program at Roberts was substandard. Mom arranged a deal where I could attend Northwest High School for a half day and take classes on the first floor. The other half of the day I attended Roberts and took whatever classes were upstairs and inaccessible at Northwest. The school system provided transportation on a wheelchair bus in the morning and afternoon, but the midday ride between Roberts and Northwest was provided by Mom. Every day for my last three years of high school, she drove seven miles across town and seven miles back just so l could get a quality education. She did this through a problem pregnancy, a lung disorder and other hardships.

My mom is remembered by some as he lady who thought Roberts wasn’t good enough for her son. The truth was that none of us belonged there.

Beatrice Rogers remembers me well. She was my fifth grade teacher when I got my first motorized wheelchair. She remembers that I’d had it less than an hour when I ran over her foot. Mrs. Rogers was a wonderful teacher who made her classroom interesting by always having projects going on. I had a nice chat with her at the reunion and it brought back memories.

The most important event that fifth grade year was that I got my first motorized wheelchair. The PTA supplied manual wheelchairs for all the kids to use at school and I had one of own for use at home. But in January 1965, Mrs. Vern Hollingsworth donated a motorized wheelchair to the school in memory of her husband who was the chair’s previous owner. I was chosen as a student who could benefit from its use. I never met Mrs. Hollingsorth or knew anything about her except that she had donated the chair and put a small brass plaque on it advertising the fact. Having to answer a hundred times, “Who’s Vern Hollingsworth?” was a small price to pay for the fantastic freedom the chair provided.

My most memorable experience of the chair was the first day I drove up and down “The Big Ramp.” Roberts School was designed from the beginning as a school for the handicapped. Why they made it multilevel and two story is a mystery to me. There were small ramps between various ground levels and they were quite tame. My motorized wonder easily climbed them. Going down them I always made sure the way was clear and then I would let it fly downhill. But I didn’t discover that my wheelchair behaved differently on ramps until I tackled The Big Ramp.

Grades six through high school as well as the therapy departments were on the second floor and accessed by either elevator or ramp. One day soon after I got my new chair, I had to go upstairs to practice for a music program with the upper grades. Rather than wait on the elevator with the other fifth graders, I ventured up the big ramp alone.

I was a little scared on the trip up, but the trip down later that day was really terrifying. The first segment isn’t too steep but is longer than the little ramps I was used to. As I started down, everything was OK until I began drifting to the right. I tried turning left but the chair steers by speeding up one motor and slowing the other. My attempts to turn were barely successful and it caused me to go too fast. The length of the ramp let me go faster still. As I approached the level 180-degree left turn I recalled my training-“When in trouble, let go.” I let go of the joystick and kept going anyway! I crashed into the curved brick wall and slid half way around it. My right footrest was bent inward and my foot was twisted but not hurt.

With my reputation at stake, I had to go on. Carefully, I drove around the curved landing and stared down the most terrifying hall in the building. The longest, steepest section of ramp lay before me and I didn’t yet know what had gone wrong on the last section. Unlike the sturdy brick wall I’d just hit, below me was a banked curve protected by a railing that looked much weaker than when I’d seen it before.

Aiming as carefully as I could, I started down — going much too fast for safety. Again I drifted to the right. My attempts to correct the drifting were in vain, and 15 feet from the curve I glanced off the right side wall and let go of the controls again. The slide along the rail slowed me somewhat, but I still hit the balcony railing. I was thrown against my safety belt and slumped forward over it. The rail held strong and my other footrest bent to absorb the impact. I yelled for help and someone ran up the ramp to rescue me.

I later learned that you can coast down the ramp without applying any power and still go quite fast. To stop, you don’t let go. You pull back on the joystick and apply reverse power. By the time I reached sixth grade I was Hell on wheels. I’d take most sections of the ramp under full power. To turn, I’d lock one wheel in full reverse while giving full forward power to the other wheel. The narrow hard rubber tires would slide on the smooth floor and I’d whip around the turns in a four-wheel drift like a sprint car on a dirt track.

But that was years ago and I’ve just settled into my third motorized wheelchair. My last trip down the big ramp was 13 years ago on the last day of school. Part of my nostalgic return to Roberts had to include one more trip up and down The Big Ramp. My video camera recorded the trips but there was no way to recreate the speed or the sliding turns.

Thirteen more years of muscular dystrophy have taken their toll on me. I barely have the strength in my right arm to push the control joystick while riding on smooth level ground. Sharp turns even on level ground are difficult. Gone are the split second timing and delicate dexterity that are required to navigate the wheelchair equivalent of Pike’s Peak.

Of all the teachers I hoped to see that day, Ron Kohl was at the top of my list. I wasn’t disappointed. Mr. Kohl really enjoyed the challenge of an intelligent, lazy student like me. The reason I’d hoped to see him was to confess how I’d cheated on an I.Q. test. One summer, Mr. Kohl called and said that as a class assignment for a master’s degree course, he had to give a student an I.Q. test and analyze the results. I agreed to be his subject.

He came to my house for two days and gave me a battery of standard achievement tests. During the tests we sat in the same room across a desk from each other and he never left the room. Yet, by my superior intelligence and dumb luck, I discovered a flaw in the test design and cheated right before his eyes. Somehow I got the nerve to tell him after all these years.

As in most tests, you were required to fill in the multiple choice answers with a No. 2 pencil. The entire first half of the test I took legitimately. For part two you flip the page over and mark the other side. The lazy designer used the same key for the front and back. As you looked through the paper, the black marks lined up! Furthermore, you flipped the page top to bottom. The easy questions at the top of side one are opposite the difficult questions on side two. That means that the harder the question on side two is, the more reliable your information from the other side becomes.

Most multiple choice questions have five choices. Two of them are obviously wrong, one is probably wrong and the thing that separates the men from the boys is discerning between the last two. Whenever one of them matched a mark from the other side, I picked it. The test went faster, I answered more questions and was less likely to be hurt by guessing.

“I’ve rationalized it all,” I told him, “by saying that if you’re smart enough to cheat and get away with it, then you deserve the extra points.”

He laughed and agreed, adding that it was no wonder he had such a rough time analyzing it. He then said I only ended up with a 115-120 I.Q. I always figured I had 110-115 anyway.

Later that afternoon while touring the rooms upstairs, I ran into Ron Kohl in his former classroom. There was a photo album belonging to Miss Holmes on display. Together, Mr. Kohl and I looked through the old photos and exchanged stories about my former classmates.

One special memory came to mind when he stumbled across photos of Leslie and Nancy Gilson. They were the only other students with motorized wheelchairs and Nancy gave me driving tips after my bad trip down the ramp. Nancy was two years ahead of me and her sister, Leslie, was perhaps three to four years older. They both were very bright and extremely frail from the effects of neuromuscular disease. I would race down the halls clutching my joystick like a Hearst four-speed, but these innocent little girls would daintily grasp their joysticks and could outrun me any day.

Their disease was far worse than mine. Leslie died in her senior year but was awarded a diploma anyway. I asked Mr. Kohl if Nancy was gone yet. “Yes,” he answered, “she died several years ago.”

“I doubted she was around,” I said, knowing that virtually all my friends with MD are dead by now.

He then related the story of the day Leslie died. Nancy was in school and knew her sister was in poor shape. Word spread among the staff that Leslie had died and the family asked that Nancy not be told until she arrived home that afternoon. When they told her that Leslie had died, she very calmly began giving orders, “She wants to be buried in her blue dress, the bearers should be these people, the eulogy should be by … etc.” The sisters had prepared for this day for a long time. Late at night in bed they would talk and make plans for the day when there would be only one Gilson sister.

I miss Nancy. She was a dedicated student and I looked up to her. I’m sorry she’s gone. But I’m happy she is reunited with Leslie in a place where all curbs have ramps, all ramps are shallow and motorized wheelchairs all run the same speed.

When Rose’s husband answered the phone, I suppressed my disappointment and asked to talk to her. She told me she met her husband two years ago, which was about the last I’d talked to her. They were married the following November.

She said they were planning to attend the reunion and I’d see her then. Although we had talked several times over the years, I’d not seen her since graduation day. I know that Friedereich’s ataxia is a degenerative neurological disease and I could tell that her speech was beginning to slur. I didn’t know what other effects 13 years of the disease might have had.

Rose was not only any first true love in junior high, she was my first true friend in high school. At 17, she had a tall thin Figure, great legs, sandy blond hair and blue eyes. Rose’s most distinctive feature has always been her very angular sculptured face with high cheekbones and a broad smile that creates wonderful dimples.

As I toured the school auditorium talking to friends, someone said, “Rose is over there.” I turned around to see her a few feet away talking to a teacher. Her husband was standing behind her leaning on her wheelchair. I approached, aimed my video camera carefully and turned it on.

She looked great to me. Her figure is the same and she had her hair cut slightly shorter than it usually had been. She was wearing large, designer glasses rather than her ’70s wire rims. The main change was the wonderful air of maturity she had acquired. This was not the cute 17 year old I’d said goodbye to 13 years ago. This was a distinguished, mature, 30-year-old woman who still had the same broad smile and blue eyes.

Although she was somewhat shakier than before, I’d prepared myself for the effects of her handicap to be much worse than they were.

With my video camera running I waited a few seconds until she finished her conversation, and then I said, “Hi Rose.”

She turned and looked right at me and smiled, then introduced me to her husband. “This is Chris, he’s the guy who called last week.” I said some complimentary things to him about his great catch and congratulated them. I told her she was looking good and I was happy to see her. We chatted about various teachers we’d run into. I noticed she had a photo album, so I asked about it. It contained her wedding pictures. I suffered through looking at those, but I already knew what she looked like in a wedding dress. I’d seen it in my dreams for at least 10 years.

I’m glad I saw Rosie again. I’m happy that she is happy, and I am not jealous that her husband married her. I had 13 years when I could have chased her and didn’t. I’m jealous that she now has someone with whom she can share her joy and sadness, her highs and lows her pleasure and her pain.

I had myself a good, hard cry all the way home.

They called it a high school but it wasn’t.

It was 30 students, two teachers, two classrooms, 12 periods a day each 30 minutes long, no labs, no equipment, little opportunity to grow socially from ages 14-18. It wasn’t a high school. If you took the maximum five subjects and had lunch one period, that filled six of your 12 periods. The other three hours a day were “study hall.” Most of the time we tried to study in the same room while other classes met. There was a balcony porch near the high school rooms and we eventually got permission to study outside when the weather permitted. On rainy days we’d sit in the doorway and watch it rain and wonder why we ever gave a damn about anything. We’d talk about opportunities closed to us, sexual experiences we’d dreamed of and uncertain plans for our future. Depression ran rampant through us and we’d ask ourselves and each other, “Why try?”

I toured the high school rooms that day at the reunion and they were almost empty. One looked like it was used as a storeroom and mimeograph room. I tried the doors to the porch. It was locked but I could see that the tables were gone. Appropriately enough, it was raining.

I pressed close to the window and ran my camera to record that view. I need to remember always the depression of those days. I need to remember them vividly, so I’ll never be tempted to withdraw back into that state.

In addition to the two full-time high school teachers, we shared two part-time teachers with the junior high for shop, home economics and music. Betty Atkins was one of them. I saw her at the reunion and smiled broadly at her saying how good it was to see her. She smiled back and was happy to see me too. We didn’t really talk much but those exchanged smiles were important. We both remember a time when I wouldn’t smile at gunpoint.

I recall one day she called me aside and lectured me for being unfriendly and rude. “When?” I asked.

“Nearly always,” she said. “I pass you in the hall and smile at you or say ‘Hi!’ and you mostly ignore me or just grunt. Smile once in awhile or people will think you’re being rude.”

I explained to her that while I wasn’t trying to be rude or offensive, often I didn’t have anything to smile about.

I’m not sure if that conversation had anything to do with it, but several weeks later they called all 30 of us together in Mrs. Atkins’ room for a “rap session” to talk out our problems. It seemed to do us little good at the time, but I now consider it a turning point for me. During the rap session that day I made a big speech.

[NOTE written in 2018: It occurred to me that a present-day reader might not know what I meant by “rap session” in the early 1970s. It had nothing at all to do with rap music which I suspect had not yet been invented. A rap session was just to sit down and talk and air out your feelings.]

“You hear all these stories about the ‘Super-Cripple’ types who make it in the world and are successful and are supposed to be our role models,” I said. “But I’m not FDR or Stevie Wonder or that girl from ‘The Other Side of the Mountain.’ Where did they get that strength? How did they overcome their handicaps? What do I do to tap into their magic that lets them cope or achieve or be somebody?”

Nobody could tell me.

And I then realized that nothing magic was going to happen. The way to do it was to just do it. Just be. There’s no magic. Perhaps it was indirectly, but Betty Atkins helped me realize all of that. You either do something in your life, or sit and do nothing. I’m a “do something” person.

So that day at the reunion, I smiled at Betty Atkins.

Here’s a litany of people I miss s dearly who weren’t at the reunion. I’ve included my relationship with them and why they weren’t there.

Terry Johnson, best friend, died at 18 of muscular dystrophy and pneumonia.

Calvin Brandon. buddy died at 24 of muscular dystrophy and pneumonia.

Wayman Glass, buddy, died at 24 of muscular dystrophy and pneumonia.

Gene Storms, class nerd, died at 16 of muscular dystrophy and pneumonia.

Mark Heron, neighbor and best friend, died at 25 of muscular dystrophy and pneumonia.

Tim Monasmith, classmate, died at 21 of complications of his handicap.

Dan Moran, classmate with whom I argued a lot but never had the chance to apologize, died at 17 of complications of his handicap.

Carl Nash, buddy who I’ve seen several times over the years, who always greets me by saying disgustedly, “Aren’t you dead yet? I thought all you dystrophy assholes were dead by now. Hurry up and conform!” That’s Nash’s way of saying, “I’m glad that at age 31 you’ve beaten the odds.” Nash is living in southern Indiana with his wife, Mary, also a Roberts alum.

James Allen Whitney, a. k.a. “JAW,” class clown, alive and still clowning somewhere.

Estel Troxel, best friend, moved to Kentucky at age 16. I haven’t heard from him since.

Cheryl Abney, girlfriend in kindergarten, married and employed as a secretary despite the fact that she was born with no arms.

Lilly Ottinger, girlfriend in fourth and fifth grade, transferred to regular school and whereabouts unknown.

Cheryl Fayette, my date at the senior prom, married and living somewhere.

Mr. Batt, shop teacher who didn’t send us to the principal the day we stole Cheryl Fayette’s purse and hung it out the boy’s restroom window and dared Cheryl to come in and get it, his whereabouts unknown.

Mrs. Ashabrener, principal (a.k.a. Mrs. Trash Burner), died of cancer.

John Sementa, janitor who told us jokes all the time, whereabouts unknown.

When Roberts School opened it was a pioneer. A pioneer named Salk robbed Roberts of its primary source of students. Many people, including my mother, who have worked hard for mainstreaming of handicapped kids, were pioneers. My heroes in junior high were pioneers like Neil Armstrong. The teams at my part-time high school Northwest are known as “The Space Pioneers.: I was the first wheelchair-bound student to attend that school and that was a type of pioneering itself. Some of the consulting I’ve done has been to apply computer technology to help handicapped people. I see pioneering in other aspects of my work too.

But that’s history. Roberts School became an anachronism in a modern world of mainstreamed special education. Salk has become disillusioned with the institute that bears his name and has left to work on an autobiography. The advocacy groups that fought for mainstreaming are dying out. Northwest High School was recently one of several considered for possible conversion to junior high by the school board. Although spectacular progress has been made to mainstream severely retarded students at Northwest, no efforts have been made to make the school accessible so other physically handicapped students can follow me there.

I have no control over those who are swallowed up by progress-with one exception. I control myself.

Have I become stagnant and lost my “pioneer spirit” while friends got married and raised children? Roberts School failed to stay at the forefront of special education. Have I likewise rested on my early accomplishments?

My business survives but it doesn’t really prosper. I’ve reestablished my relationship with God and the Church but it’s now an ongoing gradual spiritual growth rather than the spectacular leaps of faith and understanding of times past. I’m pleased with the work I do, but it is sometimes tedious and lackluster. I’ve not totally given up on the idea of sharing my life with someone, but my prospects are poor.

Given all of the above, I think I’m keeping up OK. I’m not being left behind in the waves of progress.

But I’m no longer a pioneer . . . and I miss it.

After careful reflection on my life since the reunion last year. I’ve decided to do the following . ..

1) I’m going to continue to focus my computer programming skills in creative ways, especially applications of computers for handicapped users.

2) I’ll continue to keep options open in my relationships with women and not presume that parts of my life are closed.

3) I’m taking seriously the words of my friends who have read my journals and reflections such as this. I’m going to believe them when they say I’ve made them laugh, cry, think, feel and remember. A few years ago, a special friend told me I should write an autobiography. She has offered to advise me on getting it published and to correct my spelling. Others have encouraged me and made similar offers.

I can’t say “no” anymore. I’m going to explore and expand my experiences like the pioneer I once was.

So that’s it. My greatest success as an author. In next week’s episode, I will talk about what happened after the article was published and then we will continue with more stories about my high school days and I eventually transferred to attending a regular high school part-time.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

Many thanks to my Patreon supporters. Your support means more to me than words can express

Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life – Episode 21 “Life Online Before the Internet”

This week I discuss how I honed my craft as a writer by writing in online discussion forums on the CompuServe Information Service in the early 1980s long before the Internet was popular. This led me to write an award-winning article for a local magazine.

Links of interest:

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube Version

Shooting Script

Hi, this is Chris Young. Welcome to episode 21 of Contemplating Life.

Although it’s embarrassing to admit it, my storytelling techniques were influenced by Bill Cosby. I don’t want to be associated with him because I now know what a horrible human being he is. I no longer brag that we share the same birthday July 12. Still, I admire his ability as a storyteller. When he tells the famous story of his friend Fat Albert, he tells a lengthy tale simply to illustrate how fat Fat Albert was. Then he lets out a sigh and says, “Okay, I told you that story so I can tell you this one.” And then he tells the Fat Albert story that he wanted to tell to begin with.

I find myself using that technique a lot. I can’t tell you one story until I tell you the one before that. And I can’t tell that one until the one before that. So, there is a lot of “I told you that story so I can tell you this one” in this episode. And you’ve already seen that in previous episodes and will continue to see it in future ones. It’s how I remember things. It’s the way I think. And therefore it’s the way I write.

In 1986, I wrote an autobiographical magazine feature about my experiences in that school. The article titled “The Reunion” was a reflection prompted by an all-school reunion of Indianapolis Public Schools #97 James E. Roberts School for the Handicapped. The reunion, the event not the story, was to commemorate the closing of that school.

The article was published in the September 1987 issue of Indianapolis Monthly Magazine. It was awarded “Best Magazine Feature” by the Indiana Chapter of the Society of Professional Journalists – Sigma Delta Chi.

My plan for next week is to read the article for you.

That’s the story I want to tell. But before I do so, I have to tell the story behind the story. And the story behind that one. And the story behind that one. And before I could tell you any of those stories I had to tell you about how I tell stories like Bill Cosby did. It’s all connected.

Okay… Where do I begin to tell the story? “The whole universe was in a hot, dense state then 14 billion years ago expansion started… Wait…”

No, no, no, no… Okay, maybe that is too far back.

Let’s try to get a little bit closer to the story we want to tell.

Set your way back machine to Thursday, May 26, 1983 – three years and eight days before the reunion. It was the final day of practice for the Indianapolis 500. Although there haven’t been carburetors in IndyCars for many years, that day still is referred to as “Carburetion Day” or “Carb Day” for short.

I’ve been a lifelong fan of the Indy 500. I almost started telling you a long story about how I’m a race fan but let’s cut that one out and save it for a future episode. Let’s just say it all started on Carb Day 1983. The practice session only lasts about two hours in the late morning rather than all day for most practice days. Mom attended with me and on our way home I asked her if we could stop by the RadioShack Computer Store on Crawfordsville Road. I wanted to see if they had the new RadioShack Model 100 Computer.

This revolutionary device was arguably the first true laptop computer. It measured 300x 215x50mm or about 11.75×8.5x2in and weighed just over 3 pounds. The gray monochrome LCD screen could display only 8 lines of 40 characters each. That seems ridiculously small by today’s standards and was also small compared to the 64×16 characters of the Model I. However the only “portable” computers in those days were the size of a suitcase and weighed nearly 30 pounds.

I fell in love with the machine the minute I saw it and we ended up taking one home that day. Normally I don’t remember the exact day that I purchased a computer. The sales receipt is long gone. But I remembered I bought it on the way home from Carb Day. A Google search told me the Model 100 was introduced in April 1983. Wikipedia told me the date of Carb Day for the 1983 race. I could’ve just said, “I bought it in the spring of 83” but where is the fun in that?

My dad had to disassemble my expensive new toy to wire in some extra buttons to operate the control and shift keys. In those days, I would type by poking at the keys with a stick in my right hand. I would hold pushbuttons in my left hand to operate the modifier keys. We managed to successfully wire in the micro switches on a cable about 18 inches long.

The Model 100 also had a built-in 300-baud modem. Note: “baud” is the number of bits per second. The fastest that dial-up Internet used was 56,000 baud. Today’s Internet speed is measured in gigabits or billions of bits per second.

When I built my first personal computer in 1978, I had a modem that I used for connecting to the IUPUI mainframe DEC-System 10 but by 1983 I have left my job working for the Indiana University Department of Medical Genetics and I didn’t have much use for a modem.

The Model 100 became an instant hit with journalists. The following year while I was at the Speedway, I was hanging out with reporters in the press room. Many of them were writing their stories using the device and then uploading them directly to their newspaper or wire service.

The Model 100 included a famous CompuServe “Snap-Pack”. It was a sign-up kit for the CompuServe Information Service. It consisted of a small envelope that you could rip off the perforated end and snap it open. Inside you would find an account number and a password to sign up for the online service.

CompuServe was hosted on a network of DEC-System 10 mainframes like the one we had at IUPUI. Your account number was called a PPN which stood for “Project – Programmer Number”. It was two numbers separated by a comma. I still remember mine. It was 70136,62. It was not only your account number but it was your email address as well.

Although technically the Internet was “born” in January 1983, very few people used it. Commercial Internet providers didn’t appear until around 1989. CompuServe was the first consumer online information service. There were also private computer bulletin board systems known as BBS. CompuServe was followed by services such as Prodigy and AOL but all of this predated the public use of the Internet.

I don’t know for certain when I finally opened up that snap-pack and signed into CompuServe for the first time but I’m guessing it was in the fall of 1983.

CompuServe was completely text-based. It offered email and real-time chat rooms known as CB rooms named after citizen’s band radio. You could use a nickname that was referred to as a “handle” also patterned after CB radio lingo. CompuServe also offered discussion forums called “SIGs” or “special interest groups”. You could read news articles, get weather reports, get sports scores, get stock quotes, and book airline tickets. It featured many of the things that we do with the Internet today as long as it didn’t involve images, video, or audio. By the way, in 1987 CompuServe invented the “Graphics Interchange Format” or GIF files that we use today. They updated the specification in 1989 to allow for animation. But this was still 1983. No online graphics.

There were local telephone numbers in major cities that you could use to connect to the service. However, the service was quite expensive. You were billed about $6 per hour or rather 10 cents per minute. Running at 300 baud that could add up very quickly.

I gravitated towards a SIG known as NIP-SIG which stood for National Information Providers Special Interest Group. It was the gathering place for newspaper people who kept the news pages updated. However, over time they evolved into a place where people discussed a variety of issues of the day. It eventually was renamed the “Issues Forum”. I ended up there because they had a section called “Handicapped Issues”. Not only did I participate in that subsection on a variety of disability-related issues, but I also discussed politics, religion, and other topics in the other subsections.

Each SIG was managed by a System Operator or sysop for short. The sysop of the Issues Forum was an amazing woman named Georgia Griffith. She was blind I believe for most of her life if not from birth. She accessed CompuServe using a braille terminal that would display one line of text as a series of raised bumps in braille format. She had been a music teacher for much of her adult life but had retired from that and now worked for the Library of Congress transcribing music into braille. She had a special device that she would drag across a musical score and it would create a raised shape of the music staff and notes that she could feel with her finger. I was amazed by the technology.

It was only after I knew her for several months that I learned she was also deaf. She lost her hearing late in life. I took the news pretty hard. I think it was probably the only time in my life that I felt sorry for someone regarding their disability. I couldn’t begin to imagine what it was like to be blind, build your life around music, and then later lose your hearing. I took it as a tragic loss for a dear friend. I had to remind myself that she had gone deaf long before I first met her. She was the same person I always knew yet I had no idea who she really was. Her second disability was completely hidden from me and of course, I wouldn’t have known she was blind either had she not told me.

I had already learned that communicating with people online was a great equalizer. It may sound trite or cliché but it allows you to connect mind to mind without any physical characteristics coming into play. My first realization of this phenomenon was when I was talking one-on-one with a woman whose online name was Daria Danai. At one point she simply asked, “Looks?” wondering what I looked like. I kind of freaked out because it was the first time in my life in a social situation when someone didn’t know I had a disability. I don’t recall what happened but I think I just disconnected. I wrote about it later in the Handicapped Issues forum.

In some ways, it was liberating to be completely free of my disability. On the other hand, I discovered that hiding my disability was hiding my true self. I’ve had plenty of opportunities in the decades since then either on CompuServe or on the Internet where I had the opportunity to keep my disability a secret and it just didn’t feel right.

Somewhere along the way, I drew the attention of Pamela Bowen. She was the city editor of the Huntington, WV Harold-Dispatch newspaper. Her husband Charlie also worked for the newspaper and they both worked as information providers for CompuServe. Charlie wrote a book called “How to Get the Most Out of CompuServe.”

She told me both publicly and privately that she thought I was a talented writer. We began exchanging lengthy emails with each other over the next several years in which we told each other our life stories. My emails to her became a kind of personal journal in which I shared my innermost thoughts.

We became extremely close friends. It was amazing the bond that developed between us. Unfortunately for me, yet fortunately for her, she is very happy in her marriage. If not for the strength of her relationship with her husband, I’m confident that we would have been even closer.

My letters to Pamela provided me with the kind of therapeutic value of a personal journal with the added bonus that I knew someone out there was reading what I was writing and appreciating it. At the time, the word blog had not yet been invented. Yet essentially that’s what I was writing. It was a personal blog about my life with an audience of one.

On several occasions, my mother said that she was going to collect all of the emails that I had written to Pamela and publish them as my biography. My response was, “Over my dead body.”

Her reply was, “Matter of fact… Yes exactly. When you die that’s what I’m going to do.” In those days we had no idea I could possibly outlive her.

Because CompuServe became prohibitively expensive for me, I had to find a workaround. A sysop had the authority to grant a “free flag” to members who contributed to the discussion groups. Eventually, I became the discussion leader of the “Handicapped Issues” section. That would give me free access as long as I was logged into the Issues Forum. If I logged in and quickly moved to that group, I would only be charged a few cents each time I entered and exited. However, writing emails was costly. Even if I found a way to compose them offline and upload them, at extremely low baud rates that was still costly.

Pamela was so committed to our continuing correspondence that she shared with me an account number and password to a somewhat secret file transfer area that was used by the content providers. I would log into her account, and upload a file with the name such as “pb071285” which meant it was a letter to PB on July 12, 1985. When she had read the message, she would delete it from the directory and leave me a reply with a “cy071385” the following day.

I eventually migrated from the Issues Forum to another popular feature on CompuServe – Human Sexuality Support Groups which held the online address HSX-100. It was operated by noted authors and sex educators Howard and Martha Lewis. I believe they had written a sex education book for high school use. On CompuServe, they had a series of pages of information about human sexuality as well as a lively discussion forum. Eventually, I was recruited by them to start a Handicapped Sexuality section on their forum.

My group wasn’t much of a success. I believe we attracted less than 10 participants and once we had each shared as much about our romantic successes and failures as we cared to share, it kind of went quiet and we eventually dissolved the group.

Howard appreciated my skill as a writer and suggested I start a section of personal reflections about my life with a disability. He came up with the name “CY’s Eye on Life”. If you listened to the first episode of this podcast I explained that I nearly called this podcast by that name but it’s a very confusing phrase to listen to. In case you don’t understand what I’m saying it is my initials CY an apostrophe S, eye (as in eyeball) on life. CY’s Eye on Life.

So, I told you those stories so I could tell you this one.

In early 1986, I received a small hand-addressed envelope containing an invitation that read, “You are invited to an Open House at James E. Roberts Public School #97 from 2 p.m. to 5 p.m. on May 18, 1986, commemorating 50 years of educating handicapped students in Indianapolis. And on the occasion of the closing of James E. Roberts School.”

I attended that open house and it brought back many emotional memories of my 13 years attending that school. After the event, I began writing a series of messages in the HSX Forum in my “CY’s Eye on Life” subsection. This series got rave reviews not only from professional writers like my friend Pamela but from many other people. I printed out copies of the messages and shared them with friends and family who did not have access to CompuServe. It also brought rave reviews.

Many, many people strongly encouraged me to submit it somewhere for publication but I had no interest in doing so. Writing those stories was a catharsis for me. I wanted to get those feelings out of my system and put them behind me. I didn’t want to have anything more to do with it once it was written.

One day, I was watching the noon news and there was an interview with a woman named Deborah Paul. She was the editor of Indianapolis Monthly Magazine. She said something I will never forget. She said, “I never feel like an experience is complete until I’ve written about it.” That precisely described my feeling about my writing. I need to write about things to put my experiences in perspective. I concluded that if this was the way she felt about writing, perhaps she would be open to publishing my work. If they liked it, great. If they didn’t, it would get all of my friends and family off my back because I could say I tried.

I took the series of messages that I had written and compiled them together into a single narrative. I submitted it to the magazine. In the topping letter, I mentioned what I had heard Ms. Paul say in that interview about why she wrote and how I felt the same way.

I don’t know if I told her that it was based on something I had written on CompuServe. These days, that would’ve been a dealbreaker. If you put something on the Internet, especially for free to the public, no one will buy publishing rights. If it was behind a paywall such as for Patreon subscribers, you might get away with it or they might consider it a reprint. But in those days, nobody cared about online publishing.

A few weeks later I received a handwritten note from Ms. Paul.

She said that she was going to write me a quick thank you/rejection letter when she started reading what I had written and couldn’t put it down. She wasn’t sure what to do with it because it was not the kind of thing they usually publish. She said she showed it to some of her associate editors and they didn’t know what to do with it either. She asked that I give them a couple of weeks and they would get back to me.

I did hear back in about two weeks in the form of a phone call. She said that they wanted to publish my story but there were three problems.

1. They never publish anything written in first person.

2. It doesn’t fit the format of the magazine.

3. It is too long.

She then said, “I got to thinking wait a minute… Just because we’ve never published a first-person feature before doesn’t mean we can’t start now. And I’m the editor of this magazine and I decide what is or is not our format. That leaves number three… It’s still too long.”

She gave me the option of giving me the story back again and allowing me to try to sell it somewhere else intact or to have them publish a shorter version. She said, “Chris, you’ve put your soul on paper. But we only want half of your soul”. We both laughed. When I told a friend about it, they said it reminded them of the line from the movie Amadeus when they told Mozart his music had too many notes.

She said, “I respect the fact that this is a very personal story to you so I want to give you the opportunity to submit a shorter version yourself. Or if you prefer I can just edit it. After all, that’s my job as editor. I edit.” I was happy to resubmit a shorter version.

As you might imagine, cutting your soul in two is no easy task. Writers never want their work cut but I was so happy that they would publish it I didn’t care. I resubmitted a shorter version of the story. The final version that appeared in the magazine had about five or six paragraphs cut from my resubmission and a couple of paragraphs that I had cut were put back in. I was very happy with the end result.

I don’t recall when I submitted the article or when it was accepted. It must’ve been late 1985 or early 1986 because she warned me they would be holding it until their September issue since it was school related. It would be a kind of back-to-school feature. Somewhere along the way, we made arrangements to go back to Roberts School to take some photos to accompany the piece. We also shot a photo in my home office and I supplied her with an eighth-grade class photo.

As the author, I received a couple of complimentary copies of the magazine. I wasn’t a subscriber. We also found out who was the distributor and my mom went directly t app 5o them and purchased about 10 copies so that we wouldn’t deplete the newsstand copies. I still have a couple of copies but I gave most of them away.

The response was phenomenal. I will talk more about what happened after the article appeared but I think it’s time to wrap things up for today. I haven’t decided yet if it will be read in 1 or 2 installments. In the episode following that, I will talk about what happened afterward.

I already mentioned that it received a top award in its category. More on that later.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

Many thanks to my Patreon supporters. Your support means more to me than words can express

Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life – Episode 20 “Life and Chess”

This week we continue our series of episodes on my experiences growing up in a special education school.

Links of Interest

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube version

Shooting Script

Hello, this is Chris Young. Welcome to episode 20 of Contemplating Life.

This week we continue our series of episodes on my experiences growing up in a special education school.

As we contemplate life, sometimes it seems like a game of chess. In order to succeed, you have to plan ahead. Along the way, there are gains and losses. Loss is a normal part of life. We have to experience it. It’s unavoidable. The interesting thing about chess is that you can lose every piece on the board except for the king. The king is never removed from the board. When you attack the king, he is in check. If there is no escape from that check, you call checkmate and the game ends. Sometimes a player will ceremoniously tip over the king especially if the player resigns. But you never experience the loss of the king.

Similarly in life, we experience the death of others but when we die, the game is over. As a person of faith I hope for an afterlife in which I can look back at my life but it isn’t guaranteed. Even if there is an afterlife, the game of life will be over.

This is a story of loss. Of lost love. Of lost friends. Of lost opportunities. But the game goes on.

When we last left our intrepid hero, me, I had finally gotten the attention of my first love Rose Shewman. We met the next day in the back of the physical therapy department and agreed we were officially a couple. We were going steady.

Unfortunately, we were almost as clueless at age 13 about what it meant to be boyfriend and girlfriend as I was with Cheryl at age 5. We were going steady but we were going steadily nowhere We talked on the phone when we got home many times but I didn’t have a phone in my room so there wasn’t much privacy. We would spend every free moment together at school and would occasionally hold hands going down the hallway side-by-side. We would sneak away for long chats in the therapy room. A door at the back of the therapy department led to a balcony porch. One day we snuck out there with the intention of kissing. Although we were completely alone, she was scared someone would come looking for us, find us on the porch, and catch us at a bad moment. She chickened out and we headed back to class. I said to myself, “We probably blew it. Now we might never get a chance to kiss.”

Unfortunately, that was a prophetic statement. After about three weeks she dumped me. In a last-ditch effort over the phone, I tried to get her to change her mind. I was just about to tell her I loved her but my mom walked by and I couldn’t do it in front of her.

The Beatles’ song “Yesterday” became my theme song.

Again, the only thing that comforted me was the fact that there were no other guys in the picture. I kept hoping that someday things would turn around and she would take me back. We didn’t have yearbooks in junior high but we had a class photo with a cardboard frame and cover. We all signed each other’s photo covers with farewell messages. Several of the ambulatory students such as Ted Hayes and Greg Whitney were going on to real high schools. On Rose’s class photo, I wrote, “See you next year to try again.”

In response, she signed my photo, “Don’t try again. You’ll never succeed.”

My dad tried to comfort me with the old adage, “Girls are like streetcars, if you miss one, another one comes along in a few minutes.”

“They don’t make streetcars anymore. People ride buses.”

“Okay, smart ass. Then buses.”

“And how many buses are wheelchair accessible?”

He didn’t have an answer for that.

Throughout junior high and high school, I also suffered other devastating losses.

In sixth grade, they changed the policy that everyone had to take an afternoon nap. Instead, they purchased a bunch of board games and we had a sort of indoor recess for handicapped kids. We played chess, checkers, Stratego, and some other games I don’t remember the name of. I had been playing chess since third grade. I wasn’t any good because I didn’t have anyone good to play against. There were a couple of people in junior high that played but I beat them fairly regularly and they didn’t particularly like losing all the time. I probably wasn’t a very gracious winner.

There was an eighth grader named Terry Johnson who was at the time the smartest kid I had ever met. Probably the only kid approximately my age who was a real academic rival. I taught him how to play chess and three weeks later he was beating me consistently. When he graduated from junior high and I moved up to seventh grade, that gave me back my self-proclaimed title as chess champion of the junior high.

When I got to high school, we didn’t play chess anymore but we were still good friends. He got straight A’s throughout the entire 4 years of high school and earned an academic letter sweater which he wore with great pride. Sadly, high school graduation was the end for him. He never went on to college or attempted to find employment. He died of pneumonia about six months after graduation – just two weeks before Christmas. I took it really hard. I concluded, why should I bust my ass to get straight A’s when you can goof off, hang out with the bad boys, have fun, and still get B’s and C’s?

Back in episode 11, I spoke about how his loss affected my relationship with God.

Terry had the most common kind of muscular dystrophy called Duchenne muscular dystrophy as did many of my other friends from school. They started out walking when they were young but lost that ability around age 6-7. I knew that I had something different. I had never walked so theoretically one would think whatever I had was worse than the most common type of MD. That’s why the doctors told my parents when I was first non-diagnosed that I wouldn’t live very long.

In my mind, Terry had died very young but what I didn’t know was that the average life expectancy at that time for someone with Duchenne was probably 25. None of my friends with Duchenne MD ever saw age 30. I think Gene Storms died at about 16 or 17 but we were not very close. Calvin Brandon and Wayman Glass survived until their late 20s. All had Deschene MD.

Mom used to do lots of volunteer work for the Marion County Muscular Dystrophy Foundation. She would always hear when one of the MD kids (or rather young adults) would die. If I knew them, she would come to me and tell me about it. I tried unsuccessfully to become numb to it. I never went to any of their funerals. I didn’t like funerals anyway and it was too much to go to one of them.

One day when I was perhaps age 32, Mom came to me and said, “Kelly Garrison died.” He was about five or six years younger than me. He had Duchenne MD. I didn’t know him well but I knew of him.

I said, “Well… I’m next.”

She immediately went into an angry tirade laced with, “How can you say that? You don’t know that? You’ve never been one to give up!”

When she wound down, I calmly added, “I’m still next.”

“How can you say that?”

“Because there aren’t any left. Of all the people who had some sort of muscular dystrophy that I knew from school, they are all dead. Kelly was the last one. I could live another 40 years but I’ll still be next because there just aren’t anymore.”

We both tried not to cry. That was about 35 years ago.

Fate robbed me of another chess partner.

When I was in eighth grade, we got a new girl in seventh grade named Heidi. She was in a wheelchair but I didn’t know what was wrong with her. She was extremely shy and quiet. I figured she would eventually warm up the way Rose had. The teachers found out she played chess and so they suggested I try to get her to open up a little bit by challenging her to a game. She played pretty well but she didn’t take care of her queen. I would get some sort of a fork move on her, capture her queen, and after that, she didn’t have a chance. A couple of times I took it a bit easy on her. When she would make a mistake, I would ask, “Are you sure you want to do that?” I would let her take back the move. But only if she made an obvious blunder. If she would get caught in a trap that I set then I would take the win.

One day, Mr. Kohl called me aside. “How have the chess games been going with Heidi?”

“Okay, she’s pretty good except she doesn’t protect her queen.”

“I have a favor to ask you. I need you to let her win now and then.”

I laughed in his face. “You can’t be serious. I will coach her as best I can but I’m not taking a dive. Especially against a girl. I’ve got a reputation to maintain.”

“You will do it.” It wasn’t a threat. He spoke from confidence.

“What makes you think that?”

“Because I’m not telling you to do it as your teacher. I’m asking you as a personal favor to me.”

Well fuck. He had me. Since he put it that way… I was going to do it but the best I could give him at that moment was to say I would think about it.

I didn’t get a chance to play with her for a couple of days. I made up my mind I would go easier on her. She was going to have to win but I was going to just play a mild defense. I might even “accidentally” sacrifice a piece. Then she didn’t show up to school for two weeks. One day, Mr. Kohl called me aside, “Did you ever get a chance to play against Heidi again after we talked?”

“No. She hasn’t been here in days. I was going to go easy on her but I never got the chance.”

He then explained. Heidi had cancer all along. She was terminal. She knew it and all of the teachers knew it but none of us kids. She only came to school to have something to do to live out her days. He told me she had died. I never got a chance to give her a game.

You always think you will have time to do nice things or to apologize. But you can’t be sure.

Dan Moran was in high school with me at Roberts. He had chronic kidney disease. One day we got into a stupid argument over something. I don’t recall what it was. On the way home on the school bus that day I decided to apologize the next day. He didn’t show up the next day. Or the day after that. A week later he was dead at age 16.

People say, “Don’t hold a grudge.”

I rewrote that adage after Dan died. I now say, “Don’t hold a grudge any longer than you can hold your breath. That breath might be your last.”

One more tearjerker for you just to get them all out of the way. This story is going to take a lot of backstory but it’s a backstory I was going to tell you eventually anyway so now is as good of a time as any.

As I will tell in more detail in future episodes, for my sophomore through senior years of high school I went half a day to Roberts School and the other half of the day at my local neighborhood high school Northwest High School. The wheelchair bus from Roberts would pick me up in the morning and drive me to Roberts where I would take a couple of classes that were only offered upstairs at Northwest which was inaccessible. Then after lunch, Mom would pick me up and drive me to Northwest for afternoon classes. As the bus came back through the neighborhood to drop off my friend Mark who lived just around the corner from me, it would stop by Northwest, pick me up, and bring me half a mile home.

The high school at Roberts was a joke. There were only about 20-25 students for the entire high school program. We had only two teachers. Mr. Sam Price taught English, biology, and social studies. Mrs.Harriet Bartlett taught math, bookkeeping, and French. Those teachers tried to teach an entire high school curriculum for all four years of high school. To get all of that in, they divided the day into 12 periods of 30 minutes each. Each class would consist of 2-5 students who sat around a table at the front of the room while the teacher taught. The rest of us sat around the perimeter of the room at desks facing the wall. If you took five courses plus lunch that meant you had 6 of the 30-minute class periods with nothing to do except study and try to stay out of trouble.

Scheduling all that, especially arranging it so that all of my classes were in the morning was quite a challenge. Lunch at Roberts was served in three shifts. Kindergarten through about third grade went first. Grades 4-5 plus the special ed multiply handicapped class (kids with both physical and intellectual disabilities) went second shift. Junior high went third. High school was spread out among all three periods to make the schedule work.

During my sophomore year, Rose and I were the only high school kids who ate in the first lunch period with the little kids. We had a table all to ourselves. We would eat lunch quickly and then convince the second-grade teacher who was the lunch monitor that we had permission to leave early, go back upstairs, and study.

We sort of did have permission but we were expected to go to Mrs. Bartlett’s room because Mr. Price was at lunch himself. We would sneak off to the empty classroom. We weren’t doing anything wrong. Mostly we just sat and did homework or would talk but it was nice to have a quiet place to hang out without having another class going on in the same room. Sometimes we would get to laughing too loud. Bartlett would hear us, come over next door, and angrily order us back to her classroom where we belonged.

When we were there alone together, we finally began developing that friendship that she said she always wanted from me. I learned more about her life story. She was the youngest of nine children in a large Catholic family. Her father had been a firefighter but had died from alcoholism. Her disability was caused by a rare genetic neurological disease called Frederick’s Ataxia – F.A. for short. Two of her older brothers had it. The older one was dead. The other one lived with her and her mom.

She had been able to walk up until about sixth grade. By seventh grade, she had to use a wheelchair. She had been attending Saint Teresa of the Little Flower Catholic School which was just down the street from her house. Upstairs at the school was inaccessible. She would try climbing out of her wheelchair and either climb the stairs holding onto the railing with help from someone or she would get out of the chair and she tried to crawl up the steps while someone carried her chair up. It just didn’t work out. That’s when she transferred to Roberts School halfway through seventh grade and I fell in love with her.

When she came to Roberts, she has only been in a wheelchair for a few months. She was still dealing with the trauma of recognizing what was ahead of her. That’s why she was so withdrawn when she first came to Roberts. Even though she had brothers with the same thing, moving to Roberts made it suddenly real to her. None of the rest of us realized what she was going through back then. All of us had spent many more years or perhaps our entire lives getting adjusted to life with a disability.

Having a boyfriend was the last thing on her mind back then. She confessed her letter to me in seventh grade had been a lie. She never had a boyfriend from her neighborhood. She also somewhat apologized for her snarky conclusion of the letter which concluded, “So what if I am cute?” She said, “I was really nasty to you back then wasn’t I?”

“Yeah, you were. My heart’s still broken. But you’re still cute.”

“Yes, I am. And we’re still going to be just friends.”

That friendship grew even deeper one day when we were sitting alone in Mr. Price’s room after lunch. We were actually studying for a change and not joking around. I was doing geometry and Rose was working on a biology assignment. At Roberts, there was no lab for biology. It was purely a textbook-only course. I was taking biology at Northwest. The difference between the two courses was like night and day. That we had biology lab every other day at Northwest. We dissected an earthworm, a frog, and a fetal pig. That’s one of the reasons I got out of Roberts half a day to go to Northwest – so I could take real science classes.

Anyway, our desks were across the room from each other facing one another. I happened to look up and Rose was just sitting there quietly with tears running down her face.

“What’s wrong?” I asked.

“It’s this stupid biology assignment Price gave us. We have to write a report about our own disability. Price brought in this damned medical reference book.” There was a large book about 4 inches thick that looked like an unabridged dictionary. She gave it an angry shove across the desk. She composed herself a bit and said, “They’ve got less than a full column about F.A. They hardly have anything to say about me. The stuff they say, I’ve seen it in my brothers and I’m living through it. But the thing that got me…” She started crying again… “…was the last sentence. It just says real coldly matter-of-fact, ‘Usually fatal by age 30’” She slammed the book shut and continued to cry.

I knew her oldest brother was dead and the other one was in worse shape than she was. It just didn’t sink in for her until that moment what that meant for her. Or for me either. Terry Johnson, Gene Storms, and Dan Moran were still a year or two from dying. I had never gotten close to Heidi.

We both sat there and just cried for about five minutes. I wanted to go over and hug her but even though I had some use of my arms in those days, I couldn’t reach up. The best I would’ve been able to do is pull up alongside her and invite her to hug me but that wouldn’t have helped. I wasn’t the one who needed comforting. So we just set there across the room from each other and cried. She could see I was crying too. I think that was the best we could do under the circumstances.

After a while, she said, “30 years isn’t enough.”

“No’s, it isn’t.”

She left for the restroom. I wiped my eyes and went over to Mrs. Bartlett’s room.

You will hear much more about Rose in future episodes but let me spoil some of it for you so we don’t end this episode on a total downer. After graduating high school, I occasionally heard from Rose but I didn’t see her again until a school reunion in 1986 when we were each just short of our 30th birthdays. She was happily married to the nephew of one of our classmates. A couple of years later, my cousin Nancy ran into her when they shared a ride on a city wheelchair bus. Rose was taking her newborn baby for a checkup at the doctor.

According to records I found on ancestry websites, Rose Ellen Figley (née Shewman) born September 5, 1955, died October 29, 1993, at the age of 38 years, 1 month, 24 days.

Thirty wasn’t enough. But given the circumstances maybe 38 was.

For my next couple of episodes, I’m going to do something a little different. I’ve mentioned in passing a couple of times that I wrote an award-winning article that was published in the September 1987 issue of Indianapolis Monthly Magazine. The autobiographical piece “The Reunion” is a memoir of many of my experiences at Roberts School that was inspired by an all-school reunion of Roberts alumni that was held in May 1986 on the occasion of the closing of Roberts School. Although I intend to keep the majority of this podcast to be newly written original material, I thought it might be nice to read the story for you. So, next week I will begin by telling you the story of how I wrote the article and I will read about half of it. The following week I will finish the story and talk about what happened afterward.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

Many thanks to my Patreon supporters. Your support means more to me than words can express

Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life – Episode 19 “Politics and Ponytails”

This week we continue our series of episodes on my experiences growing up in a special education school. We talk about my experiences moving from 5th to 6th grades and my first genuine interest in girls.

Links of interest:

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube Version

Shooting Script

Hello, this is Chris Young. Welcome to episode 19 of Contemplating Life.

This week we continue our series of episodes on my experiences growing up in a special education school. We talk about my experiences moving from 5th to 6th grades and my first genuine interest in girls.

We’ve talked in previous episodes about my so-called girlfriends in kindergarten and later in fourth grade but at that young age, I really had no idea what it meant to have a girlfriend or to be a boyfriend. However, at the early age of 10, it began to get real. Well… As real as it can get for a 10-year-old. A girl named Lily had a genuine crush on me.

She was in Robert’s school because she had a heart condition. As I explained in previous episodes, many of the kids didn’t really need to be in a special ed school. Anything that was serious enough to get you out of gym class or to restrict your activities on the playground would get you shipped off to the handicapped ghetto.

She would shower attention on me carrying books, helping me with my coat, and before I had my power wheelchair she would push me to and from lunch. I suspect she was a bit disappointed that I got the power chair because in some ways it put her out of a job. Still, she could see how happy I was to have it.

How bad did bad Lily crush on me? She would take a piece of paper and practice writing her name as “Lily Young”. She showed me a math paper that she “accidentally” wrote “Lily Young” at the top of it. She said she came very close to turning it in before she caught the mistake.

I wasn’t exactly smitten with her but I really did like her. She was reasonably cute and at age 11 was starting to develop a figure although she was a little bit plump. Most of all, I enjoyed the attention she gave me and did what I could to encourage it.

We never held hands or talked about kissing let alone trying to do it. I don’t recall talking to her on the phone although a couple of years later she called me just to see how I was doing so we must have exchanged phone numbers.

I’m pretty sure that by the end of the school year, she already knew she would attend regular school the following year. I would miss having her around and all the attention that she gave me but I wasn’t exactly heartbroken.

Lots of kids who didn’t belong in Roberts left after fifth grade. Grades 6-8 were considered junior high which today would probably be called “middle school”. Although Roberts’ junior high program wasn’t half bad, it had nowhere near the opportunities that a regular school would have.

The transition from 5th to 6th grade also meant moving upstairs. By then, I had mastered navigating the big ramp and enjoyed going up and down every day. It was no longer the terrifying experience that it had been that first time down.

In junior high, we had a homeroom where we had English which included spelling, grammar, and literature. The sixth-grade homeroom teacher Mr. Ron Kohl taught social studies for all three grades. The seventh-grade teacher Mrs. Irene McBurnie taught science and music. The eighth-grade teacher Miss Meta Fogas taught math. We shared a shop teacher and home economics teacher with the high school. There was an art teacher who was in the building one or two days a week and would rotate with other schools.

We would spend most of the day in our homeroom but would rotate to other rooms for science, music, or math. It probably would’ve been easier to just have the teachers switch rooms and leave all of us in the room we started in but something about the idea of switching from classroom to classroom made it feel more like a regular school. Also, we did have a small amount of lab equipment in the seventh-grade science room and of course, we had to switch rooms for shop and home ec.

In shop class, we did some woodworking projects like making lamps or wall decorations, and we spent some time learning mechanical drawing which was fun. If we had had CAD software in those days I might have taken up drafting or architecture as a career. I couldn’t handle any drawing bigger than an ordinary sheet of paper so a full-size blueprint would’ve been out of my capability. The girls did cooking and sewing.

My sixth-grade homeroom teacher Mr. Kohl was a jolly fellow who stood about 5 feet tall and was totally bald. He was a lot of fun but if you got in trouble too often he could be really tough. One time when the class had been getting especially rowdy he imposed on us what he called “The Week” in which he was no more Mr. Nice Guy. We got the message. We could have fun in his class but there were limits and he could take away all of the fun at a minute’s notice.

Like Miss Holmes and Mr. Wright in the third and fourth grades, he recognized how bright I was and I quickly became his favorite. Of course, he also realized how lazy I was and was quick to give me those speeches about not living up to my potential, etc., etc. He was the teacher I spoke of earlier who tried to trick me into joining the spelling bee by appealing to my competitive nature and ego about my intellect. It didn’t work.

I had acquired a passion for politics from my mother and that passion was further fueled by his social studies class. This was 1966-69 so it was an exciting time with the height of the Vietnam War and all of the social unrest regarding that as well as the civil rights movement.

He said that someone once asked him if segregationist Alabama Governor George Wallace ever died would he go to spit on his grave? He replied, “I promised myself when I was in the Army I would never stand in line again.” He had been stationed in Germany but only after the end of World War II. He still had lots of stories about his time in Europe in the service.

I remember how surprised he was when President Johnson announced, “I shall not seek and I will not accept the nomination of my party for another term as your President.” Mr. Kohl had assured us that Johnson would be president again and we teased him pretty hard the day after LBJ announced he was out.

Although Mr. Kohl refused to identify as Democrat or Republican, it was obvious he was a liberal, especially on social justice issues. He was Catholic and probably quite pro-life. He and his wife were unable to have children so they adopted a daughter. She was about the same age as my adopted sister Carol so he and my mom shared a bond. I reconnected with him years later on Facebook but I don’t recall when he died. I doubt that he lived to see the Trump presidency but I’m certain that if he had, even if he had become more conservative, he would have been appalled by politics today and the assault on democracy.

There was something very important missing from my sixth-grade experience.

Girls.

It wasn’t just Lily who left Roberts School after fifth grade. All of the girls either moved out of town or started going to regular school. It just so happened there were no handicapped girls our age anywhere in the city of Indianapolis that particular year.

We did get some excitement for about six weeks. A girl, whose name escapes me all these years later, came to our school. She was a very attractive blonde with a great personality. She described herself as a tomboy and her evidence was that she had fallen out of a tree and broken her leg. She was only going to be in the wheelchair at Roberts for about six weeks until her leg healed. That was enough time for my friend Ted Hayes to go nuts over her but I don’t think he ever got anywhere. I and the rest of the guys were content to just tease her about whatever we could. At age 11, we still weren’t quite girl crazy yet.

Years later I was in the cafeteria at IUPUI and an absolutely stunning blonde athletic-looking nursing student walked up to me asking, “Do you remember me?” It was the tomboy from sixth grade. Unfortunately, I was sitting there talking to a girl named Ellie who you will hear much about in future episodes. If I hadn’t been with Ellie, I would have gotten the nurse’s phone number just to see what might happen. That wasn’t the only time fate sent me a potential girlfriend while I was in the middle of pursuing someone else. Sometimes I would pray, “Come on God… You give me these long droughts with no women in my life and then you send me two at once. Can’t we get better timing?”

My all-male class continued throughout sixth grade and a couple of months into seventh grade. Then we heard we were getting a new girl at last. She was a very sweet African-American girl named Donna. I think she had a heart condition or asthma or something that didn’t put her in a wheelchair. All of the black guys chased her but never got anywhere.

I think it was in February or March of seventh grade one day we were in the eighth-grade room at math class when word got around that we were getting a new girl. As I rolled into homeroom after math class and headed for my desk.

The students in wheelchairs sat at custom-built tables designed for two wheelchairs side-by-side. They had plenty of clearance underneath for wheelchair footrests and there was a shelf below the table where you could stash your books. The height was perfect for someone sitting in a wheelchair. We had an odd number of wheelchair students and considering I was continuing my role as teacher’s pet, I was awarded the privilege of an entire desk to myself.

The new girl was sitting there in her wheelchair at my desk.

My initial reaction was, “Oh crap no, I’m gonna have to share my desk with some girl!”

Then I saw the girl. Now it was, “Oh holy shit! I gotta make sure I sit next to this girl!”

Sitting there in front of me was the most beautiful thing I’d ever seen in a wheelchair. She had sandy blonde shoulder-length hair, blue eyes, high cheekbones like some Scandinavian fashion model, and a broad smile. She was wearing a pink sweater over a white blouse, a gray pleated wool skirt, white bobby socks, and penny loafers. I was totally smitten.

In addition to the normal wheelchair desks, we had ordinary school desks but the chairs were not attached. You could sit at one of them in a wheelchair although they would be a little bit low. At one point it looked like Mrs. McBurnie was going to seat her at a single desk. I spoke up immediately and insisted I didn’t mind sharing my wheelchair desk with her. Fortunately, I got my way and she was assigned to the other half of my desk.

The teacher had been talking to the girl’s mother. The teacher then introduced her to everyone as Rose Ellen Shewman. At first, I wasn’t sure if Rose Ellen was one word or two. Her mother called her Rose Ellen and when the teacher began referring to her as Rose Ellen you could see her cringe. It didn’t take long to understand she wanted to drop her middle name and be called just Rose.

She was initially quite shy which is to be expected coming to a new school and not knowing anyone. However, she wasn’t shy about answering questions in class. She was smart. I noticed she was constantly flipping to the back of the book and looking at the glossary to find answers to questions. That was something I was too lazy to do. Prideing myself in being a know-it-all, I always had the attitude that if you have to look something up, it was an admission of failure. I gave her points for being clever enough to be able to look something up before the other idiots in the class could prove their ignorance by giving a wrong answer.

It didn’t take long for all of the other guys to know that I was first in line to get her attention. I didn’t have any competition.

The question was, “What next?” How do I get her attention? How do I show my intentions? I was a clueless 12-year-old. Some suggested that a good first step was to buy her a friendship ring. That would be a challenge. I couldn’t exactly save up money from a paper route, hop on my bicycle, and ride to the store.

One day, there was about $10-$15 just lying around on top of the TV. I concluded that they had paid the paperboy with a $20 bill and this was the change. My problem was, it was sitting back too far for me to reach. I asked my sister Carol who would’ve been about 4 years old at the time to hand it to me. Then I had to figure out an excuse to get to the store. There was a discount department store called Ayr-Way on Lafayette Road that was the 1960s equivalent of K-Mart or Walmart. I knew they had a jewelry counter full of cheap costume jewelry.

Before I could hatch a plan, I got caught. My parents confronted me and asked if I took the money. I confessed. When they asked why, I said I wanted to buy a model car kit to build. I said I was going to ask them to take me to Ayr-Way to buy it. They told me if I needed money in the future, they would give it to me. They took me to the store but I didn’t have the money with me anymore. I picked out a car kit and they paid for it.

Eventually, I had a couple of bucks from my grandma and I traded that along with the promise of all my desserts at lunch for a week to my buddy Teddy. He had a cheap friendship ring that was a metal band with hearts all around it.

I wrote a mushy love letter to Rose, put it in an envelope with the ring, and handed it to her on the way out the door at the end of school on a Friday. Monday at the end of the day, she handed me a note on the way out the door. She said she didn’t want to go steady with me. She wasn’t interested. She already had a boyfriend who lived in her neighborhood. She concluded with the sentence, “So what if I am cute?”

Naturally, I was pretty crushed.

My only consolation was that once I told all the guys she already had a boyfriend, none of them tried to step in where I had failed. I always had hope that this situation would change and I would try again. Throughout the rest of seventh grade and into eighth grade I had to just bide my time.

Eventually, Rose just became another one of the gang. We all enjoyed teasing one another. I once wrote that if our desks still had inkwells like in the olden days, we would’ve been trying to dip her ponytail into it. Rose liked to show off that she could pop a wheelie in her wheelchair and balance on her rear wheels. It took a while before she realized that we enjoyed her balancing skills so much because we could see up her skirt. After that, she never did it again.

My next chance came on Valentine’s Day in eighth grade.

We always had a party on Valentine’s Day. You would buy a package of mixed Valentines and send one to everyone in your class, including guys sending to guys and girls to girls. You had to choose carefully so that the same-sex cards were more friendly than romantic. I carefully sorted through the package that my mom got for me and picked out the mushiest one for Rose.

In eighth grade, I wasn’t sharing a desk with Rose anymore. I shared one with my best buddy Miguel “Mike” Rodriguez. Rose sat at a single desk directly in front of us. At the Valentine’s party, I leaned over to Mike and whispered, “I’ve got to keep an eye on Rose. I sent her a particularly mushy one. I’ve got to see how she reacts.”

He gave me a thumbs-up and whispered back, “Good luck bro.”

Rose opened my card, read it, turned around and looked at me, and said, “Do you mean it?”

I nearly choked on my Brach’s candy conversation heart. “Huh?”

“Do you really mean it? What it says on the card?”

The obvious response would have been, “Of course, I meant it. I picked it out special just for you.”

That’s not what I said.

Instead, I said, “Uhh… I forget what it says.”

She rolled her eyes in disbelief and then held up the card so I could reread it. Satisfied that it reflected my intent as best an out-of-the-box Valentine’s card could do so. I finally said with belated confidence, “Yeah. I meant it.”

She smiled but I think mostly it was her laughing at what an idiot I was. Meanwhile, Mike is laughing so hard he’s got his head down on the table pounding his fist. I was worried he was going to fall out of his wheelchair he was laughing so hard. I probably turned the same shade of red as the icing on the heart-shaped cookies we were eating.

In our next episode, we will continue the saga of my romance with Rose and other somewhat darker stories of my school days at Roberts School.

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Contemplating Life – Episode 17 “Scientific Pursuits”

This week we continue our series of episodes on my experiences growing up in a special education school. We talk about my experiences in fourth and fifth grade and how I begin to develop a passion for math and science.

Links of interest:

Support us on Patreon: https://www.patreon.com/contemplatinglife
Where to listen to this podcast: https://podcasters.spotify.com/pod/show/contemplatinglife
YouTube playlist of this and all other episodes: https://youtube.com/playlist?list=PLFFRYfZfNjHL8bFCmGDOBvEiRbzUiiHpq

YouTube version

Hello, this is Chris Young. Welcome to episode 17 of Contemplating Life.

This week we continue our series of episodes on my experiences growing up in a special education school. We talk about my experiences in fourth and fifth grade and how I begin to develop a passion for math and science.

When I was in third grade, Miss Holmes was assisted by a student teacher Mr. Wright. I don’t recall his first name if I ever knew it. After doing his student teaching, he was hired at Roberts School to teach fourth grade so he was already familiar with me and all of the other students.

He was a really fun guy. For social studies class, he made up some sort of play or pageant that was supposed to illustrate Native South American culture. I don’t recall if he said it was Aztec or Incan culture. I mentioned that in Miss Holmes’ class I was sort of the teacher’s favorite and that continued under Mr. Wright so I got to play the part of the tribal king. The queen was played by a girl named Rosemary. Those of you who know me, have heard me talk about a girlfriend named Rose but this was a different one.

I vaguely recall referring to Rose as my “girlfriend” but I think it was sort of along the same lines as Cheryl from kindergarten. Being in school, your family required you to have a girlfriend so I picked her. I don’t even recall if she would refer to me as her boyfriend. It may have just been someone I picked to keep my grandmother off my back asking me about girlfriends. It wasn’t that I had any particular attraction to her except that she was probably the second smartest person in the class and thus also a teacher’s favorite. She moved away after fourth grade and I never saw her again and didn’t particularly miss her. At least I don’t have any embarrassing stories to tell about insulting her disability.

Fourth grade was the first class in which we had science class. That is where I began to really get my passion for science beyond my interest in the space program which was at its height in the 1960s. We did experiments where we passed light through a prism and showed how when you stick a pencil and a glass of water, the refraction makes it look like the pencil is broken. I think we also played around with batteries, light bulbs, motors, and switches as well as electromagnets.

It was either in fourth grade or perhaps fifth grade that I began reading science fiction. The first book I read was “Tom Swift and His Rocket Ship” closely followed by “Danny Dunn and the Antigravity Paint”. I will talk more about my passion for science fiction and these books in particular in a later episode.

Beyond the science experiments and crazy plays that we acted out in Mr. Wright’s class, I also recall he was a huge fan of James Bond. This was the 1964-65 school year which saw the release of “From Russia with Love” and “Goldfinger” starring Sean Connery. I don’t know if it was Mr. Wright’s influence or I just got caught up in Bond fever but I recall I built a model car that was a James Bond Aston Martin complete with a spring-loaded ejection seat and rockets that would shoot out the back when you press a button. I remember having some deep philosophical discussions with him (to the extent a nine-year-old could) because I had difficulty with the idea that the double-O in 007 meant “license to kill.” I didn’t think even with a government license it was okay to kill somebody.

My only other memory of Mr. Wright was that he had gone to school in Terre Haute Indiana and he had us convinced that the words “Terre Haute” were Indian for “terrible smell.” It was only when I took French in high school that I learned it meant “high ground” in French.

One more very memorable thing happened in fourth grade. There was a girl named Rita Johnson in my class. She had braces on her legs and walked using “Canadian Crutches”. These are sort of like a cane that has part of it come up into a U-shaped cuff that goes around your forearm. The crutch doesn’t come all the way up to your armpit like traditional crutches.

She was walking by my desk one day and slipped and fell. The cuff around her forearm dug into her arm and cut a V-shaped slice into it about three-quarters of an inch. A flap of skin opened up from this V-cut and you could see what I thought was muscle inside her arm. I don’t know for certain that’s what I was seeing but it was definitely a deep cut through all the skin. It wasn’t just a scrape.

Like lots of kids with crutches and braces, falling down was not that unusual. She was about to attempt to get up when she looked down at her arm and saw the wound. She started screaming hysterically. They flopped the flap of skin closed, took her to the nurse’s office, wrapped it up in a bandage, and sent her back to class. I think the thing really needed stitches but she never got any. Years later when I was in my early 20s, I ran into her at a disability event and she still had a V-shaped scar on her arm. I didn’t get the opportunity to talk to her to tell her I remembered the day she got it.

Afterward, I bragged to everyone about what I saw. “It was so cool! You could actually see inside her arm!” All of the girls thought it was gross and all the guys thought it was so cool, and they were jealous that I got to see it and they didn’t.

The incident further provoked my sense of scientific curiosity. Who knows? Had I not been disabled, it might have led me to a career in medicine.

My scientific curiosity was piqued by other observations around that age. We used to go to the Lafayette Road Drive-in Movie at the corner of Lafayette Road and Georgetown Road. We had a 1959 Plymouth which had a large sloping rear window. After watching the first part of a double feature, my parents would put me in the back of the car on a large shelf above the rear seat with the window over me. I would lay there and look up at the stars and wonder about them. I knew that stars were suns and that there was no air in outer space. I recall asking my dad, “How is it possible for the stars and the sun to burn in outer space when there is no air?“ He didn’t know. I had to figure that out. It led me to an early interest in astronomy.

I always was a logical thinker. One time when we were on vacation at Lake Schaefer we were accompanied by a priest friend Father Paul Piatt. He was the second of three Father Pauls who influenced my life. He was attempting to engage me in a conversation about how God made everything and influenced everything. Somewhere in the conversation, he asked me, “Where does the wind come from?” Presumably, he wanted me to say that God made the wind blow. My answer was, “It’s caused by the trees.”

Looking back on my answer, I still think it was a brilliant deduction. I noticed that whenever the wind blew, the trees were moving back and forth. I naturally assumed that it was the motion of the trees acting like giant fans that caused the wind. I later learned this was an excellent example of the warning, “Correlation does not imply causation.” I had noticed the correlation between tree movement and wind blowing. I simply had the cause and effect backward. Still, I thought it was an ingenious observation for a young scientist.

My scientific pursuits were furthered in fifth grade under the guidance of a wonderful teacher Mrs. Beatrice Rogers. She was a heavyset African-American woman with a sparkling personality and a passion for teaching. We had all sorts of activities going on at once in her class. My favorite was a large diorama we built featuring several dinosaurs we made out of modeling clay.

The fifth-grade curriculum was the first to implement the so-called “New Math”. According to Wikipedia, this was a revolutionary, yet temporary paradigm shift in the way mathematics was taught in elementary school. It was prompted in part by the Soviet Union launching the first man-made satellite Sputnik in 1957. The belief was that Russian engineers were mathematical geniuses and that in order to compete with them in the space race, we had to raise a new generation of people who were proficient in math.

Rather than concentrate on rote memorization, the idea was to teach mathematical concepts. Kids need to understand why math was the way it was and not just memorize answers. It was designed to teach logical thinking. Among the concepts it included were Boolean logic, set theory, ideas such as intersection and union, as well as numbering systems other than base 10. It may have contributed to my inability to do simple arithmetic that I talked about last week. While most students had no use for such concepts, I was unknowingly destined for a career in computer programming. So not only did new math come to me easily, it served me well in later years.

Concepts such as intersection and union also served me well in working with 3D graphics and a graphics rendering engine I helped to develop. In 1990, I co-authored a book about computer graphics and it relied on such concepts. I also use it in my work when I use CAD software for 3D printing.

I wonder if new math would have worked better had they phased it in from first grade onwards rather than trying to implement it systemwide and trying to teach it to fifth or sixth-grade students who already had four or more years of old math education.

Given that children are learning coding at an early age, my guess is that many of the old “new math” concepts are being taught today without the negative connotation that became associated with the sudden and ill-conceived implementation of the new math curriculum in the 1960s.

The major event that happened in fifth grade was that I was given the use of a motorized wheelchair. The chair had been donated to the school. A small brass engraved tag on the side said, “In loving memory of my husband Mrs. Vern Hollingsworth.” And a date presumably of when Vern Hollingsworth died. I had heard that he was an elderly wealthy man who had purchased the wheelchair but only used it for about 6 months before he passed away.

The school allowed me to use the wheelchair in school and I could take it home over the summer as long as my parents agreed to keep up the maintenance. I will have more extensive comments about wheelchair technology in future episodes but briefly, this was an ordinary Everest and Jennings wheelchair with two 6-volt lead acid automobile batteries and two electric motors that powered the rear wheels through belts and pulleys. The rear wheels had wire spokes and narrow solid rubber tires.

In the summertime, riding around on concrete sidewalks and streets caused excessive wear on the tires and they had to be replaced quite often. Scraping into narrow doorways wreaked havoc on the thin wire spokes and Dad eventually replaced them with heavy-duty spokes. The batteries had to be replaced about once a year but they were standard 6-volt car batteries which were still in common use in the mid-1960s.

The electronics were quite primitive by modern standards of power wheelchairs. The joystick was a simple plastic knob that rested inside four micro switches set at 45° angles. When you pushed the stick straight forward, it would press 2 of the switches which would engage both motors forward. If you pushed forward and right, it would engage only the left motor. Push straight sideways and one motor would go forwards and the other would go backward. I called that maneuver a “bat-turn” after the way the famous Batmobile could turn instantaneously in the 1960s TV version of Batman.

Unlike modern power chairs, there was no proportional control. Each motor was either on or off. The physical therapist who taught me how to drive it had little or no experience with the device. She told me, “If you get into trouble, just let go of the joystick and you will stop.” She unknowingly left out the word, “eventually”. When you let go, the chair would coast a tiny bit and that was on level ground. I didn’t realize that on a ramp, it would roll on its own without power.

My misadventures in the wheelchair began on day one when I ran over Mrs. Rogers’ foot. After that, she learned to stay out of my way.

My second thrilling moment in the power wheelchair came when I tried to drive it down a large ramp that connected the first and second-floor classrooms. This episode is already way too long so I’m going to save that story for a later episode. Let’s just say my scientific mind learned a lot about physics driving a wheelchair down the ramp out of control.

I didn’t have the only power wheelchair in the school. There were two others. Nancy and Leslie Gilson were about three years and five years ahead of me respectively. The Gilson sisters were quite frail petite young ladies with a soft voice that you had to strain to hear sometimes. They both had a type of muscular dystrophy although not the common Duchenne’s muscular dystrophy because only boys get that type.

The family had purchased 4 power wheelchairs – two to use at school and another pair for use at home. They didn’t ride the school bus like the rest of us. Their chauffeur would lift them out of their home wheelchairs and put them in the limousine and drive them to school. Then he would lift them into the other power wheelchairs which were kept at the school. We always said it was a “chauffeur” and a “limousine” but none of us really knew that as a fact. It might have been their dad or older brother or friend of the family driving what was obviously a fancy car probably a Lincoln or a Cadillac but not necessarily a limousine.

Power wheelchairs in those days cost about $1000 which in today’s money would be about $30,000. The fact that the family could afford four of them made it obvious they were well-off.

The presumed wealth of the Gilson family was an illustration of the diversity of the student body at Roberts School. On one end of the spectrum, we had the Gilsons who could afford four power wheelchairs. On the other end of the spectrum was one of my classmates who didn’t come to school for a week because he had no shoes to wear. He needed expensive orthopedic shoes. When the social worker inquired why he wasn’t in school and discovered the reason, the PTA paid for a new pair of shoes. The only reason I knew about it was that my mom was president of the PTA and couldn’t keep a secret.

Roberts School had students who were black, white, Hispanic, and Asian. Rich and poor. Catholic, Protestant, Jewish, and atheist. Disability knows nothing of race, creed, or socioeconomic status. While we were highly segregated from the rest of the school population because of our disabilities, we were at the time the most integrated school by all other measures.

The prevailing belief that the Gilson family was well-off was confirmed when sadly Leslie passed away shortly before graduating high school. The family donated a large sum of money to buy hundreds of library books for the school. Each of them contained a foil sticker on the inside flyleaf saying “Donated in memory of Leslie Gilson.” Among the donated books were some sci-fi classics by Asimov and Clarke which I enjoyed. Her family accepted her high school diploma posthumously.

After the incident on the big ramp, even though I didn’t know either of the sisters because they were older than me, I stopped Nancy in the hall one day and asked her advice on navigating the ramp.

Everest and Jennings dominated the wheelchair market in those days and they were the only company to make power chairs. They only had one model. Even though my wheelchair was theoretically identical to those driven by the Gilson girls, for some reason they both were faster than me. We never officially “raced” but I would find an opportunity to go down the hall alongside them and lose miserably. It really made me angry I could get outrun by a couple of girls.

I never got to know Leslie at all. Nancy was only a couple of years ahead of me so we were in high school at the same time. She was quite shy yet very intelligent with a good sense of humor. She won a poetry contest for a poem that moved me greatly. I’ve got a copy of it stashed around here somewhere and I will reprint it if I ever find it.

In an award-winning magazine article I wrote in 1987 about my school experiences, I told a story about the Gilson girls that was related to me by one of the teachers at a school reunion. I got a nice note from their older brother thanking me for remembering them. He said he didn’t recall the incident I described how Nancy handled the death of her older sister yet he said he couldn’t deny it happened.

For me, it doesn’t matter if the story was true or not. It doesn’t matter if they came to school in a chauffeur-driven limousine or if it was just their dad or older brother in a fancy car. It’s an example of the famous line from the film “The Man Who Shot Liberty Valance” which says “When the legend becomes fact, print the legend.”

The Gilson girls were the stuff of legends.

In our next episode, we will continue the saga of my school days at Roberts School. I will tell one more story from fifth grade and then move upstairs to junior high.

If you find this podcast educational, entertaining, enlightening, or even inspiring, consider sponsoring me on Patreon for just $5 per month. You will get early access to the podcast and any other benefits I might come up with down the road. It’s not that I’m desperate for money, but a little extra income sure could help.

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Even if you cannot provide financial support. Please, please, please post the links and share this podcast on social media so that I can grow my audience.

I will see you next week as we continue contemplating life. Until then, fly safe.

Contemplating Life – Episode 16 “Are We Safe?”

This week we continue our multi-part series about my early childhood and my journey through the special education system.

YouTube version

Shooting Script

Hello, this is Chris Young. Welcome to episode 16 of Contemplating Life.

This week we continue our multi-part series about my early childhood and my journey through the special education system.

After successfully navigating kindergarten, I proceeded through the primary grades. First and second grade were uneventful experiences. I don’t recall my teachers’ names. I was assigned a better wheelchair than the one that I had in kindergarten. The only other memorable events from that part of my life were not school related. Both of them were painful experiences that left me bruised and sore

One Sunday afternoon in the middle of winter, my family went ice skating at Geist Reservoir on the northeast side of Indianapolis. We were accompanied by my paternal grandparents. Apparently, ice skating was a family tradition that my dad enjoyed with them since his childhood. We had a small snow sled with a seat built into it. Dad lifted me into the sled and would go skating across the ice pulling me on the sled at high speed. I really enjoyed it until we hit a patch of rough ice just as we were making a turn. The sled tipped over and dumped me onto the ice. The result was a lot of sprained body parts and a black eye. I had interesting stories to tell the next day at school to explain the bruise. We never went skating again.

The other incident was at a summer camp that I believe was between my first and second grades. It was only a day camp, not overnight. It was held at a facility on the east side called the Crossroads Rehabilitation Center. That organization still exists at a different location and is now known as Easter Seals Crossroads.

Although the camp was designed to serve disabled kids, I didn’t feel like they were very well-equipped. For example, they didn’t have a handheld urinal in the restroom like the ones I used at home or at school. The janitor tried to lift me up by grabbing me under the arms and standing me in front of the toilet to try to pee. It’s the only time I ever attempted to pee standing up. Of course, my legs could not support even a tenth of my weight. It is a wonder I wasn’t injured. That would come later. The next day, Mom sent me there with a Tupperware cup to pee into.

Behind the building in a large playground area where most of the camp activities took place, they had a regular above-ground swimming pool set up. Some of the kids would be lifted out of their wheelchairs and could get into the pool. I was too afraid to allow strangers to do that. There was a wooden platform alongside the pool and a wooden ramp. They would roll me up the ramp in my wheelchair so that I could see over the edge of the pool and watch the other kids splash around.

The camp counselors were everyday high school kids who had no particular experience dealing with disabled children. The young lady who was pushing my wheelchair took me down the ramp forwards. She slipped on the wet ramp and I went rolling forward until my front wheels hit the grass. The chair tilted forward and I fell out and landed on my face. Fortunately, nothing was broken but I had sprained ankles, knees, elbows, and shoulders.

It took me more than a week to recover. During that time I became an even bigger mama’s boy than usual and I insisted on sleeping in her bed relegating my dad to the sofa. When I finally recovered, they tried to encourage me to go back to a second session of the camp but I flatly refused.

Several of my disabled classmates attended an overnight weeklong summer camp called Camp Riley. Although they reassured me that it was staffed by experienced, knowledgeable people and was much better run than what I have experienced at Crossroads, I never had any interest in leaving the safety of my parents’ care. I never spent anywhere overnight away from my parents or grandparents until a hospital stay in my early 20s and then a vacation with my friend Barbara when I was 31. You will hear all about those situations in future episodes.

I always felt completely safe riding the school bus to Roberts and completely safe while at school. There was however a serious safety issue at the school that no one realized until one fateful day when someone dared my classmate Charles Lynn to pull the fire alarm as a prank. That stunt uncovered a serious hazard. Here is the back story.

I mentioned in the last episode that in kindergarten we spent most of the afternoon in nap time laying on cots in the classroom. I also mentioned that the entire school had one hour of post-lunch nap time. Rather than set up the cots in the classroom, the grade school kids would go to the basement for nap time. After each of the three lunch periods, we would all ride the elevator down to the basement, and travel down a very long hallway to a large room where cots and beds were set up. You could pack four wheelchairs and perhaps two or three walkers on the elevator at once. It would take several trips to get the entire contingent down to the basement.

The route from the elevator to the nap room took us past the boiler room which was where the bus drivers would hang out when they were not driving. It was the only designated smoking area in the building. When my mother or other parents were there working on volunteer activities such as the cookie sale, they would hang out with the bus drivers in that room and smoke and drink coffee.

Along that long corridor were huge 55-gallon drums of drinking water which were marked with the civil defense logo. This was the height of the Cold War and our building was a designated fallout shelter. I seriously doubt how much protection the building would have given us. The nap room had a series of short windows high up in the back wall. Then again, we weren’t exactly capable of doing the classic 50s “duck and cover” useless maneuver in the event of a nuclear attack.

In addition to fire drills, in which the entire student population would evacuate the building and lineup on the sidewalk far from the building, we also had so-called “security drills” in which we would all ride down the elevator to the basement nap room which had the beds and cots conveniently folded up and put away. I would’ve liked to have seen them frantically doing this in the event of an actual emergency.

What was supposed to be the safest room in the building was actually a death trap. This was uncovered thanks to my classmate Charles Lynn, a walker with cerebral palsy. One day as we were returning from our nap, someone noticed there was a fire alarm button next to the elevator. None of the kids in wheelchairs could reach a high enough but because Charlie could walk, he could reach it. Someone double-dog dared him to pull the fire alarm in the basement as we were waiting on the elevator.

While we knew it would create a stir, we had no idea it would create a mild panic among the teachers. Naturally, in a fire, the elevator is off-limits. No one ever asked, “How are we going to get 20-30 handicapped kids out of the basement in the event of a fire?” Furthermore, if there ever was a fire, one of the most likely places would be an explosion in the boiler room. As I mentioned, we passed that room en route from the elevator to the nap room. Even if the elevator was operational during a fire, the way would be blocked by a fire in the boiler room.

By the way, there was a long winding ramp connecting the first and second floors and there were smaller ramps connecting various levels of the first floor but there was no ramp access to the basement. You will hear more about the big ramp between floors in a future episode.

After some frantic staff meetings at the end of the day, nap time was moved to the auditorium which was on the ground floor. Although we never had a fire while I was there and I don’t think there was ever one in 50 years the building was used as a school, that stunt by Charles Lynn could have potentially saved a lot of lives by calling to attention a very dangerous situation.

By the way, if you are a race fan who visited the Indianapolis Motor Speedway, you might have seen Charles. He frequently stations himself behind the grandstands of the main stretch near the entrance to the Gasoline Alley garage area where he sells newspapers. He also sells inside Gasoline Alley and is a popular figure with the drivers and mechanics. Legendary driver A.J. Foyt nicknamed him “Wolfman” because somehow they found out he could do a really cool Wolfman howl. Of course, by now he would be in his late 60s like me and I don’t know if he is still around or not.

After the fire alarm incident, we then had our security drills the way most schools held them which was to grab our coats, go out into the hallway facing the wall, and put a coat over our head. As the Cold War began to relax, security drills were renamed tornado drills. Realistically, tornadoes were a much more probable threat, and getting into the hallway away from windows was a more practical defense against tornadoes than it would have been against a nuclear conflagration.

Sadly, these days students not only face fire drills and tornado drills, but they also have to endure active shooter drills. God only knows how Roberts School would have handled those. Probably just lock the door and pray as most kids do. Let’s face it, hiding under your desk is probably no more effective against an active shooter than it would be against a nuclear bomb.

Before disabled children were integrated into regular education settings, one of the arguments against having us in a regular school was that it presented a safety hazard. They feared it would be difficult to evacuate disabled kids and/or evacuating them would slow down the evacuation of able children.

Famed disability advocate Judy Heumann who recently passed away at age 75 was a teacher who taught from a wheelchair because she had contracted polio as a child. She was denied employment because they said she could not help evacuate children in case of an emergency and/or would hinder their evacuation. She eventually won a court case that allowed her to teach. She later worked as an advocate who was instrumental in getting the Americans with Disabilities Act passed. See the articles linked in the description for more about her.

My third grade teacher, Miss Clara Rose Holmes had no such difficulty being employed. She walked with a limp and have limited use of one arm as a result of polio. As a child, she attended Roberts School and upon graduating college, she came back to teach. She was much beloved and fondly remembered by everyone who attended the school.

I was sort of the teacher’s pet in her classroom. She noted how bright I was and was happy to accelerate me through many lessons. I was doing multiplication and division while some kids were still struggling with subtraction.

She concluded that some of the work in her classroom was somewhat “busy work”. While most kids had to go through pages and pages of math problems every day, once she realized I was gifted, she exempt me from some of those math drills. For grammar lessons, most students had to begin the day by writing out all of their spelling words before doing any of the other assignments. I was similarly exempt from these drills.

She had concluded that such grunt work would tire me out. My disability left me no more fatigued than any of the other kids in the class. But when the teacher says, “You’re so smart that I’m not going to waste your time on all these mindless drills.” I certainly wasn’t trying to dissuade her from the idea that it was too hard for me physically.

The end result is that I can solve a logic problem with no difficulty. High school algebra, geometry, trigonometry as well as calculus posed no problems for me yet simple arithmetic is a challenge. In high school, when I took bookkeeping, I could take a column of numbers and add them up three times and get three different answers.

Grammar, sentence structure, and writing all come naturally to me yet I can’t spell worth a damn. One of my junior high teachers tried to trick me into becoming a better speller because he knew I was competitive and egotistical about my intellect. He tried to persuade me to enter a spelling bee. I laughed in his face. “You really expect me who can’t spell my way out of a paper bag to go up against people who have a natural talent for such things? You’re trying to trick me by making it a competition. No way.” Fortunately, I got into computers. Spreadsheets and spellcheckers compensate for my lack of skills.

Two other memorable events occurred when I was in third grade. As part of routine screening, they discovered I couldn’t see. I had no idea I was nearsighted. I just thought that was as well as human beings could see. I was amazed by photography, especially Polaroid instant photography. I could look at a photograph up close with my nearsighted vision and see more detail than I could see of the real objects. I thought it was magical that a photograph could see in more detail than I could.

I got glasses when I was eight years old and discovered a world I didn’t know existed. I didn’t know that grass consisted of individual blades. I never got out of my wheelchair and played on the ground where I could see the grass up close. To me, it just looked like a spread of fuzzy green carpet.

The fact that I was a gifted student, learned to play chess at age 8, and wore glasses completed my image as the ultimate nerd probably before the word nerd was ever coined.

The other memorable event from my third year of school was November 22, 1963. That fateful day my mom was at school in my classroom that day hosting a party as the PTA room mother. It was a thank-you party for our successful annual cookie sale. A teacher from a different classroom ran into our room and told the adults, “Turn on the radio. There is terrible news about the president.”

They all listened intently but I couldn’t tell what was going on. My mom explained to me that President Kennedy had been shot in Dallas. I misunderstood what she meant by “shot”. I thought he had received an inoculation. I asked, “Why did he go to Dallas? Don’t they have doctors in Washington DC that could give him his shots?” She explained he was shot with a gun.

Before the afternoon was over, we learned he had died. Rather than ride the school bus home, Mom took me home herself and tried not to cry in front of me. My family was lifelong Democrats and Roman Catholics. My grandmother had a photograph of Kennedy on the fireplace mantle next to a photograph of the Pope.

My only comment on the way home was, “I guess we throw away that comedy album ‘The First Family’ when we get home. It won’t be cool anymore to make fun of a dead president.” I was referring to a comedy album we owned called “The First Family” by comedian Vaughn Meader. He did wonderful impersonations of Kennedy and the Kennedy. I don’t think we threw it away but we never listened to it again. I brought a copy on CD from Amazon decades later I listened to it one more time just for old times’ sake.

We spent the next few days after the assassination glued to the TV. The following Sunday just as we came in the door from church, I saw Jack Ruby shoot Lee Harvey Oswald live on NBC TV. I said, “Hey Mom… They just shot that guy.”

“What guy?”

“That guy that shot the president. Somebody just shot him.”

If the president of the United States and the man in police custody who had shot him were not safe, were any of us ever safe? That question persisted throughout all of my memories of the 1960s.

I remember prior to that watching the Today Show with my mom during the Cuban missile crisis and asking, “Mommy, What’s a blockade?” I didn’t know how serious the threat was.

Throughout the 60s, we had the Cold War, the Vietnam War, the assassination of the Rev. Dr. Martin Luther King Jr, and the assassination of Bobby Kennedy.

I was in Chicago two weeks before the riots at the DNC having an ordinary vacation with my parents. What if I had been there during the riots? What might I have seen at a young age?

Things haven’t changed much these days. People still live in fear. The threats are different but the fear is the same.

Even as an old white guy, the fear is still the same. Sometimes I find myself waking up in the morning thinking, “I really should turn on the news. Turn on the Today Show or MSNBC. Maybe Vladimir Putin dropped a tactical nuke on Ukraine. I wouldn’t even know about it if I didn’t turn on the TV and find out.”

Those are the things that occupy us today. Not a whole lot has changed.

In our next episode, we move on to fourth and fifth grade where I got my first motorized wheelchair, and about the diversity of the kids who attended Roberts school.

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I will see you next week as we continue contemplating life. Until then, fly safe.

Special Episode “Assistive Technology – Gateway to Disability Rights”

For this special episode of Contemplating Life, we present a video of a live presentation I made on April 20, 2023, at the PATINS Tech Expo. There is an audio-only linked below. Eventually, I will have a transcript as well. I just wanted to get this episode up quickly.

Note: Portions of this episode deal with adult topics. Viewer discretion is advised.

Audio-Only Version

Click here for free audio version on my Patreon page

YouTube Version

Links of Interest